Chronic anal fissure losing the will to live

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GOOD AFTERNOON

IVE BEEN SUFFERING THE HELL OF THE ANAL FISSURE FOR A YEAR (chronic) AND ITS REALLY TAKING ITS TOLL ON ME NOW IM SCARED TO GO BM BECAUSE I KNOW I WILL BE IN TORTEROUS PAIN FOR HOURS AFTER ALL THE CREAMS DO NOT WORK ME IVE TRIED MANY

IVE TRIED SITZ BATHS ETC NO RELIEF THE ONLY SLIGHT RELIEF I GET IS SITTING ON A HEAT PAD

IM DUE TO SEE A SPECIALIST NEXT MONDAY ALLTHOU ANXIOUS AS THE AREA IS EXTREMELY PAINFUL

IF IT WASNT FOR BRING A MOTHER I HONESTLY THINK I WOULD OFF TAKEN MY OWN LIFE BY NOW

THE PAIN IS SOMETHING I WOULDNT WISH ON MY WORST ENEMY I FEEL SO DEPRESSED AND ANXIOUS ALL THE TIME ITS INTERERING WITH MY WHOLE LIFE SOCIAL WORK HOME ETC

LITERALLY CAN NOT COPE ANYMORE

PLEASE HELP 😦

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  • Posted

    i believe there needs to be more support or local support groups for this horrible condition!! its soooooo painful!!!!! try hot baths and lubrication before going to the toilet, this helps a lot!!

    • Edited

      i said to my partner its almost a silent killer so many people have got so bad you end up with suicidal thoughts myself included as its something alot of people feel embarrassed to talk about i agree theres little help for this complaint i found A@E AND DRS completely useless when i was begging for help

      it wouldnt be so bad if pain killers actually helped but they dont you just have to suffer

      its the most awful thing ive indured

    • Posted

      For 3 months been in so much pain and spent a lot of money on different creams, everything the doctor gave me was fir pills and made my life hell!!!

      After 3 months the doctor prescribed me this ointment it's called rectogesic 4mg rectal ointment

      Omg it works I was so bad with the pain I was crying like a baby on the floor of E and A hospitle at 3 in the morning

      The cream costs 175 pounds but I got it on the prescription so was 10 pounds

      It's my life life normal again with in 4 minites of putting it on I get a head ach every time that lasts 20 minites it works

      I would pay 300 for this as its saved my life don't try anything else apart from this

      I'm sharing this as my life has been hell xxx get the cream it works

  • Edited

    Hi.Ive never been on a forum before but i feel the need to talk. ive been suffering terribly with anal fissures. ive always been constipated which has caused the fissures.

    i would like to share the changes ive made which have helped.

    All bran and fruit for breakfast i snack on home made bran cake and i drink 5 lints of water a day. Each morning i get in a salt bath. after 5 mins i insert a glycerin suppository. wait as long as i can and then stand over the loo. as soon as its over i jump back in the bath. And breath.

    Its been horrific. i sympathise with you all. I ended up in hospital as the pain was so bad they thought i had a brain anyurism. please drink more water.

    Good luck everyone xx

  • Edited

    hi Lou7272,

    i understand your feeling. for me on of over 3 years now. i am dealing with it now. i am using Dr Buttler it is on Amazon and also Calmoseptine. My pain level now is like nothing or 1 &2, just bleeding then stop for 3 or 4 weeks bleeding again after BM.

    Try to eat more fiber, like Papaya and spinach that is help.

    You will heal, I have visited 3 doctors. Once wants me to do botox, the other two says no just be patient with cream if you still young. botox and surgery does not give you warranty if it gone or still come back. It is depend on your stool.

    You should try dr Buttler take a way the pain and stop bleeding use it for about a week or Two then use Calmoseptine. you will enjoy life again.

    Hope this help

  • Edited

    Yo what's up! I just made an account to post on here. I might be making my own thread shortly with more details as this forum was useful for me regarding my issues which sound like your own and I'd like to return the favour.

    This will be long so i apologise but try and make it through, it may be helpful.

    I am a 28 year old male, UK with Ulcerative Colitis who has dealt with a chronic fissure for 6-7 years. i was diagnosed with bowel disease and due to this ended up with a bad tear that never healed. I started as a fit and healthy male who worked out daily and weighed about 14 1/2 stone before this nightmare, I now currently sit at 9 stone. I attribute the weight loss to anxiety over eating because as we all know whatever you eat has to come out the other end!

