Chronic leg pains since childhood, worse with cold weather.

Hi RPTP

Wow it's like you read my life time experience. A cold bone aching pain that comes out of nowhere and radiates down my left thigh or right thigh then starts the same cold bone aching pain in my knees. It can start in leg and cross over to the other. The can transfer same cold aching bone pain my elbows shoulder wrist ankles. Nothing but a hit bath or heat pack seems to help. Any cold wind or breeze kills me. I live in Australia and even during summer I get these pain my whole life. I used to put on sweat pants and tie long socks around my knees to try and stop the relentless cold aching pain. Even strong pain killer don't completely stop my pain

Myum had server chronic reumitoid Arthritis. And she said she gets same pain like a growing pain. We both test negative to RA test. And iv seen so many doctors you just give up. They think it's in your head or tell you to loose weight or just exercise more a RA specialist told me I have Osteo and I'm just sensitive to pain. I could go on.and on. Please let me know if you find anything. I post what I find. Cheers D

I thought I was the only one with undiagnosed leg pain, it started in my young 20’s and has never stopped. Both my mother and brother have the same issue but no where near as severe as I do. What I don’t understand is it’s intermittent. One day I’m fine the next They hurt so bad I wish they weren’t there. It hurts in both legs evenly, both ankles and feet, sometimes it radiates upward into the back of my thighs and into the hips. They ache really bad during cold or high moisture in the air. I can tell it’s going to rain by the pain in my legs. The pain goes from a severe ache to burning cold if that makes any sense. Sometimes if feels almost like pins and needles. I have seen every kind of doctor, had every kind of scan imaginable many many blood tests with no answers. Every doc I have seen tells me it’s neurpathy from having spinal fusion. The thing is my legs hurt way before my back ever did. It’s been 20 years and I have given up on doctors? My family practioner just ignores me when I bring up my leg pain, I hope one day we will find the answers from a doctor that will actually listen. 

Hi,

I know this discussion is two years old, but I just wanted to say that I too have been dealing with this since I was a child (I'm 27 now). I have always called them "growing pains" as well even though I've stopped growing years ago. Used to wake up crying from the pain calling for my mom and have to take a SUPER hot bath to get rid of them or a painkiller, however, these are not a guarantee and sometimes the pain is still there (although lessened) or comes back. Cold has always been an instigator and heat the pain reliever although sometimes I have to take painkillers when the pain is really bad (but I don't like to take pain relievers, so I try to avoid them). These growing pains control my life, I'm so tired of them. They have caused many sleepless nights and canceled outings with friends. I don't date much because I don't want to be a booby prize to someone. I get the pains in my legs (hips, thighs, calves, ankles, feet, and toes) and arms (shoulder, biceps, elbow, forearm, wrist, hand, and fingers). Sometimes both at the same time sometimes just one leg or arm. Usually, the worst pain is in the furthest exterior location, such as my fingers, hand, wrist, and elbow, or my toes, feet, calves, and knees, with the toes and fingers the worst. But when they are especially bad, the whole limb will be affected equally. I find I get weakness as well in the affected limb, although I'm not sure if it's because I baby the limb or not. Stretching somewhat relives the pain while I'm in the stretch however once I stop stretching the pain is immediately worse than before. I have noticed the limb in pain is cold to the touch. I always have hot microwave packs on me to relieve some of the pain. I have been taking Magnesium citrate and Epsom salt baths for years; these significantly help reduce the number of days I'm in pain. I've found there are a number of things that can cause the pain (although I find the cause of the pain somewhat unpredictable) such as: physically busy days, cold weather (coldness in general ie. air conditioning, basements, poor heating in building), dampness/humidity, stress, not wearing socks or warm enough pants, exposed ankles, too much sugar (currently on a low sugar diet), and not taking my magnesium. Generally, the pain starts in the evening, however lately that has been unpredictable and sometimes I wake up in the morning in pain, or have pain midday. 

 

I feel like I've given up on finding a diagnosis, and just focus on controlling the factors above that seem to cause the pain (although again this is not a guarantee). My doctor is not exactly proactive in finding a reason either; she did one blood test to see if I had juvenile arthritis and that was it. I live in Canada where one should just be happy a doctor sees you ONCE to address an issue and then gets annoyed because they can't find a solution and throws painkillers at you but never tries to find a reason or diagnosis to the problem. Any number of visits over one to find a diagnosis and you are declared a hypochondriac. 

Anyways, I should really start my own discussion as I have not helped to find a solution to your pain, but I just wanted to say that there are others like you out there. I also wanted to show that this issue really needs to be addressed and resolved because adults should not still be dealing with growing pains. And perhaps you recognize some of the symptoms and/or factors that cause the symptoms I have in yourself and can use some of them. Taking magnesium, following a low glycemic diet, and keeping warm would be the most significant solutions I follow. However again these are not a cure, they only help manage the pain. 

Also, I am wondering if you have found a diagnosis? If so please let us all know.

Hi I have been suffering since I was 8 - im now 27.It can start in my lower leg and move up or down or switch leg. I can take a paracetamol and the pain will go away but if I dont it just gets worse and worse until it becomes unbearable. then it can go for weeks without bothering me. Every time I changed doctor Id ask again about this and id just be told to take painkillers. I have tried to find triggers like cold/caffeine/over excersise/staying still for too long. I just cant put my finger on it. Heat makes it feel better but doesnt cure it. massage can sometimes make it worse. I have poor blood circulation and good-low blood pressure. I often feel cold. 

I am so happy to find this forum. Just last night i was up for almost an hour from the leg pain I’ve been getting since i was 3. I’m now 25 but the leg pain still makes me cry! I too have been told it’s growing pains, yet I have not grown anymore than I had since my visit to the doctor in my early teen years. I don’t necessarily think it’s a disease that’s causing it? Some of the posts on here have scared me, I’ve always just thought it was just pain. My leg pain doesn’t happen as often as it used to, i get it every few months, even in the summer time. I just like knowing I’m not alone and that i am not crazy!!!

Diet helped me to. I'm now gluten , dairy and sugar free. The only downside is, for the first time in my life I don't know when it's going to rain. That took some getting used to. Google, elimination diet . Basically you cut out different food types, then reintroduce them and see if it makes a difference. I also have spine problems so have other issues but was amazed at solving some of the pains.

Good luck

Yes, I agreed that all treatments are useless when we are talking about old pain treatments. But can you try stem cells treatment for your pain? It was very effective for every type of pain and gives instant results. I try R3 Stem Cell treatment for back pain. And I am very impressed with the treatment. Because I got unbelievable results with this. If you also interested in this treatment visit R3 Stem Cell official website.