Chronic Calcific Pancreatitis_Problems and Life Expectancy
Posted , 56 users are following.
Hello,
I have been diagnosed with Chronic Calcific Pancreatitis 6 months ago with epigastric pain, radiating to back and increased postprandially associated with steatorrhoe undoucmented weight loss. CEC Abdomen showed chronic pancreatitis with dilated pancreatic duct and extensive calcification.
I underwent ECRP, ESWL and pancreatic sphincterotomy. Pancreatic stent was placed on January 25. After that I have been suffering from vomiting tendency, pain in pancreas. Also, facing memory loss issues since 6 months.
What could be the reason? Also, what is the life expectancy? My age is 25 years...
7 likes, 60 replies
amanda19038 siteshrajan
Posted
Been 2 months now since ive been hospitalised n told that i have
Pancreatitis! They put me on iv for liquids n morfen for pain. I was in
The hospital for a week only n was sent home with pain meds n thry told me
Me no high fats what so ever n no alcohol! They dont no what type i have or
What caused it my doctor hasnt told me much since! Tgey said im in the
30% rare cases! I have no gallblabber i had it taken out in 2012! A dietrisen
Came n told me what i cant eat n stuff but my question is will i have to be
On this deit for the rest of my life? Will i always have to watch out n worry it
Will come back n be in pain n have to go the hospital I i have a burger or fast food
I day.? Please help im confused with it all
jagroop14 siteshrajan
Posted
peter45020 siteshrajan
Posted
A friend suffers from this condition. I did a literature search found a possible drug treatment to dissolve the stones:
Dissolution of pancreatic stones by oral trimethadione in patients with chronic calcific pancreatitis
Noda et al, Journal of Gastroenterology and Hepacology (1994)
https://www.ncbi.nlm.nih.gov/pubmed/7827299
According to this admittedly small study the medication was well tolerated and achieved a reduction in the size of pancreatic stones and reported complete relief of pain in 73% of patients during the treatment. Trimethadione was used as a medicine for the treatment of petit mal patients. The primary metabolite of trimethadione is dimethadione, a weak acid which is excreted in pancreatic juice in a high concentration.
This study seems to have been forgotten as it only has 13 citations.
Currently trying to find out if it is possible to get this medicine prescribed.
john51813 siteshrajan
Posted
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