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Chronic fatigue

Posted , 21 users are following.

Cocochanel2910
Cocochanel2910

I had a massive PE in February, I'm a 66 year old female who was reasonably fit, but now I'm so tired all the time ! Will this go and does anyone else have this problem? Kind regards Linda 

2 likes, 46 replies

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  • mackerrs
    mackerrs Cocochanel2910

    Posted

    Hello,

    like many any here in 49 and had clots on my lung a couple of months ago, suspect autoimmune condition as no dvt identified.  I am shattered, lack energy and like you also came off HRT which I fully agree is the double whammy x. Good to know I'm not alone with the symptoms x

    • Cocochanel2910
      Cocochanel2910 mackerrs

      Posted

      No we aren't alone .. It's a struggle with everyday chores ..I had massive clots in both lungs, it's been a huge blow ! But I'm hoping with time I'll get my energy back, I still have niggly pains in my chest and worry they'll come back ... I don't know if they can when on blood thinners !! 
  • Jimmyb5374
    Jimmyb5374 Cocochanel2910

    Posted

    Hi there I am a 42 year old male in the uk , 3 months ago I was diagnosed with multiple pe across both lungs , and the biggest side effect of rivaroxaban I have had is extreme tiredness , like I can fall asleep at the drop of a hat , pretty much all day every day !! It doesn't bother me if I am working or busy out , but if I am at home it's horrible , just nodding off all the time !!

    Doctors have told me to keep an eye on it , that's about it until I get my 3 month review with specialist

    Regards

    James

    • Cocochanel2910
      Cocochanel2910 Jimmyb5374

      Posted

      Hi James .. It's 5 months since I had a massive PE and I'm still feeling so very tired and still short of breath after a couple of minutes walk ! I'm having an echo scan on Tuesday. I hope they can find out what's going on as I have a leaky heart valve too ... Kind regards Linda 

  • ann55375
    ann55375 Cocochanel2910

    Posted

    Just seen your posting.

    its four years since mine, exactly six weeks after an op.

    warfarin for life now.

    the tiredness is just something i pt up with.  Cant do what i used to, i was 62 and fairly fit.  Finding it difficult to mentally come to terms with life now but make sure i walk every day, even a short distance does help.  Beware Colds and flu as they take longer to work off now.

    would,love to know how others cope, is it possible to get back to normal life?

    • scribbles65120
      scribbles65120 ann55375

      Posted

      HI Ann, I'm as puzzled as everyone else here. Is the extreme tirdness due to the embolism or that we take Sintron_Warferan?' I'm lucky as my students come to my home a few times

      So I'm kept busy if not I'd go crazy with depression and frustration at the lack of care and information from doctors here in Spain. IT's great that we can learn from each other on this site.

    • scribbles65120
      scribbles65120

      Posted

      Hi Estin. I'm 5 months post embolism in both lungs and now that terrible tiredbess has gone and I feel strong again. Keep active and rest in between walks.

      Good luck.

    • estin
      estin scribbles65120

      Posted

      Hi Scribbles,  Thank you for your reply.  It's now about 7 weeks since my saddle PE with multiple PEs throughout both lobes and my EKOS procedure. I'm back at work full time.  Last week I felt better than I do this week, so I'm thinking of requesting being put on 6 hour days and working my way back up to 9 hour days.  Every afternoon between 2 and 3 I can barely function and make stupid mistakes.  I am thinking of looking into the pulmonary therapy that was mentioned some place in this thread.  I'll mention that to my doc when I see him to get the note for restricted hours.  I an so happy you are feeling strong again and hope that by taking one step back for a week or so I'll be there with you soon!  Maybe if my hours get approved I'll use the time at home to grab a quick nap then take my dog for a walk to help build up my stamina.  Do you think that would help?

  • estin
    estin Cocochanel2910

    Posted

    Hi. I am so glad I found this site.  On March 8th I had an EKOS procedure done for a saddle pulmonary embolism with several other clots located in both lungs.  I was in ICU for three days and released from the hospital after one more day.  The hospital doctors said I could resume a normal schedule right away.  The following week I went back to work as a secretary and put in a fun 9 hour day.  Then I went home and slept about 18 hours straight and went to my personal physician who wrote me a note to be off work until April 16!  I am 59 years old and considered myself to be reasonably active.  Now I have such low energy I can't make it through a day at home, doing nothing, without a nap!  Is there anyone out there with similar issues who'd also like to share and "talk" to?  I'm aware of nearly every breath and chest twinge, etc.  My dr. says to give myself a break because I almost died.  But if I sit around all day, I'm setting myself up for more clots, right?  This is making me a little crazy?  Anyone else feel like this???

  • lakiedra57907
    lakiedra57907 Cocochanel2910

    Posted

    I went to the ER on March 22nd and they discovered I had mutiple blood clots in both my lungs. I've been placed on blood thinners and was doing well the first week. But now I feel, like everyone else, tired all the time. I'm only 41 yrs old and not used to needing a nap. Like a few of you, I'm fine while I'm working, but as soon as I sit down to kick back, I can get extremely tired and can't keep my eyes open. I'm glad I found this blog, I thought I was going insane.

  • lakiedra57907
    lakiedra57907 Cocochanel2910

    Posted

    It's been 1 month since I was diagnosed with PE. I completely overhauled my diet, no sugar, no red meat, no pork, no dairy, and no processed and fried food. I'm beginning to feel much better. Not tired all the time anymore. No longer depressed. I think my body is healing nicely.

    I travel for work occasionally, so I'm stressed out about the possibility of flying from coast to coast. Has anyone flown post PE? I'm sure someone has, but I would like to know your experience.

    Thank you.

    • lakiedra57907
      lakiedra57907

      Posted

      One thing I should've added in my previous post: I used to get a lot of periodic chest cramps/pains similar to what sent me to the ER. Those are now more and more less frequent.

  • TGrove
    TGrove Cocochanel2910

    Posted

    What blood thinner are you on? Both Xarelto and Eliquis caused me awful fatigue
    • lakiedra57907
      lakiedra57907 TGrove

      Posted

      I'm taking Pradaxa. Maybe it just depends on how our bodies respond to healing. I wouldn't think that the meds have anything to do with it.

      Have you tried walking as exercise? That's would I began doing a week afterward. Nothing aggressive, just leisurely walks. I also changed my eating and went to a very clean eating pattern.

      Sorry that you are still are suffering. Hope it gets better.

    • cathy428
      cathy428 TGrove

      Posted

      I was put on Eliquis in March of this year.  I found I was getting really tired during the day even with little exercise.  I have managed to do more gradually, twice last week I did over 3 miles walking, and thankfully not too tired afterwards.  I try and walk whenever I can, and can manage to iron without having to have a break after 6 items, so a big improvement.  I still get chest pains but try not to worry as it apparently is normal according to GP and Haematologist.  Am seeing Chest Consultant again in August but have been discharged from Haematologist and no more blood tests like I was on Warfarin.  On it for life as it was my 4th clot (twice in lungs), this time it may not have come from a DVT!  I still am susceptible to chest infections (I get chronic bronchitis), had one a week after the clots were diagnosed, lasted a month, so a nasty time March to April.  I was advised that my energy levels would not recover for about 3 months, even though the clots were found relatively earlier than last time.  
    • cathy428
      cathy428

      Posted

      Further to my post I have had more blood tests and found to be deficient in Folic Acid!  Needs to be 5-10 mine is 1.5.  Going on another medication for 3 months then another blood test.  Apparently this deficiency depletes energy levels. I cannot tolerate many fruits and vegetables, so am going to check what else I can add to my already limited diet.  
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