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I am a 26 year old with chronic pancreatitis for 2 years. I have come to understand from reading many boards that most people with chronic pancreatitis experience intermittent severe pain from eating that either last days weeks or months and no mater how long these attacks occur they subside at some point during the day.
I have come to beleive that im a rarer case because my pain is severe and 24/7 and of corse worst with food. I have no nausea and constipation rather than diareah. I also have gastropareisis that comes with it. Food stay up to my throat when i eat as if it was stagnating in my stomach. The pain I experience is in my back and upper front chest (more on left side but also mid and right) oddly I also have severe pain in my lower abdomen and lower back as if my intestines and kidneys were litterly being eaten alive. And truly my whole body hurts but it stems from my pancreas. The pain is worst with exercise. Coffee or caffein hurts like hell (although I know many do not have this problem). And digestive enzymes like creon and viokase increase my pain but help me digest (double edge sword for me! ).
My pain and pressure in my abdomen seems to increase day by day meal after meal as if my disease constant but was degenerative. Its odd beacause most people experience attacks but they subside at some point but not me! . I was wondering if there was anyone out there that experience their pancreatitis like mine and how they have coped with it??
The precautions I have taken to manage so far are the following.
totally veagan - no fat (exept minute amount in legumes)
curcumin and bowswellia
The last three every meal to reduce inflammation and oxidative stress on the organ.
Lastly I have heard of spontanuous releif of pain from chronic pancreatitis in medical litterature from pancreatic burnout (stop producing enzymes) or the organ simply returning to its normal function on its own miraculously. I was wondering if there was anyone out there who have experience their chronic pancreatitis in a similar fashion as mine(i.e. 24/7 pain), did not do well with creon or viokase for their pain, but still one day found their pain to dissapear spontanously or slowly and how many years it took??
To whom ever mite be reading this, regardless of the nature or form of pancreatitis I wish you all a pain free life. Whom ever you may be please share with me as i am feeling desperate
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