    I also suffer from terrible anxiety which does not help our bottom situation at all. I have spent the last 5-7 years in my house doing nothing due to the pain and embarassment, spent so much time away from work and having no quality of life at all. I honestly believe the stress and anxiety comes hand in hand with the bottom pains as you wake up terrified to use the toilet and my whole world revolves around this. My spasms would last from first BM to 8-9:00pm at night. Horrendous pain.

    The pain you feel is from the internal sphincter muscle spasm in response to the fissure. The muscle spasms preventing blood flow to the area and therefore healing.

    This has been my experience with different procedures. My GP prescribed me the 2% Nitro Glycerin creams for 2 years which did not work, I tried 2 variations due to terrible headaches from the first cream eventually leading to an allergic reaction down there which made everything much worse.

    Eventually after many years I got referred to a Colorectal Specialist who gave me Botox injections and a Fissurectomy (fissure scraping to remove scar tissue) last year. This procedure in my opinion was the worst pain I experienced with the whole ordeal, even worse than the fissure itself. Recovery was tough and I was taking max doses of Ibuprofen and Paracetamol just to get through the day and this lasts for 3-4 weeks. I would not recommend this as it did not solve my issue just provided relief for a few months.

    My next visit with the specialist ended up with me being offered a LIS (Lateral Internal Sphincterotomy) or another round of Botox and examination under anaesthesia. I chose the Botox again for a second time as I was so terrified of a more major surgery - especially reading horror stories online about cutting into the Sphincter muscle, even in this forum lol. This round went a lot easier for me as there was no scraping of the fissure. I was walking within a week but still needed a lot of painkillers during and after BM's. Again I had short relief as the botox slightly paralyses the spincter muscle to prevent the spasms i mentioned earlier, but ended up being referred back again due to re-opening the fissure.

    This leads up to where i am now and after finally choosing to settle for the LIS surgery which I had 1 week ago on Monday 17th Feb 2020. I read hundreds of horror stories from people here so was prepared for the worst - incontinence, terrible pains which lasts for weeks or months etc.

    My experience was honestly the opposite of everything I read online. I woke up that morning to toast at 6:45am as no food is allowed after 7:00, I also drank as much water as i could before 11:00 as no fluids are allowed past that time either. I arrived at the hospital very nervous at 12:30 and had all pre checks done. The surgeon talks you through the procedure of making a small slice to the left or right of the rectum, not actually inside it.

    They then under the skin through the incision remove part of the internal sphincter muscle. In my case they removed the rear or posterior portion of my sphincter which was heavily damaged from years of tearing. I eventually went in for the surgery at about 3:30 and woke up completely out of it due to the painkillers and anaesthesia a few hours later. The pain isn't bad at this point so once checked out you spend that night sleeping it off.

    Now don't get me wrong, the next 2 or 3 days are painful, especially when going to the bathroom. It hurt like a b***h but its more of a surgical pain than the fissure pain and spasms, I was and still am black and blue and swollen down there which is to be expected and the stitches are quite uncomfortable. But in my experience it is NOTHING compared to the pain of a fissure. you need to ensure you take the relevant laxatives they recommend, this is a huge point as you do NOT want to get constipated during recovery. I took 10ML of lactulose X4 times per day and X1 sachet of Fibregel on an evening. As I'm still in recovery I eat 4-5 tiny meals a day mostly greens and white meats, soft oats etc and a LOT of water to keep everything soft.

    I am now just over one week in, stitches are still there, i'm still black and blue from bruising, but my experience in general is very positive. I have taken 0 and I mean no pain killers of any sort during my recovery so far going from the day after my surgery until this very second. No paracetamol no ibuprofen nothing. I currently go to the bathroom 2 or 3 times every day now and its easier to pass stool every time, i don't get the spasms at all anymore. I still have a bit of anxiety regarding going but it gets easier with each day I experience less pain.

    I honestly think after years of damage down there my sphincter just kept getting tighter and tighter, I felt like a grown man trying to poo from a babies sized bottom and it was ruining my life.

    Although i am not fully recovered or sitting yet i have been on my feet walking since day 1 post surgery and each day is getting easier.

