Chronic Fatigue . Does anyone else get the shakes?
Posted , 11 users are following.
Ive been struggling with this cfs for a few years now.Nothing really helps.
Have some good days.
But when i have it bad, its twice as worse somehow... Having the flu, every time guaranteed to floor me. I also some how always catch colds, bugs and feel it cold almost all the time. My immune system and circulation according to the docs, are fine.Slight Vitamin D and B12 drop but apparently shouldnt make a difference.
Everything is twice the effort, i have a balanced diet, not going to lie, some days i have a cheeky ciggie and maybe once a week a handful of drinks. I treat myself once every so often to a takeaway.
But i walk quiet alot, i eat quiet well and at decent times, i try to get involved with as much physical activities as i can, including work.
I make sure i take time to relax and sit, just do nothing and breathe. Also take several 5 10 min shots on the exercise balls, even if its just a wee stretch or bounce to the beat of a song.
Most of the time i feel drained, get out of breathe easily, feel sick, congested, tired, and cold. I feel my muscles twinch and my heart pumping. My ripcage feels restricted and my bones ache. I feel forgetful, disorientated and hazy. Headaches causing blurryness and a few times blind. Ive felt so congested the only relife is a nose bleed. I struggle with earing, things sound in a bubble, its like they need to be popped. I struggle to talk properly, i stutter or jumble my words. its like having hayfever on top of a flu at the tail end of fever just after a zumba night.
The exhaustion, physical, emotionally, mentally is extremely hard to describe.
One thing that sticks out in all my experiences is these random shakes, they last between 5mins and a hour. Its similar to shivvers, but its not cause ots cold or goosebump shivvers. Your whole body just vibrates, they happen at any time. Mostly when im standing or sitting still. And it doesnt help the achy bones. Moving around doesnt settle them. They just run theyre course.
This is bizarre to me. Im i they only one that gets these shakes?
It doesnt make any sense, bot that any of it really makes much sense to be fair.
I assumed my conditions co insided. But theyre are no patterns or reactors i can see to cause this much.
Can slight vid d and b12 levels really affect all this?
When i diagonised it was just after i started getting stomach problems, like inflammation and dyspepsia. So i have to watch what i eat, its like my stomach is struggling to digest.
I felt this presurred the rest of system to work harder, causing alot of kidney/gallstones, the dyspepsia, over producing acid and heartburn, stomach cramps and general discomfort in stomach and surrounding area.
With that i concluded that my fatique was diet and way of life. So i tried many different ways of eating, exercises, sleeping, working. I changed my living situation, social life, most of my bad habbits and tried several medication, both prescribed and not.
I even tried de-stress techniques like aromatherapy, yoga and pilates. I tried cognitive therapy and positive behaviour methods.
Over the years ive tried alot of things, some take the edge off, some maybe have helped some symptons.
I feel as if i am back to point one and am lost.
I had a back to back flu and fever. 3 weeks later atill recovering.
I love good days, the rare days that you feel yourself. Those days you could do a 8 hour shift crafting and you still have energy to run about mad. When feeling like you got 8 hour sleep, pampered, massaged and painted gold. Feeling so refreshed and painfree.
1 like, 31 replies
bronwyn97278 L1990
Posted
L1990 bronwyn97278
Posted
Rheumatogy could be a good call too.
My gran and mother both have forms of artheritis and osteo. At times i have felt as im going the same way.
I dont know if i have been teated for giant cell arteries, will be finding out pronto tho!.
I am not allowed valium as i have an addictive nature and again both gran and mother have had addictions to them.
I thought at times becasue my father had epilepsy that its formed to a slight form causing these migrains as the doc call them. Epilepsy its self was ruled out, along with anemia and pnomenia...
Thank you. All youve said. Hopefully one could get me somewhere.
Bloods today so well see the next step after results!!
Ty Bron x
katrinablank L1990
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L1990 katrinablank
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I dread the winter. Its torture time for people with these conditions. Alot of people dont understand. Coming on here really makes you see that tounare defos not alone.
abot24558 katrinablank
Posted
I do get the tremors sometimes, but nothing like Thurs. on the tracks in Los Angelos.
nichola99319 L1990
Posted
i am always freezing too, never warm even abroad on holiday at night time I was so cold, I just wondered is this a symptom of cfs
i too have to be careful with fruit n veg, my stomach feels tight and bloated and I do get sickly feeling during flare up and very thirsty too, not sure if this happens to anyone else.
