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Chronic fatigue/ME

Posted , 6 users are following.

pat62
pat62

I am starting to regain some energy, and am trying to do more (with caution)  but stil seem to end up overdoing it and and ending up with fatigue that not only prevents me from doing things but makes me very muddleheaded.

Being able to take some exercise has lowered my high blood pressure, so I am trying to find a balance of enough exercise to keep the blood pressure low and not too much so as to end up fatigued again.  Any helpful suggestions out there?

1 like, 23 replies

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  • jeanp
    jeanp pat62

    Posted

    Hi Pat,

    Your idea of a mobile alarm is a good one. It is so hard to stop doing stuff when you actually feel alright. If only we had energy level guages on our arms so we could check them out and stop when they need refilling! Am suffering today just because I did 20 minutes instead of 10 on the exercise bike, and neglected to lie down and do nothing for a couple of hours in the afternoon. Silly me! I am still learning though, only had this since January. So I will be looking out for any advice given by others in answer to your query.

    Take care, rest up and keep your blood pressure low!

     

    • pat62
      pat62 jeanp

      Posted

      I know what I should do, but forget when I want to get something done or do something.   I have had CF since Feb 2012,  but it was not until May that I gave in (when I look back, I think I must have been crazy to try and fight through such awful fatigue)  When I stopped my body crashed completely.  even having a shower was too much and left me feeling very wobbly.    So don't do as I did,  it is so tempting to believe you can do because of wanting to so much. I have started to feel better in these last six months, and I have learned to listen to the body more, and recognise the signs of depleting energy before it hits me in the face.

      Advice about pacing from Sally is good,  and Toby Morrison worth listening to.  

    • jeanp
      jeanp pat62

      Posted

      Thanks Pat, you give good advice. I am glad you are beginning to feel better, it is so encouraging to hear of others getting well.
    • pat62
      pat62 jeanp

      Posted

      I should change "don't do what I did" to "don't do what I do. 

      I gave into the temptation to cut "a little bit" of hedge. I'm now left with a body that is screaming at me that I have overdone it and the frustration of a half cut hedge that I am desperate to finish.     It's like having a split personality.   Oh well, this is the first  major whoops in quite a while.  

  • Fidd
    Fidd pat62

    Posted

    "As the OT says if you pace you will get back to 80 percent of what u were before."

    I'm not aware of any evidence that supports this claim. Unfortunately, a lot of the people making money from CBT and GET have shown themselves to be rather untrustworthy, and can end up really misleading patients. Best of luck with whatever helps, but I'd be really interested to know how they justify making a claim like that.

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