Chronic fatigue syndrome diagnosis

i have been ill on and off now since I was 25 am now 37. I was always very active, but every few weeks I would get ill and felt run down. My GP fobbed me off, and I just put up with it. In the last 2 years it has got worse. I literally get ill every 2/3 weeks I feel fatigued, sore throat, headache, can get myalgia pains, spaced out, freezing, weak and shaky, sometimes feel sickly. Sleep does not help. I also have episode of crashing . This Saturday I woke up after doing yoga the day before and could not do anything, I was floored.

i have had every test under the sun, and I am currently under rheumatology as my bloods for immune system were low. I have chronic neck and hip pain. My recent blood for ebv were positive indicating some virus in the past.

i manage to work full time and I have 2 children, although I have been sent home on numerous occasions as I am not well. The doctors wonder if I have CFS.

i do struggle to concentrate and think clearly when am like this, I also have poor memory.

feeling fatigued can last anything from a days to weeks, especially if I have over exerted myself . If I go out for days out with kids, I am floored on way home and have to go bed. I can't drink alcohol nowadays too, and nights out resort in me having to leave early or go bed even when am feeling well them days.

the only thing is, when I am well I can do normal things, I have been great for 4 weeks recently and done yoga 2x week, walked dog for half an hour, gone horse riding once in the week. But then boom I wake up and am floored. This can happen every few weeks where am great for weeks, then fatigued for weeks

does anyone else have similar experiences

thanks for any advice.

2 likes, 50 replies