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chronic fatigue

Posted , 4 users are following.

nezy
nezy

Hi, im 14 and i have had chronic fatigue for about 9months, and only reasently got diagnosed. My school knows this and have been very suppoertive, but it is getting increasingly worse. I've been very stressed alot because of it aswell. And it has actually gotten to the point i can get to school because of the physical pain it causes me. Does anyone know any tips on how to get through the day...

3 likes, 9 replies

9 Replies

  • Elle1234
    Elle1234 nezy

    Posted

    Gosh I am so sorry to hear you have cfs at the age of fourteen. What kind of pain are you in. Is it muscle ache. I try to bathe in epson salt to ease muscle pain. I hope this helps. 

    Do you take any supplements? 

    Elle. 

    • nezy
      nezy Elle1234

      Posted

      no dont take any suppliments but i am planning to start soon to see if it helps. And thankyou biggrin
  • dragontest
    dragontest nezy

    Posted

    Hi

    This is my personal view so please dont be offended.

    You should be entitled to Home Schooling where tutors come to you and you normally take 3 core subjects as a min. The school and your parents need to ensure you receive the best education in this situation. The school should put things in place for you so you can continue learning, but as good as, they maybe your parents need to drive the situation as your 1 out of nearly I guess a normal high school population of 900 pupils.

    You need to avoid stress and pace your activities thought the day gradually doing just a little bit more and more I’m afraid it’s a long process and you may feel like you will never get any better but you will if you stay positive.

    I fully understand how you may feel as my Daughter developed ME at 13 just after the first of the injections for cervical cancer, by the time she had had the 3rd injection she didn’t return to full time education.

    She has however completed her A levels in sixth form and is now in the local College studying Health and social science for University entry, so it’s not the end of the world you will get through it and there is light at the end as they say. Make sure you keep in touch with at least a couple of your best friends, as the social side of being a teenager is very important. My Daughter would meet her friends for a couple of hours even when she was bed ridden, when she was a little mobile she would meet them in a local coffee house and have cake as a reward for making it there.

    Last week I watched my Daughter play bass guitar on stage in a band, and she works part time at a McDonalds store as well as studying at College she is 19 now and still has “bad days” but she is learning to pace herself the only way she knows and enjoying life as much as she can with ME.  

    I would never allowed her to be negative and give in to CFS/ME you need to be strong also and have a goal or an aim to achieve. As you may have guessed, learning to play the bass guitar was something my Daughter was able to do, as she could pick it up and put it down as and when she felt like it. Music is a good therapy do you play any musical instrument if not I would consider learning to play something if I was you.

    By the way I suffer from ME also and have never made such a good recovery as my daughter, this is has this is partly due to my age when I developed ME/CFS 20 years ago at age 33, developing ME/CFS as a teenager you should make a very good recovery. smile

    • alison44235
      alison44235 dragontest

      Posted

      Oh so there is not hope for me thencry. I am 69 now and developed M.E. over 30 years ago!!!!!!!!!!!!!
    • nezy
      nezy dragontest

      Posted

      your daughter literally sounds like me because i got cfs just after my cervical cancer injection at school and also play the bass, Haha and thankyou for the support
    • nezy
      nezy alison44235

      Posted

      aww im so sorry to hear that. But you will get over most of it just try to stay possitiveconfused

       

    • dragontest
      dragontest alison44235

      Posted

      Hi Alison44235,

      There is always hope... even the government can't take that away from us. smile

       

  • Mim1
    Mim1 nezy

    Posted

    Hi,

    I'm so sorry to hear you are suffering with this difficult condition.

    There are two charities for to help young people with ME and their families. 

    They are:

    AYME - http://www.ayme.org.uk/ and

    TYMES Trust - http://www.tymestrust.org/

    They have some info on their websites and also have a helpline (with TYMES you normally leave a message and someone will call back, with AYME their helpline is manned Mon to Fri 10am to 2pm).

    AYME also have an online forum for its members - it is free membership for those under 26 with ME.  Maybe if you join this you could link up with other teenagers who could offer help?

    I hope you are ok today and this horrible period in your life does pass x

    • nezy
      nezy Mim1

      Posted

      thankyou so much i will go on those sites. confused
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