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Chronic Pancreatetis or Auto immune Pancreatetis

Posted , 3 users are following.

pr2384
pr2384

Age:- 32

Male

Occasional Drinker [ Stopped now ]

Non Smoker

lost 2 lbs in last 2 months

Anxiety issues

10/07/2015 :- Appendectomy done

12/16/2015 :- Upper Abdnominal pain radiating towards back [ Mild to Moderate ], no prior history of this kind of pain. Went to instant care and been told after 24 hrs about elevated Lipase [ Count :- 2400 ]

12/18/2015 :- Mild Pain still continued, Admitted to ER. CT SCAN and blood work done again. Been told about Mild subtle pancreatetis [ mild inflamation of pancreas and Fatty liver ] with elevated Lipase levels. Sent home same day with only one instruction i.e not to eat for next 36 hrs.

01/07/2016 :- Self Appointment with GI. GI ordered for  EUS and MRI

01/09/2016:- MRI done and results are similar to CT scan and also speculation of T2 Mass on body and tail of pancreas.

01/10/2016:- GI want to rule out PanCan and ordered for EUS biopsy

01/13/2016:- EUS biopsy done and they did not found any mass.

01/19/2016:- Biopsy negative for PanCan, ca19-9 value less than 1.

02/03/2016 :- Given blood work again for IGG4 test.[ AIP ]

02/05/2016:- Informed my GI that I will get a second opinion with different Doctor.

Last two months, I went through lot of stress, I still have mild back burning  pain and lot of anxiety. Can anyone help answerng my question and make me understand if I am having chronic pancreatetis [ happened all of a sudden ] or Auto immune pancreatetis.

 

0 likes, 8 replies

8 Replies

  • henry01196
    henry01196 pr2384

    Posted

    I had issues like that.

    chronic pancreatitis ussually happens after deveral cases of acute pancreatitis.

    symptoms will linger for months and depending on what you eat youll feel discomfort.

    Just try not to worry about it, try eating low fat food and take antixidants, try no to drink even if you start feeling better.

    uts been 6 months since my attack and il barley starting to feel normal, I tried eating bad and noticed discomfort will comeback, so ill gp back to eating healthy,, now im eating pizza and greasy food and hardly feel any discomfort.

    I was so stressed out when it was happening to me, and I tought i was getting chronic pancreatitis, I also noticed the more i worried, the more i felt ill.

    It right, take vitamins and antioxidants, and you will slowly get better again, trust me.

    happy healing.

    • pr2384
      pr2384 henry01196

      Posted

      Thanks a lot Henry for a reply. I am anyways getting a second opinion to easy my mind tomorrow. My IGG$ levels are normal too.

       

    • henry01196
      henry01196 pr2384

      Posted

      It might be gallbladder issues that caused your initial acute pancreatitis.

      hopefully everything resolves itself quick, please keep me updated with your condition.

    • pr2384
      pr2384 henry01196

      Posted

      Gallblader / Spleen / Billary tree looks normal in all previous scans. [ EUS / MRI / CT ]. Mild Fatty Liver is something they said other than my pancreas. But my liver enzyme tests are all normal.

      My lipase elevated again, this time it is 900 :-(. Now they wanted to do contrast MRI. Not on any medications still. Mild persistent Backpain .

      Now my GI says EUS is not always good method to diagnose pancreatic problems.

      Past three months have been very stressfull, given my age and lifestyle not sure why I have pancreatetis or pancreas related problems. All that I think of is social drinking that too twice / thrice a month :-(

    • henry01196
      henry01196 pr2384

      Posted

      Sorry to hear about your problem.

      Remember that i said i was doing good?

      well 2 days ago I ate a whole medium pizza by myself in one sitting and started getting stomach pain the whole night, so I been fasting just in case is pancreatitis again, ill fast for like a week, today pain is less but still feel a little tenderness and a bit bloated.

      I also had all the tests come back neagative 6 months ago when I had my first attack, I also was more paranoid cause I had what seemed like fat in my stools (stateoreah) when I had my first, it lasted about 4 months and than started having some what normal stools.

      I was celebrating a bit to soon and now find myself in the same boat as you.

      But lets try to be positive, because sometimes being scared or over thinking can make situation worse.

      Ill try same diet, some fasting and hopefully will get back well again soon, I hope you get piece of mind soon and suggest you eat healthy too.

      Try asking your doc about sphincer of oddy disfuntion, that can cause pain and pancerase issues as well.

      God bless and keep me updated

    • pr2384
      pr2384 henry01196

      Posted

      Thanks a lot Henry, for all the moral support.

      Today, I had one more MRI with contrast  nad now they are 90% sure that I have Auto Immue pancreatetis.

      Good thing, they did not find any Mass this time. But all my other abdominal parts seems to be normal.

      I did get Lung Xray too [ Had Persistent cough ] and its all normal. May be anxiety and stress was reason for cough.

      All they said is there is peripancreatic inflamation and mild dilation of  pancreatic duct in body and tail.

      They are planning to start oral steriods for me for short term and see how things change.

      I still have mild abd  + back pain. [ On pain scale, i would say 3 out of 10 ]. But I am still able to do all day to day work without any hassle.

      And about Diet and lifestyle, Doctors just told me to say away from alcohol + Fat foods which I already did .

    • henry01196
      henry01196 pr2384

      Posted

      Hopefully this eases your mind and hope the steroids help, also try taking chelated magnesium for the rest of your life so you will never get calcification in your pancreas.

      Keep us updated about your progress and I hope you make a full recovery.

  • annmell100
    annmell100 pr2384

    Posted

    Hi I am 61 years old, just thought to let you know I went through this pain for years and eventually i was hospitalised but still did not find anything wrong and after 2 1/2 years of in and out of hospital either every week or month was sent to a specalist after stool was sent for test he autamatically knew what it was, (Cronic pantreatitis), put me on creon and have never felt better, dont get major attacks anymore and can live my life without the agony, i would go to a specailist and see if he canget the right answer, hope this helps. xxx
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