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Hi my name is Austin. 27 year old male
After suffering with unknown dypsnea since october 13 2017 i finally went to the Mayo Clinic in Rodchester MN. Their is hope for those suffering. I woke up on the daily breathing as if i had just run a marathon feeling as if i could only get a quarter or half breath. When i would get a full breath it was such a fleeting feeling of happiness because i knew it would only buy me a couple seconds of peace. Laying down, Standing up, Sitting with my loved ones, walking from couch to bed. I was sure at any moment i was going to die. To be honest most morning i hoped i didnt wake up because waking up meant another day of this nightmare. I had two chest cat angiograms both with radio dye one of lungs one of heart, a full angiogram MRI/MRA with gallium of my brain. A workup at the best hospital in the world. 2 cardio stress tests/ two echocardiograms/ pulmonary stress test/ pulmonary function test aka phone booth/5 different standard asthma tests. 8 visits to the ER 20 plus doctors visits, Albuterol/Levabuterol/Xanax/Ativan/Valium/Zoloft/Lexapro/Symbicort/Spiriva/Advair/ and the amount of natural things i tried are almost 3 dressor drawers full. the only i mean only thing that works for brains like ours who become aware of our breathing process and helps to fix it is amitriptyline. https://www.oatext.com/The-beneficial-effects-of-oral-amitriptyline-in-anxiety-induced-hyperventilation-syndrome-a-case-series.php . Please don't let doctors try to talk you into the f*****g unbeleivable amount of things that was tried on me as some of the withdrawals are horrific especially benzos. If they need a reference please just let them read the article. And to anyone going through this if your scared your not alone. Im sorry this happened to you as well and i hope it slowly fades as mine has i hope my research helps even one person to shorten the time they feel so terribly. I was on 30mg of Amitriptyline for over 6 months and now ive tapered off 2.5mg at a time still have a while till im totally off. just take it slow to feel better amitriptyline is hard to get used to the first 6 weeks and any dosage increase i went from 10-20-30 is difficult but omg the first couple days where you find you don't have the issue make any pain worth it. Please i know what thoughts this disorder causes people to think i was there. Just understand there is light at the end of the tunnel.
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