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Today like every day is just exsisting. Tired of feeling ill all the time. tired of the pain or the extreme fatigue. the not being able to stay awake or shower when need to. the ongoing payback for daring to have one day of normality to then pay for it over 2 weeks.
the constent feeling of malaise, not being able to eat without issues to my bowel, frequent infections, headaches, pain in my body, not being able to stay awake to function. the isolation as body clock screwed not being able to plan. the feeling of being worthless, burden nobody cares ,listens. Gps not intrested. no support.
not able to leave bed, leave house .
everyday is just a fight. Tired of it.
am 48 but might as well be 98 .
nobody understands, nobody believes the intensity and complexity of my illness what's the point.
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