Chronic Headache for 4 months, 24/7 - Desperate

Hi, I also have had a persistent headache since February. I was very shocked when reading your amount of drugs and tests you've had in 4 months. I have had a MRI which was clear and told that's as far as they will go for testing me on behalf of a persistent headache. So you've had a brilliant treatment plan, so firstly you should feel happy that everything is normal but then you still have the pain which is the most annoying part! Your pain sounds similar to mine and for the first months of this, I was emotionally and physically drained, it was all I thought about. In 4 months you've had a lot of medications which many of them need to be taken for long periods of time to see an impact. I currently have gave up on tablets prescribed by the doctor as they do not help me. The best thing honestly I have found is to try get on with life and put it to the back of your mind. When I stress about it and get worried or upset it can increase to a 8/10 pain very quickly. Massage could be great for you if it's stress related, have you had an eye test? My boyfriend knows someone to takes riboflavin b2 vitamin and it can be very beneficial to chronic headaches which I am going to try! I'm sorry I could not be more helpful, but your not alone! And it seems you have great healthcare , good luck and I hope your better soon!

To me it seems you have Trigeminus Neuralgia or Clusterheadache.

Does it hurt to touch/brusch the side of your head?

Do you get triggered after drinking something very cold (icecream) or hot (like tea)?

Does your nose run 'water' once in a while?

Know that all those medicine you got can also cause headaches....

Hi dear.

I too have a same problem. None of the doctors or the nerologysts that I went to could tell me what I am dealing with.

But at least you had an normal brain MRI but mine was not. They found several tiny white spots on both of my frontol lobs which didn't concern them at all. Six nerologysts told me that I do not have MS or anything else. But the pain that I am dealing with oys not also beacuse of the spots.

However I've been suffering from left side pain for years. The worse part is when the pain shoots up to the left side of my face. It goes up to the left eye and makes it fevers, watery and burning. My eyebrow and my whole forehead gets painful as well.

Here is my story too.

I am counfused over this pain. It's been years that I am suffering from this stiffness. At first it began from the back of my left shoulder then it reached the left side of my neck then upper left side of my jaw got little swollen then inside of left ear got painful then it reached my left eye and left upper side of my skual.

Recently when I try to swallow my food I feel pain inside of my throth specially in the left side. Also the eye pain got worse with this stiffness beacuse when I lie on the left side I can see the black shadow in the left eye that goes away slowly when I sit up.

This pain and stiffness doesn't stop there it radiate to my left arm, left hand, left breast, left leg and all the way down to my left foot. Sometimes my left foot gets so much painful that I should massage it with the ball hoping to reales the pain. When this pain radiates to the left side of my scalp it makes it very sensitive to touch and the only thing that I do is to pull and hold some of my hair to reslase the pain.

I am constantly massaging my left side from up to down. The peack and head part gets more massage. I really don't know what I am suffering from I just know that when I get stressed out this pain gets worse.for this reason I did many blood works to see if I have any inflammation, immune system problem, Ciliac or lupes and all came back fine thank god. Doctors don't know what's wrong and look at me puzzeled. I am afraied that it might be life threatening condition beacuse of the involvement of the beach, head and eye. I keep thinking that what if it's blocking my blood flow to my eye and that is why I see the black shadow or it stops the blood flow to the left part of my head. I am so confused. Please let me know if anyone of you have suffered the same problem and if yes what did the dr say. by the way, I am 38 years old.

Do you get dizziness with your headaches too?

Hi dear, I'm sorry to say I am where you are and have been for 6 years. My good day is an 8. I live on Dilaudid. We are working on determining what pain med to use in an implanted pain pump. I do suggest you try botox and getting your daiths pierced in your ears. I know at this point you will try anything. I have. They will likely help for awhile. For me it was months. God bless and I'll pray for you.

Hi, I know this post is 7 months old, just wondering how you got on and did you get a diagnosis, my sister is suffering the same symptoms and we are completely at a loss as to what to do

I would suggest that everyone here look into have a possible sporadic CSF leak. Especially if the symptoms ease up when you lie down.

I had two months of persistent tension headaches including migraine like symptoms, tried chiro, painkillers, and diet changes to no avail. Turns out it was caused by strain and shortening of the muscles at the base of my skull, likely from stress and sitting at a desk. Took two tennis balls, put them in a sock, and rolled out the muscles at the base of the skull/neck and completely relieved it. Worth a shot.

I have the same symptoms and my headaches have gone on for 4months now. 

I know it’s been a few years now but what was the result of your headache pain?