Chronic bacterial prostatitis
Posted , 8 users are following.
hi everyone. U can catch bacteria other then typical sexually transmitted through oral sex. The reason why it is not picked up by your GP is because they are doing the wrong test. NHS guidance is also rubbish because is instructing GP to do cheap test first (dip stick test) . It is not accurate enough and only picks up serious UTI . They are looking for UTI symptoms but those are not there yet. Despite the fact that you are having small amounts of bacteria. I'm taking NHS to court over it. GP will not do urine culture test if dip stick test shows nothing. And this is massive mistake. I can bet a house with you that you suffer with chronic bacterial prostatitis. Most likely Enterococcus faecalis or E.coli. The second one is easier to treat. First one much harder. You may have both. Enterococcus over the time destroys kidneys. E.coli may cause sepsis. Do not listen to your GP. They literally know nothing. They will prescribe you cream for rush if you lucky and leave you to die. If you insist for more throughout tests and referral to urologist , GP will mark you in your medical file as a anxiety guy. That will shut down all the doors for ya. Disgraceful but true. First request your medical records. I guarantee you that your urine culture test (if they done one for you ) will state ,, no significant growth ". But your useless GP would tell you that it is all normal/no action needed. Not true. That is only the case if your report states ,, no growth ". No significant growth means that there is a growth (bacteria) but only small quantity which at present doesn't cause UTI (but will do eventually in the future). Your GP should act on it , especially that you have a symptoms. But he will not do anything because he strictly follows NHS guidance without using his brain and is not linking symptoms together to build a bigger picture. That small growth of bacteria will within time multiple and move to your prostate causing acute prostatitis. Then we have up to 3 months to cure it (99% success rate) after that it becomes chronic (about 70% chance to cure it) . Acute prostatitis usually needs 4 weeks of treatment by IV (drip). You may get additional 2 weeks after that with oral medication. Ciprofloxacin is dangerous. It done more damage to my health then the bacteria itself. The longer you are taking it the worst side effects. Some permanent. To have 100% certainty you must do semen culture test followed by Stamey test. In UK its very hard to find urologist who will do it for ya. Good luck all and I hope it will help at least one person by taking right steps before it is too late.
2 likes, 13 replies
thomas78806 michael12274
Edited
ok, so I've had discomfort to severe pain behind my belly button for about 5 years now. Only as of recent have I stumbled upon chronic bacterial prostatitis. I had hemoturia in October of 2017 randomly with pain behind my belly button down to the tip. after which it became worse for years to come. in spells as frequent as multiple times a day sometimes. going back and forth from one doc to the next I had many of tests. which are listed below. my psa is high currently but I just got off 6 weeks of bactrim which made me feel better for the first time till I quit taking it and cibroflaxin for 2 weeks which didn't work as well but did help. both times the problem came back but not as bad as it use to be. havent been to the er in 6 months thank goodness. but the problem isn't gone and the Urologist is just putting my through a kidney stone sonogram next test. I had to strongly suggest testing for prostatitis, and in my mri 4 years ago my prostate was abnormally large with acute prostatitis. I was told to take ibuprofen. to which I'm still trying to solve this problem. any tips on how to proceed?
pain can be shooting, stabbing, burning, stinging or lingering
Sometimes pain shoots to colon/rectal area
Started when peeing blood in Oct 17
-What's been done?
Urethral scope
Colonosopy x2
endoscopy x2
Ct scan
Ct scan with contrast
MRI of prostate contrast
Sonogram of bladder
prostate check, scope and finger
more cts at er than can count
urine tests
-May happens after:
Peeing
Stretching
Ejaculating
Yawning
Coughing
Random
-pain makes it difficult:
to walk
Put on shoes
Exercise
To pee
To stand up straight
To poop sometimes
-bumping or tapping around belly button can be painful or activate a spell
-What helps?
Cbd oil
Drinking
Pressure
Pinching belly button
Time
Maybe ibuprofen
Hunching over
-Cleared by:
Gasterial intestine
Urologist
Primary care provider
Internal medicine specialist
michael12274 thomas78806
Posted
Hi Thomas. I'm sorry to hear about your health problems. High PSA may suggest two things:
I do not know much about prostate cancer apart of the fact that you should check your testosterone level (general lvl and free testosterone) that will help you establish further your chances of having/getting prostate cancer. The higher testosterone the bigger chance of getting prostate cancer. NHS is not doing anything for men in UK towards preventing prostate cancer. They are waiting for you to develop cancer and then they react. sad but true
michael12274 thomas78806
Edited
Regarding your prostatitis... From your list of tests and scans I have not seen anything which was done and is related to prostatitis apart of basic finger thing done by Urologist.
Urine test- especially the general test to check for UTI is useless in terms of prostatitis. Urine have nothing to do with prostate.
It doesn't surprise me that in 5 years nobody have done any semen culture test/Stamey's test/ swab from your urethra. Like I mentioned in my original post GPs and most of urologists alike have no clue how to diagnose it properly. very often for that reason alone the acute prostatitis is missed and it turns into chronic condition.
