chronic migraine help !!!!

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Hi There guys first time using the site. I am a 25 year old male and have suffered migraine since I was 12 over the last 3 years it has became chronic Pain almost every day. For a period of 6 months I was having to get pethidine or morphine injections 1-2 Times a day 3-4 days of the week thankfully I have found ways to deal with the pain to not have to resort to these painkillers as I know how highly addictive they are !! I have tried all the preventative medications that I can. I am asthmatic and cannot use beta blockers anti inflammatory meds. As well as triptans naratriptan sumatriptan eletriptan rizatriptan self injectable sumatripatan , nasal sprays melt tablets . I am under the care of neurologic specialist in migraines which to be honest has not been much help.  I have had an nerve block which did not really help. Have tried all painkillers that I can paracetamol cocodamol morphine tabs pethidene tabs metpid sure I have missed a few. The only one I have had any relic from is dihydracodine which I have now been on everyday 8 30mg tabs for about 6 months. My doctors are now hitting a wall. They are also worried of me becoming addictted to the painkillers (even tho some of them were telling me to take them even if I did not find they were helping) have also tried with all the types of anti sickness meds.

Has anyone had simillar problems or any suggestions of what I could try. Any help appreciated 

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  • Posted

    Hi Jamie,

    I know it sounds harsh but it may be time to try the cold turkey withdrawal of all meds. 

    Download a good few meditation apps to help you through, then start on the supplements...

    B12 400mg daily, CoQ10 200mg daily, Magnesium as citrate etc I'd not oxide at 250mg 2 to 3 times daily.

    Also consider calcium channel blockers if your BP spikes as part of your migraine triggers. Try to I'd your triggers if at all possible, even dried fruit can trigger a migraine...

    I've found a mix of supplements, meditation, candasartan at 2mg daily and a cefaly tens device the nearest I've come to a solution, down to 1 or 2 migraines a month from 8-10 days lost in bed.

    Although I'm also asthmatic I can tolerate indometacin for a day or 2 to counter any really bad pain days.

    Good luck and keep in touch

    Duvet xxx

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    • Posted

      Hi duvet thanks for your reply . I have tried 12 weeks off all medication except my preventative ones ,was the worst 12 weeks of my life.

      Unfortunately anti inflammatory drugs set my astmah off really bad tried them a few times and end up in hospital on iv steroids although I'm ok with asprin now and again which does help a little mixed with other meds.

      I have asked my doctor a few times about beta blockers and he is very reluctant to try me on them.

      I have got an appointemt next week for bloods for what feels like the 100th times to see if I have a b12 deficiency.

      I gave up on keeping a migraine/food diary after a year as myself and doctors couldn't find what could  triggering them.

      I personally think it's down to stress and not sleeping well and have got into a bad cycle of worrying about headaches coming on getting stressed by it which is then causeing the headache .I have also tried all the sleeping pills that there is to no affect.

      I think I will give the vitimans etc a try can't hurt I suppose and willing to try anything now .

      I am very glad you found things to help you  as it is the worst pain imaginable and people who have not suffered before don't seem to understand the affect it has on your life I am very lucky that a few of my doctors suffer form migraine and are very understanding as have met a few who seem to think it is just a headache which can be very fustrating 

      Thanks again for your reply and I will post and let everyone know how it goes after I try the vitimans smile

      Jamie.

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  • Posted

    Hi Jamie, like you I am a long suffering migraine suffer who has tried nearly every preventative med going and also find that no pain killers work. The only releif I get is when I take sumatriptan but I was told by the pharmacist that I was taking too many, this was also confirmed by the neurologist. But the interesting thing was that I also was told I could not take beta blockers because I am asthmatic but this same pharmacist suggested I try a beta blocker called pizotifen which can be used by asthmatics. So the last time I saw the neurologist in November I asked her about these, since then I have been on these beta blockers and although the frequency of my migraines has not changed ( one a week ), the intensity has greatly reduced, I only need to take 2 paracetemol and its gone within 20mins. I would still like to be migraine free but I think I could live with this. I am due to go back to my GP this month so I don't know if he'll recommend anything else, but it may be worth asking your GP about this beta blocker. Good luck.
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    • Posted

      Hi Kath I have tried the sumatriptan unfortunately dose not work for me.

      The prizotifen I have tried did not realise it was a beta blocker I think I was one of the first ones I tried.

      One of my next ideas is to try some of the preventative medications again but using different triptans an pain relief to see if it has any effect. 

      That's good you can mange the pain with paracetamol think everyone who suffers migraine has the dream to be free of the as it really does take over your life. 

      Unfortunately yesterday I ended up with the worst migraine I have ever had but after a 2 hour wait in a&e seen the doctor was given a im pethidine injection and cyclizine and 5 minutes later 

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    • Posted

      Hi Kath I have tried the sumatriptan unfortunately dose not work for me.

      The prizotifen I have tried did not realise it was a beta blocker I think I was one of the first ones I tried.

      One of my next ideas is to try some of the preventative medications again but using different triptans an pain relief to see if it has any effect. 

      That's good you can mange the pain with paracetamol think everyone who suffers migraine has the dream to be free of the as it really does take over your life. 

      Unfortunately yesterday I ended up with the worst migraine I have ever had but after a 2 hour wait in a&e seen the doctor was given a im pethidine injection and cyclizine and 15 minutes later was heading back out the door pain free.

      Report
    • Posted

      Hi Kath I have tried the sumatriptan unfortunately dose not work for me.

      The prizotifen I have tried did not realise it was a beta blocker I think I was one of the first ones I tried.

      One of my next ideas is to try some of the preventative medications again but using different triptans an pain relief to see if it has any effect. 

      That's good you can mange the pain with paracetamol think everyone who suffers migraine has the dream to be free of the as it really does take over your life. 

      Unfortunately yesterday I ended up with the worst migraine I have ever had but after a 2 hour wait in a&e seen the doctor was given a im pethidine injection and cyclizine and 15 minutes later was heading back out the door pain free.

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