Chronic leg pains since childhood, worse with cold weather.

You do not mention if you have had any blood tests for your leg pain.

Perhaps you could ask your doc for an ESR blood test for inflammation.

The Erythrocite Sedimentation Rate will tell your doc you have inflammation

going on in your body if the sedimentation rate is high.

Go back to your doc and asked for an ESR test if you have not had one.

Best wishes for a speedy diagnosis and an end to your pain...

Hello RPTP,

If your pains have been since childhood, then I'm pretty sure you've had the obvious investigations performed, eg MRI, CAT. Although now retired, my nursing days are always in my mind, & the 2 diseases that jump out at me are Perthes Disase & Raynauds Disease. Have either of these been tested for?

Good luck.

Hi RPTP,

I have chronic pain very almost identical to yours,

but in the fronts of my ankles.

I used Urgent Care in June when I became fed up of irritating GPs

telling me I simply have flat feet, unsympathetic physios telling me

my feet are fine apart from muscle weakness, people at school being

less than helpful about my pain too. The doctor I met was very

sympathetic and gave me MST 5mg (low dose = conversion from

Co-dydramol and because I requested tablets instead of Oramorph).

Unfortunately, although the MST were somewhat helpful, my school

doctor refused to prescribe any strong opioids. She suggested that

I would be better off with Diclofenac and Paracetamol with codeine

as a rescue drug. I go to boarding school so I can't easily see other doctors.

When I went to Malta over the summer, I saw a private GP who was

BRILLIANT. He gave me Celebrex (allergic to Naproxen and Ibuprofen)

and Tramadol. The Celebrex worked slightly, and the Tramadol

was better than morphine, better than anything else I've tried.

My supplies have since run out, putting me back to square one.

I would like to try Versatis (topical anaesthetic patches),

Cymbalta (works like Tramadol without opioid effect),

Acupan (non-opioid strong analgesic),

and Mobic (only COX-2 inhibitor recommended for teens)

as they could be effective based on the other drugs.

I find cold very painful, especially in combination with

high-impact activities, but heat packs and compression

stockings alleviate this better than co-codamol and

co-dydramol. Crushed Dihydrocodeine tablets in a Voltarol

base as a topical opioid have been effective, but I haven't

been able to obtain much of either to do so.

Nortriptyline at high doses at night were beneficial, but always

made me feel hung-over and tired the next day, and again the

difficulties of obtaining them prevents me from continuing them.

Gabapentin and Pregabalin weren't effective at all, and did

nothing but sedate me. Insoles just make my feet themselves

even heavier and achy. Physiotherapy just makes my legs hurt

more.

I have had periods of weeks of severe pain, as well as weeks of

none whatsoever. A child psychologist said that I was fine

psychologically as far as she could see.

My personal research favours peripheral neuropathy as the cause

of my pain, but it is impossible to get any doctor to listen.

If you don't mind taking weak opioids perhaps try Tramadol.

Controls at school mean that I can't look after my own Tramadol,

so it would be difficult for me to benefit from them.

However, you may find them very helpful as I did.

The non-opioid, Nefopam; the patches, Versatis;

and the antidepressants, duloxetine and Nortriptyline, may also

help your pain.

All the best

Hi. This sounds exactly like what I have. But ever since I gave birth to my daughter 2 years ago, it's gotten worse. The pain has spread to my hip right above my thighs, my ankles and just just above my knees. Even though those are the main areas, the pain is all over my legs. I have had this since I was 5 and so had my older sister and now my little sister has it. My GP have no idea what it is.

Have you figured it out yet? Or received any help or been given any answers?

I think I have similar to you, but I get it in my ankles, knees, upper thigh, wrists and upper forearm. Me and my little brother have both got this, but he only gets it in his legs. I've been to so many doctors about this and like you they just look at me as if I'm out of my mind and then tell me I'm fine. Had one who literally just looked at my knee and said there is nothing wrong, wouldn't even hear what I had to say, my mother was appalled. I've had this since I can remember and you know what, i always felt like I was the only one. So I just thought I'd give it a bit of a search to see what would come up and well, this did. But well, I guess they haven't yet come up with any thing for this, reading the comments saying how it may get worse getting older, well lucky me being only 17 ha. Mind you I always felt like it got better as I got older but I guess I was just getting used to it.

Hi there,

i see you've had lots of replies, although I haven't read through them. For what it's worth, has anyone mentioned Graves Disease? I'll have another think, but that's what jumped into my mind.

Good luck!

p.s. It's pronounced Graaves, not like the cemetery!!👍😄

Hello, I empathize with you regarding ongoing leg pain because I suffer with the same thing.

Would you mind telling what year were you born?

There is a reason I ask this question & I am happy to explain if you're interested.

Best wishes

My daughter has suffered from inexplicable leg pain every night for a number of years. We have finally found the cause... turns out it was a food intolerance. If your body reacts negatively to a food, it can cause inflammation in muscles or joints. For her it was Dairy — not Lactose, but Casein, which is still present in Lactose-free milk. We knew she was Lactose Intolerant, but did not realize that she was still being impacted by the milk she drank every day. The same reaction could be true of a Gluten allergy. Try an elimination diet. See if you notice a difference!