Chronic migraine can anyone help please!!!!

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Morning am so fed upwith my migraine I have had botox for over a year but last time had my nerve ends kill off so did not work at help being so-so bad am on 100mg amitriptyline a night and when it's bad(which is every day) I take 500mg naproxen with frovatriptan 2.5mg which only meant to take twice a week that is so hard not to take more !!!am back seeing the specialist tomorrow ....can anyone help please???!!!! Am thinking of asking him for the 30injections botox again and some different tablets any idea please ???

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  • Posted

    Good morning.

    i am sorry to hear that. Sometimes you can take too many tablets and the body gives you a migraine for the next tablet. I was having them every other weeks for 5 days at a time , sickness , numbness. My neuro lady said to try and stop taking as many tablets. To use aspirin ans paracemol . The last migraine I had was in February which I ended up in A &'E because the pain was so bad I couldn't stop it. I also went and had my ear pieced which was painful. But something happened and I am pleased to say I haven't had a bad one since. As soon as I get the feeling I am getting one I take a melt ax tablet and it stops it straight away. I tried all the other tablets you take every day and they gave me side effects.

    i am 57and I have had them since I was 20. They used to rule my life and stop me doing things. Stress is another cause. I have fibromyalgia as well.

    good luck 

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    • Posted

      Hi I had both my ears pierced have to say it's help a little bit I get a few hours break from it...what's melt ax tablets please?? It rules my life can go to far he case I get a bad hit!!!am just reading about tyramine in food but alot I stay clear of anyway!!!I get so down with it ..how do you cope ??

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  • Posted

    Hello again,  the tablets I have is  maxalt lingua 10mg, they knock you out when you first start to take them but your body gets used to it. I also have an injection in case I feel sick. When you feel sick the body doesn't adsorb it so I was told.

    i would use hot water bottles, try anything but you have to learn to deal with it. 

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  • Posted

    I was in a similar place a few years back - except I had tried a long list of preventative meds and painkillers and things were only getting worse. I was given choice of Botox but decided to try going completely gluten-free for 6 weeks and live as if I had coeliac disease. Best thing I did, I have now been gluten free for nearly a year and my migraines have slowly reduced from over 20 a month to about 1-3 a month. Hope that might help
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    • Posted

      I'll be honest it is a pain; however there is so much available in supermarkets and more and more places do gluten free options it is getting better all the time - but it is more expensive (but worth it to have a different life without it being ruined by constant pain! )
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  • Posted

    Hi Really sorry to hear this Migraines are a rollacoaster ride without any fun...

    I have tried everything..

    went to see a neurologist 2 weeks ago he  prescribed Candesartan Cilexetil been taking for over a week, I noticed a improvemnt but withdrawl from my triptans sets me back..

    may be try these

     

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  • Posted

    I take the same as you and I find the Frova doesn't seem to be as effective as it use to be.  I wonder if you can build up a tolerance?  The naproxen are useless for me.  It doesn't even seem to touch the pain.  I found I was getting a stiff neck every time I got a migraine so the doctor prescribed methocarbol muscle relaxers..knocks me out about 15-20 mins after I take them but I wake up migraine free.
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    • Posted

      Hi I get a stiff neck to do u take anything else have u stop taking frova and naproxen??? Am seeing specialists tonight so would be good if can put some things to him x

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    • Posted

      I stopped taking the Frova for now on the advice of my GP.  He's looking into other meds to see what I could take.  I have liver disease too so I have to be careful of interactions.  I still have the naproxen because If I start having the migraine during the day I can't take the metho where it knocks me out so fast. It takes the edge off long enough to get home from work if I have to leave.  I generally only take the metho at night.  I'll take the naproxen up to 3 pm and then when I do go to bed around 9 I'll take the metho.

        

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    • Posted

      Naxporen, does nothing for me, I think your right your system get's use to it .....wouldn't mind trying methocarbol
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  • Posted

    I feel your pain I've tried pill after pill and none have worked! Topirimate is an ok one, there are a few side effects to it but not everyone gets them. I'm on nadolol at the moment and have found the pain is less intense than it use to be compared to other medications I've been put on, the neurologist recommended it to me so maybe you could give it a go?
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