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I am a 25 years old French woman of and I suffer from strange skin pains that seems to be unknown neither by doctors nor Internet. I'm asking you to help me as possible, if you have an idea of what it could be so I could consult doctors.
Since I'm 12 years old, I suffer from widespread pain from the top of the spine, then spreading out in all the back, torso and when I suffer a lot it spreads everywhere but never the extremities or head. These pains are like thousands of needles planted in my skin or a feeling that someone pulls my hair very hardly without taking them off. It happens by low average temperatures (below 73°F) or by strong emotions (even if it's 95°F) causing a shudder. Every time I see that my hairs stand up on the painful areas and that emotions give me chills that are less painful than the cold shiver.
red = where the pain comes from, orange = it spreeds, yellow = when it very painfull, grey = never painfull
Younger, I thought I was more cautious than average. But the layers and layers of clothes have changed nothing, every winter is a daily suffering. My doctor did an analysis of my thyroid, everything was normal.
At 22, during a very cold work outside, I suffered martyrdom and did not understand how people with me could bear this. One of my teacher saw me crying after discussion, she confessed she had the same unexplained pain caused by coldness and no one knew what they were. This is when I realized I wasn't "cold" but "in pain" and that the real cold (I feel at my hands, feet and face) was a very sweet feeling compared to that. I researched on the Internet, and I had the idea of neuropathic pain but I find no possible origin. I have had a fall (roll back) into concrete stairs as a child, I fell like all horse riders, I was operated once (pyloric stenosis at the age of 1 month) but never had a car crash or serious stuff requiring hospitalization.
I also noticed that from time to time I also had "peaks" very lively and very short limb pain, without any reason. At completely irregular intervals. I do not know if it may be connected.
In red, when it's sometimes painfull.
After months, asking doctors, I talked about neuropathy and I was prescribed an electromyogram of limb (although I've no pain in limbs!). It was normal and I felt lost. Physicians must think I've nothing because they have no idea of what I have.
I am aware that I can live with, but it is increasingly debilitating for me and I'm afraid that it may be some kind of tumor or malformation of my spine ... What I want is a track, something to convince the doctors to make me undergo medical examinations.
Thank you so much for having read. Sorry for the translation mistakes !
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