Chronic Hyperventilation Syndrome / Hyperventilation / Air Hunger / Dypsnea

Posted , 3 users are following.

Hi my name is Austin. 27 year old male

After suffering with unknown dypsnea since october 13 2017 i finally went to the Mayo Clinic in Rodchester MN. Their is hope for those suffering. I woke up on the daily breathing as if i had just run a marathon feeling as if i could only get a quarter or half breath. When i would get a full breath it was such a fleeting feeling of happiness because i knew it would only buy me a couple seconds of peace. Laying down, Standing up, Sitting with my loved ones, walking from couch to bed. I was sure at any moment i was going to die. To be honest most morning i hoped i didnt wake up because waking up meant another day of this nightmare. I had two chest cat angiograms both with radio dye one of lungs one of heart, a full angiogram MRI/MRA with gallium of my brain. A workup at the best hospital in the world. 2 cardio stress tests/ two echocardiograms/ pulmonary stress test/ pulmonary function test aka phone booth/5 different standard asthma tests. 8 visits to the ER 20 plus doctors visits, Albuterol/Levabuterol/Xanax/Ativan/Valium/Zoloft/Lexapro/Symbicort/Spiriva/Advair/ and the amount of natural things i tried are almost 3 dressor drawers full. the only i mean only thing that works for brains like ours who become aware of our breathing process and helps to fix it is amitriptyline. . Please don't let doctors try to talk you into the f*****g unbeleivable amount of things that was tried on me as some of the withdrawals are horrific especially benzos. If they need a reference please just let them read the article. And to anyone going through this if your scared your not alone. Im sorry this happened to you as well and i hope it slowly fades as mine has i hope my research helps even one person to shorten the time they feel so terribly. I was on 30mg of Amitriptyline for over 6 months and now ive tapered off 2.5mg at a time still have a while till im totally off. just take it slow to feel better amitriptyline is hard to get used to the first 6 weeks and any dosage increase i went from 10-20-30 is difficult but omg the first couple days where you find you don't have the issue make any pain worth it. Please i know what thoughts this disorder causes people to think i was there. Just understand there is light at the end of the tunnel.


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  • Posted

    joined just to respond to your thread. i don't know if you still follow, but at your suggestion i just convinced my Dr to give me a prescription. I am optimistic based on your post. i have lived with CHVS for a decade and like you have had dozens of tests and tried every MEDICATION you listed. if this works, you will have saved my life. only those who have lived with this disease can understand how awful it is living with this day in/out. hope you're still feeling great. BEST, GADGUY

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    • Posted

      just finally tapered off amitriptyline finally two weeks ago and am back to feeling like myself. i pray to god it helps you too. i cant imagine going through it for so long. and yes i was right where you were please dont give up brother their is light at the end of this tunnel. ill respond to your messages on here.

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