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Chronic Pancreatitis

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Guest
Guest

Hi i was diagnosed with chronic pancreatitis December 2006 and much to me relief as the doctors were starting to think the pain was all in my mind altho i lost 6 stone so i knew something was not right!

It all started about 4 years ago when i collasped at work due to sever stabbing and burning pain in the upper and right hand side of my abdoman.

I had many CT, X-ray and nuclear medicine tests that revealed nothing. After 2 ERCP's they could see that my pancreas had scar tissue on it meaning it was obvious that i had suffered previous attacks (this pain was not in my head). As i'm only 27years old it was the last thing that the doctors suspected. After many talks with doctors/nurses they could clearly see that i did not have an alcohol problem or drug problem.

I was finding daily life hard and to be quite honest a chore being in constant pain and feeling sick all the time. i no longer socialised with friends and could barely hold down my part time job and Uni. I honeslty just wanted to die!

Until...

In may 2007 i had a solar plexus never block that helped take all the pain and sickness away. That was until 4 days ago when i have had a major attack again and am now back on the morphine and all the other pills that u need to take.

I have an appt to see my surgeon again in november and i hope to see my pain specialist on Mon to ask if i can have another nerve block.

Idiopathic Chronic Pancreatits is the worst illness i have ever experienced in my life and i would not wish it on my worst enemy. Its really hard but i ask people in my situation to keep ur chin up and get a good surgeon and pain specialist.

Maria x :roll:

1 like, 18 replies

18 Replies

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  • william65322
    william65322 Guest

    Posted

    I would recommend that you ask your doctor about a Spinal Cord Stimulator (SCS).  Mine was implanted about 1 1/2 years ago and it has wokred pretty well.  It does not cure the problem, but it does tell my brain to feel a tingling sensation instead of the pain with CP.  It does not help me with the breakthrough pain, but for that I take Tramadol after being on opitates for 1 1/2 years.  The SCS can be programmed to cover different parts of your body where yuo feel pain.  The remote I hagve allows me to change the programs, intensity, rate, etc.  I would recommend going to the Boston Scientific website and see what the device acutally is and it would give you more infomation.  The SCS does not work for everyone, but it is an option to try.  I tried many different pain controlling remedies and the SCS seems to be the best at least for me.  Take care and my prayers. 
  • daniel_94496
    daniel_94496 Guest

    Posted

    This is my 4th time to have pancreatitis. It's been alcohol related ever time. I used to be a heavy drinker but agreed with my wife to cut way back to avoid this. I haven't had one for 2 years until this past Saturday. And I admit I started drinking more than me and her agreed to.

    I drink at 5:00pm with a few shots of vodka and one beer and usually finish by 8:00pm and go to bed. This past time I probably drank a pint of vodka each night for 3 nights until I woke up Saturday in extreme pain and knew exactly what it was.

    I know this best thing to do is give it up completely Do you know of anyone who quit drinking but still had attacks? I should mention the dr. (He is my regular) said the last one a few years ago showed a cyst. He said the scan yesterday showed that the cyst is gone which he said was a sign I had decreased my intake. I just want to know what I might expect going further. Thanks for sharing your story!!

  • heather35540
    heather35540 Guest

    Posted

    I was admitted to hospital as an emergency  last October .I had pancreatitis ,a gall stone and E. coli .. Since the operation I have never felt normal again and I have had a couple of bouts of actually thinking I was dying ..I bloat up so much I feel I can’t breath .I ha e a cyst on my pancreas which they are keeping g their eye on .I am due for another scan June  it I do t feel I cant wait and wonder if they would bring it forward .I am a slim person but midriff is distended and I have 

    pain under my ribs .not feeling good 7 months on

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