L1990 nichola99319
Posted
Weird at times, ive fasted for a few days, mostly not out of choice lol, and i felt relief for a while before my systems eats itself. I have a day thats just bliss. Iits a holiday all on its on.
I often though the cold shakes or chills are like theres a blockage somewhere and the body has somekind of freekout. I thought circulation but been ruled out.
But as the same as yourself probably most times you fo.to the doctors your problem has calmed down or 'manageble' as they put it.
lynne69494 L1990
Posted
Also get sore stinging eyes often blurry with it, hearing poor as if jumbled, tinnitus with it and achey some times, but do have allergic rhinitus long standing, allergy probs generally, few skin probs, touch of psoraisis, eczma, gagging thirst if l dont drink every 30min, breathlessness on moderate exertion, but do have chest probs also, such a list,lol, not that l,m greedy, but can add bit of gastritus which caused nausea bloating acid reflux for a long time, got scope and omprazole for that, also changed my diet, small plain fresh food meals, probiotics, got that fairly settled now.though become more of a chocaholic, Feel cold easily, on waking from a nap,. but flushed at other times, with neck gland bit swollen, l dare hardly lean back on the sofa as can drop off to sleep without hardly being aware till l wake and see the time then feel chilled and horrible and dread winter, Also the vagueness and jumbling of words at times, l try to laugh off the slurred gobbledy gook on talking to people on worst days.
l cant say lve days of good energy, but have ok days with moderate energy and moderate pain, so on these days try to catch up on jobs in the home garden pet care, l live alone so mainly rely of myself, and feels good to achieve something posative in jobs, and ability to do it, but usual after affects following day or two, knackered, in pain and achy from waking,takes hour or two to function tidy up, usually get about 4hrs sleep, need to go to loo couple of times then nagging pain so cant sleep longer, lve had intersticial cystitus for many years which accounts for some of symptoms, but not all, many have started in last year or two, plus l feel so different in a way l cant explain, l know lve managed to explain a lot, but its more of a different feeling, maybe mental affects, although very restricting, l,m glad l can get up, knowing some cant, and l can keep home and pets going along.with delivery services from supermarkets for heavy items a big help. l do get out and about as much as l can, will power at times, and glad theyve trolleys to lean on in supermarkets. l,m trying to train myself to use days of moderate energy for social stuff rather than household garden upkeep and just letting that slide a bit, as socialising talking is also important mentally, it would be easy to become housebound and depressed with it, so ongoing battle to overcome. But l still dont know if its cfs, also read mbs on here about fibromyalgia, sjorgens, quite a lot of women with i.c, also get these conditions, all immune related symptoms and conditions.
When l mentioned cfs to gp she said oh you cant get out of bed with that, end of, but due to go back and pursue further,also due to see physio with pain probs, he at least seems to have an open mind to it being either cfs, fibromyalgia or sjorgens, other. But reading your symptoms sounded like so many of mine, makes me feel a bit less odd, best wishes
Beverley_01 lynne69494
Posted
Just wanted to say that you may need to change that doctor! Even if only for this one issue? Support is the key here. I feel we with the condition need to feel supported. I spoke to a stranger on the telephone today whose wife has cfs/fibro and it really helped them to have a doctor who has taken further training in the subject. Wouldn't it be great if we all had understanding doctors?
I asked mine if I may be suffering from cfs/me and they were happy to explore that with blood tests etc and a referral to the cfs/me clinic. Hope your doctor can do the same.
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lynne69494 Beverley_01
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L1990 lynne69494
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I do also have a touch of psorisis and have had two dermatitis breakouts.
You seem to being going through alot more than i am.
You mentioned pets? Id never say to give them up but maybe a hayfever tablet may ease the rhinitus. Even tho u may have not actually have allergy to pet hair, with cfs ive always found the system weak and changes.
Ive found some foods,drinks, toiletries, materials, and medications that i was fine with before that now give me grief.
Its a crazy mixed up, messed up situation and is defis not straight forward
Beverley_01 lynne69494
Posted
Definitely know that feeling! I've not been good today. Had a meeting with solicitor on Monday and still suffering from that.
Hope you get a positive response with doctor. Its so hard sometimes isn't it?
Rest well.
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lynne69494 L1990
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lynne69494 Beverley_01
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Beverley_01 lynne69494
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