    Anyone out there struggling with a chronic fissure get advice about a LIS, i am one week in and see a bright light at the end of my tunnel already and wouldn't recommend it enough.

    • Posted

      wow

      thankyou for writing

      im to in the uk

      im pleased for you sounds like youve had it real bad too

      im seeing specialist this monday coming

      im going to push for Lis

      ive never written on these forums but glad i have as i felt so alone in this torture and nobody around me really knows the extent of pain i go through

      so its nice to chat with people whom have or are in the same situ

      i just really want it gone or at least better

      thankyou for your messages everyone it gives me some hope

    • Edited

      No problem at all, if you have any questions feel free to ask. I completely agree with everything you have said especially regarding suicidal thoughts it really is an illness nobody understands unless you have been through it yourself.

      Your experience may differ from mine and my circumstances may change but its honestly after a week made a huge difference already.

    • Edited

      Thanks for this. Its very informative. Thanks for sharing and I hope you have a speedy recovery

    • Posted

      Thank you for your detailed post. I have been in a similar situation for 3 years now and I am getting LIS done next week.

      How are you feeling now? Hope you have fully recovered? How long did the full recovery take?

      Also how long did you have to take laxatives after the surgery.

      Finally, my doctor has asked me not to eat or drink anything for at least 12 hours before the surgery. It seems you were okay with drinking water until 4 hours before the surgery and you ate toast in the morning. My surgery is at 11.30 am, so I guess I can drink water until 8 am though I can't eat anything. Also was your doctor ok with juices without pulp in the morning on the day of the surgery? And did they ask to you to do anema or take laxatives on the night before the surgery to clear your stomach?

      Sorry to ask a lot of questions. But last 3 years have been full of pain and anxiety and though I have finally decided to go for LIS, I am still nervous.

      Thanks.

    • Posted

      How are you doing now?I'm sure we would all love to know,and we are keeping our fingers crossed that you are well and completely healed!

      We need some positive news 😉

    • Posted

      If he told you to stop then do it. It so yku don't shock on your on food and water during surgery. And it best to stop eating 12 hours amd also try chsnging your diet and start fober supplements before surgery you will thank me before and don eat food that is heavy

    • Posted

      For 3 months been in so much pain and spent a lot of money on different creams, everything the doctor gave me was fir pills and made my life hell!!!

      After 3 months the doctor prescribed me this ointment it's called rectogesic 4mg rectal ointment

      Omg it works I was so bad with the pain I was crying like a baby on the floor of E and A hospitle at 3 in the morning

      The cream costs 175 pounds but I got it on the prescription so was 10 pounds

      It's my life life normal again with in 4 minites of putting it on I get a head ach every time that lasts 20 minites it works

      I would pay 300 for this as its saved my life don't try anything else apart from this

      I'm sharing this as my life has been hell xxx get the cream it works

  • Edited

    just wondering has anyone tried anoheal? ive heard its very exspensive on nhs like £100 plus but have heard good reviews?

    i believe this has to be POM aswell as its similar to the GTN CREAM

    • Edited

      Looks like Anoheal is just 2% topical Dilitiazem Hydrochloride, which was my second type of rectogesic prescribed. The cheaper one gives terrible headaches and the Dilitiazem is about £130 or so pound to get, GPS tend to try the cheaper stuff first.

    • Posted

      Can I comment on this please. I was told by the gp to insert this cream which I'm sure you will agree on impossible as it hurts too much. I saw a rectal surgeon who told me to use small amounts a few times a day and to apply it by massaging around the back passage. It's really helped and is far more effective

    • Edited

      yes the gtn gives me bad headaches and dizziness which on top of pain from fissure dont help lol i might ask for some

    • Edited

      The diltiazem. The other stuff made me had rotten heads. My gp couldn't prescribe it but the consultant did thankfully.

      The biggest help for me has been fibre and water. I'm a bit obsessed with my intake now as I'm so scared of the pain of a hard poo!!!!! 😢😢

    • Posted

      i take 1 senna every night and three to four duclouse a day with as much water as i can stomache admititly im not the biggest fan of drinking water but try my best.

      i will ask consultant on monday for some 爛爛

      i also try to eat a bowl off shreddies for b/fast for fibre

      wish there was a miracle to put an end to this misery

    • Edited

      It's a nightmare. It definitely takes over your life. Good luck 👍

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