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Chronic Fatigue Syndrome - Anyone with similar symptoms?? Please Help

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sfend
sfend

I am a 22 year-old who was in good shape and had a good job.

All of a sudden after a workout, I was unable to function normally: I couldn’t stand while brushing my teeth, had difficulty going up and down stairs, used a wheelchair to go to doctors’ appointments, and couldn’t talk on the phone without being extremely fatigued afterwards. I also could not go to work.

I have palpitations, extreme fatigue after mental/physical exertion where I am really bad for the next 2-3 days, and sensitivity to touch/light/sound. When I am particularly fatigued, I have unusual and severe muscle pain. The condition has lasted for 3 months so far and I don’t have brain fog.

I have had extensive medical testing and everything has come back negative. The doctors said I likely had CFS despite being male, relatively young, and not having been triggered by a virus.

I also have a weird association with food. I need to eat protein/carbs every 2 hours to avoid feeling very ill.

I have 2 questions:

1)Are there people out there who have had very similar symptoms as me, specifically, the need to eat frequently?

2)For people who have had similar symptoms, what did you do that led to you getting better? How long did/has it last(ed)? Any advice would be really helpful.

Thanks!

0 likes, 6 replies

6 Replies

  • littleme1969
    littleme1969 sfend

    Posted

    FIrst off i would say that it does not have to be triggered by a viral infection. Mine was triggered by almost dying when i had my son 20 years ago. No doubt the drugs they pupmed into my body to keep me alive where the main cause. It can be trigered by putting too much stress on your body.. both emotional and phisical. Also age and sex dont come into it.. children have it also and there are alot of men with it, though not as many as women.

    I wouldnt wante your money on any *Miracle* cures.. there are non despite what you read online etc.  Some people will have one boubt and recober within 6 - 12 months and are only affected in small relapses througtout there life.. others never get better. There is no guidelines to go buy wit this condition its different from person to person.  Cahanges in diet and suppliments can help a little.. but the best thing you can do for your self is learn!!  and never give up on your self.. i know alot of people with this condition who still live happy and meaningful lives.. but they do it by accepetance  smile

    • david59662
      david59662 littleme1969

      Posted

      Yes, STRESS is a huge factor, possibly THE real cause. I know i was extremely stressed, physically, mentally and emotionally before my PVF for at least 2 years. I'm still optimistic i can recover to lead a normal life, but at the moment, fantasy.
  • sfend
    sfend

    Posted

    Yeah, I think it's more of a sudden stress on the body like new work out plan, new stress something. 

    I wasn't stressed or anything when it happened, it was just a sudden and new taxing work out regimen.

    Thanks for the feedback so far. I also am hoping to get a 100% recovery, and have noticed some improvements so far, but it's no where near what I'm looking for.

  • jackie00198
    jackie00198 sfend

    Posted

    I have had pretty much your exact symptoms. I have CFS, and it sounds like you have it, too. Yes, absolutely, in the beginning I had to eat protein regularly or felt sick. Eating protein every 2 hours is a good thing and can help with illness.Try not to eat sweets, chocolate, coffee, or heavy stuff like pasta. A rotation diet is often recommended, where you don't eat the same food four days in a row. If you keep having periods of rapid heartbeat, you can go on a beta blocker (as I think they're called), like lopressor. I take 25 mg twice a day. If you do have CFS, all medical tests will come back negative. There are currently no markers for the illness. I was diagnosed after all my tests came back negative, and a specialist asked me a series of questions. The most important thing is to pace yourself and get plenty of rest. Do not attempt to push against the feelings of fatigue. That just makes matters worse. Many people spontaneously recover from CFS without doing anything.
    • sfend
      sfend jackie00198

      Posted

      I have periods of rapid heartbeat too! And also have been avoiding sweets and coffee. Sounds so similar.

      Interesting, good to hear that people spontaneously recover. 

      How long have you had it for and how's the progress been?

       

    • jackie00198
      jackie00198 sfend

      Posted

      I've had it for quite a while, but I'm also quite a bit older than you, and pushed myself when I should have rested. Try to maintain a good attitude. Do whatever it takes to minimize stress and depression. If you eat healthfully, get plent of rest, pace yourself, and maintain a positive attitude, you'll optimize you chance of getting better.
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