They are wasting tax payers money by performing some expensive stuff (like MRI) but not doing basic tests to start with. If you have now a build up of kidney stones it is only because of them neglecting you for years. Some bacteria are slowing destroying kidneys. It also could be down to the fact that you have taken loads of different antibiotics for no reason. Two week course will do nothing if bacteria is in your prostate mate. No chance.
In my opinion you must do those test I mentioned above to exclude bacterial prostatitis. Only then you can focus on potential prostate cancer.
I'm flying abroad tomorrow to start my treatment. If I stay in UK I have no chance to cure it and would be left like you and most men to literally die. Do not take Ibuprofenem for too long. In long term it will damage your liver and may give you ulcers and other stomach related problems. It will not cure your prostate
TKM michael12274
Edited
You are correct about testing semen for bacteria type, in the case of chronic prostatitis, especially when the urine has already been tested, and antibiotic selected and used unsuccessfully or only partially successful.
Another thing to look at is Biofilm disruptors. Some bacteria colonies can form a biofilm over them to protect themselves from antibiotics. Biofilm disruptors are available at vitamin/supplement stores that can dissolve biofilms. They usually have enzymes in them like Serrapeptase, Nattokinase, Protease, etc. Search for Biofilm disruptors on the internet or on Amazon.
nesty TKM
Posted
Re Biofilm Disruptors sounds interesting, could you use them alongside Antibiotics?
TKM nesty
Edited
As far as I know you can use biofilm disruptors along with antibiotics, in fact you probably would want to, in order to make the antibiotic more effective.
nesty TKM
Posted
Ok thanks, can't see too many on Amazon
michael12274 TKM
Posted
I agree with you and thank you for mentioning this biofilm disruptors. I read scientific articles about it and not all disruptors work for every bacteria. Certain disruptors only work with particular bacteria types. So it is not that simple. My bacteria/ Enterococcus- so far there is no disruptor which is medically proven to do the job.
Also I will allow myself to disagree slightly. It is never a good idea to prescribe random antibiotics without checking what bacteria we are dealing with. That must be backed up with antibiogram. If your GP or consultant is offering you random antibiotics and is telling you : " Well let's see if that's working " RUN FOR HILLS. Change your doctor
thomas78806 michael12274
Posted
I got locked out of my account until now. been meaning to reply. Hows your treatment going? and I'm about to switch Urologist. mine put me on bactrim for 6 weeks from nov 15th to dec 27th. 84 pills. it worked so well. then started coming back. then cibroflaxin for 2 weeks. didnt work at all. so I asked about the tests.
Seminal fluid culture test
Stameys test 4 glass
Urethal swab
Urine culture test
she declared we didn't have to do those since the bactrim was working and gave me 6 more weeks. checked my kidneys and sent me on my way. doesnt seem to be working as well this time.. still getting pain behind my naval cavity, two times so bad all I could do was lay up and wait for it to pass.. talked to my internal medicine Dr about it who said i could be on antibiotics for up to a year. 🙄 but if I wanted to he could send me to a different Urologist. they seem to think cibroflaxin, and bactrim are the only 2 things they have for prostatitis. though I intend on seeing a new dr I havent yet. this will make 6 doctors ive seen about it thus far. but sheesh. what a pain. 😅
thomas78806 michael12274
Posted
for the record, I'm trying to be detailed so when other people find this forum, it will hopefully help as much as possible 😅
michael12274 thomas78806
Edited
Hi Thomas. this behaviour of your urologist only proves my point. Most of them are useless and do not know what they are talking about. Ciprofloxacin is rubbish because it has loads of bad side effects. For it to work you would have to take it without a break for minimum 6 weeks. Maximum 12 weeks. But it is extremely risky for your general health. Ciprofloxacin is first generation antibiotic which means it is the cheapest one. That is the only reason why your Consultant is trying to convince you that you do not have any other options. Its all about saving money for NHS. Bactrim as far as I know only kills E.coli. It will not help you with Enterococcus because Enterococcus is resistant to it. Perhaps you have been infected with both bacterias at once so you felt better at the beginning because bactrim killed all E.coli in your urinary track. Remind me please what bacteria you are dealing with? What was found in your tests? Are you from UK?
I can't believe that doctors are prescribing random antibiotics without checking what bacteria they dealing with. Nobody is boder to do professional antibiogram neither. Shocking
thomas78806 michael12274
Posted
so I am from shreveport, Louisiana in the United States. we don't exactly have the most intelligent doctors here unfortunately. and although I have pressed for tests to identify the type of bacteria, it was to no avail. the only thing I do know of are the symptoms I experience, and the diagnosis of abnormally large prostate, acute prostatitis, and hemoturia one time. ive since been run through many different meds for potiential conditions. though none of them panned out. and aren't you in the US at the moment?
michael12274 thomas78806
Posted
no Thomas. I live in UK unfortunately. Unfortunately because medical care system here is rubbish.
I do not know what else can I say /advice to you. Without establishing the reason behind your prostate growth I do not understand how anybody could give you correct treatment/ antibiotics. More random drugs you take - more damage to your general health. All medicines have side effects.
U need to sit down and Google as many urologist as possible and give them a call. Before you book appointment you must let them know what sort of tests you are expecting to get. At the end of the day if you pay private you have a right to demand correct procedure/ diagnosis.
Good luck 👍