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My son has chronic laryngospasms and his ENT says there is nothing he can do to prevent them from happening all the time. He has them almost everyday mostly while he he sleeping. There has to be something that can be done or someone else out there that has had them chronically as well.
0 likes, 4 replies
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AlanJM Santana825
Edited
I am sorry to hear about your son's problem. Spasms can be very difficult to combat.
Firstly though one needs to establish that it is indeed spasms that he is suffering from as distinct from some other type of chest pain. If he is having them only at night I am wondering whether they are caused by reflux that creeps up into his oesophagus whilst he is lying down? This is non-qualified speculation of course. So I would suggest having Gaviscon Advance at night. You can get it over the counter and it works differently from other anti-reflux medication because it is an alginate - it creates a protective raft to look after the lining of the oesophagus.
If this makes a significant difference, it would be worth mentioning this to the doctor.
I think there are gastroenterologists who are familiar with spasms and there ought to be specialists who would be able to help. There is sometimes a cross over between gastroenterology and ENT specialisms.
Normally spams are caused by a) reflux, b) injury to nerves, for instance during surgery, or c) unknown causes. This does not sound very helpful, but it does indicate that reflux would be a prime factor for investigation. There are tests that can monitor acidity over a 24 hour period, for instance.
I hope this helps
Santana825 AlanJM
Posted
Thank you for your response. We an have upcoming appt for a second opinion and trying to get the authorizations to the childrens hospital as well. GI cleared him he has no reflux and they did biopies as well. His ent also did the camera up his nose into his throat and saw that it is laryospasms. I just want to find a way to prevent them from happening so frequently. Thank you.
donna74411 Santana825
Posted
I am sorry to hear about your son's problem. I do not know much about laryngospasms. However, I am someone who believes in 2nd and if necessary 3rd opinions. Perhaps you should consider taking him to a GI specialist. His spasms could be a result of acid reflux. I strongly advise a Major Medical Children's hospital where they are more apt to have the newest testing equipment. An Esophageal manometry test is unpleasant, but will determine if your son's problem involves his esophagus vs his larynx.
It is heartbreaking when our children are suffering. Good luck! Best wishes!
Santana825 donna74411
Posted
Thank you for your response. We an have upcoming appt for a second opinion and trying to get the authorizations to the childrens hospital as well. GI cleared him he has no reflux and they did biopies as well. His ent also did the camera up his nose into his throat and saw that it is laryospasms. I just want to find a way to prevent them from happening so frequently. Thank you.