Chronic Fatigue or Fibromyalgia

Posted , 8 users are following.

Hi I hope to gain some advice.. Like many of you I have now been unwell for the past 12 mths, fatigue, muscle pain, stiffness, if people touch me on my back or arms it hurts.I have confusion, difficulty concerntrating and sometime i say the wrong words. I have had all the blood test that have come back clear. The Dr's have put it down to Chronics Fatigue Syndrome but the more I read up on Fibromyalgia the more i am convinced this is what i have. I think daily pain is making me fatigued, i'm not sleeping well and when i turn over in bed i can hardly move myself. I'm back again at the drs this week to discuss my thoughts. I dont know if anyone else has experienced the frustration of getting a diognosis - i feel like i have had to investiage my illness. Does this sound more like Fibromyalgia??

many Thanks

caroline

2 likes, 9 replies

9 Replies

  • Posted

    Poor you, your symptoms certainly follow a pattern that fits dependant upon your age it's possible hormones may be playing a part too peri menopause I discovered HRT helped me greatly. Whilst this may not be applicable in your case it's also worth considering . At the very least you need to seek professional assistance it's difficult feeling your coping with all the problems pain and discomfort . Hope you find some help and comfort , x
  • Posted

    Hi Caroline

    It does sound like Fibro, I have all the same symptoms you have mentioned and have been suffering for over 20 yrs and only got diagnosed Aug 2014. I am 45yrs of age and have also been tested if I'm going through the menopause change but have been told not yet menopausal. Hot night sweats daily and feeling hot all the time all year round. Haven't had a good night sleep in over 20yrs. Pains are mostly now in my hands and only slightly in back, shoulders and neck.  I am at the moment taking herbal ayruvedic herbal meds. Such a slow process but will be reporting back as soon as I have some news to share.

    Hope you get further advice form the wonderful people on this forum with their own experiences.

    Gentle hugs wink x

  • Posted

    Most of us have many other autoimmune issues as well...especially  Chronic Fatigue..really hope things improve for you soon, reall feel fir you...there's nithing worse when it's rampant ...be blessed Caroline..have a lovely week:-) xx
  • Posted

    Hi Caroline02087 It does sound like fibro, but for a definite diagnoses your gp, needs to refer you to see a rheumatologist they are the ones that normally diagnose fibro. It took 10 years and many many many tests to finally get a diagnoses.and that was after all tests came back negative and other conditions were ruled out. Frustration yes very much so. I was relieved when I finally got a diagnoses. As I thought I was going mad. But not happy I have fibro and all that it brings with it. Take care and keep pressing till you get answears and a diagnoses
  • Posted

    I had never even heard of Fibro, I was on the PC daily looking for what my illness might be and then asking what my Dr thought, don't get me wrong my Doc is sh*t hot but it took me 2 years to get and CT scan which found a fare bit of arthouritus in right hip, so that explained why it felt that my femur was going to rip through my groin. Well on year 5 still not knowing what I suffering from, a new Dr started and it was her, not my Dr who filled in my sick note and on the part were it ask's what is my illness, she had written FIBROMYALGIA. WTF is that I asked the wife. Took me 20 minutes to read up on something that took me 5 years to name, everything in that article was what I had been telling my Dr, I was even blest with servia Restless Leg Syndrome, even in my arm's and thats another sweetheart of an illness, but I would gladly suffer all the pain and even RLS just to have energy, it's not lack of energy it's total body exhaustion. I did body building for 20yrs and even the hardest session wouldn't have left me this drained, feel's like i'v swum the English channel, underwater.
    • Posted

      Certainly understand that exhaustion...  If I have managed to have a good 5hrs sleep then as usual maybe got up and then back again for another hr or 2, I still wake up as drained and exhausted as the previous 5 + 1 or 2 hrs previous sleep..  dam frustrating when every morning replicates the previous with hardly a reprieve or remission from it...  So I do sympathisize....  I have a full on Restless spine and it affects all my limbs...  It's in the bones and muscles...  I can actually say I 'Hate it'...  and it's a word I loathe to use ever...   Take care Trev..
  • Posted

    Morning Caroline;  I do feel that your symptoms come under the heading of Fibro; however, as I keep reading a lot of the new research that is becoming available, I am finding that they are giving us more "definitive" classifications.   The last report that I read from the USA is that CFS, ME and Fibro do have some distinctive variations.....CFS is just chronic Tiredness, that affects us in our daily lives, and we notcie the increased affects from this.  ME is now definiately a Viral Infection that affects the Brain Stem, causing CNS disfunctions, and Fibro is "the increased Pain Sensitivity", which to me feels that Fibro is an after/ongoing result to ME????  I do need to follow through on all of what I have been reading.......but when you go to your dr/GP, I still believe that the treatment/s will be the same.......and as to the "Frustration", yes, we ALL have had that experience.......but, now that more research, and knowledge gained by the professionals, we are all hoping that new patients don't have to wait 20 years for a diagnosis......as in the last WA (sorry Australia)  report that I read There is A Definitive Score test (and not just the Pain Points), that the USA/CANADIAN Research Team, have formulated, that should make a diagnosis easier............good luck............Bron
  • Posted

    Yes it does follow along the lines of Fibro..  Take care and I hope you get your diagnostic sorted..  At least then you can try methods of handling your situation on the daily basis like the rest of us.  All the very best.

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