Chronic pancreatitis

Posted , 7 users are following.

I was diagnosed 10 years ago. Embarrassed to say, did not stop drinking alcohol. Admitting that I drink excessive. I have been pretty much symptom free. Only occasional episodes of nausea,no abdominal pain . Lipase levels mostly normal with occasional mild elevation. Just wondering if I was misdiagnosed. I would think I would be much worse considering my continued alcohol use. I realize I MUST decrease my alcohol intake. Please advise

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14 Replies

  • Posted

    How were you diagnosed? you must stop drinking either way.
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  • Posted

    ERCP 10 years ago
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  • Posted

    If you have pancreatitis, you are begging for trouble, i am not yet officialy diagnosed but a lot of symptons, i wish i had completely stooped drinking from day one, was a bit excessive but not that heavy, still read what people go through well, do u really need to reach there, like u at first i had nausea but was told it was not pancreatitis, now pain has started and i am very sad, do what u have to , you must stop. My 2 cents
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  • Posted

    If it’s an ERCP that diagnosed your condition then you weren’t misdiagnosed. What general doctors don’t know is, that with chronic pancreatitis, your blood work won’t show pancreatitis. In fact, instead of elevated levels they will decrease. Furthermore, when it’s chronic, the symptoms of “pain” are less. You may develop other symptoms but the debilitating pain will decrease over time. Drinking will only worsen your condition. You may need to have your pancreas removed if you continue to drink which will make you completely dependent on digestive enzymes and insulin. I developed chronic pancreatitis due from Pancreas Divisum (born with two pancreatic ducts that never fused together). It took the doctors over a year to diagnose me. It wasn’t until I had an ERCP that I was diagnosed with chronic pancreatitis. An ERCP is the gold standard test that can diagnose chronic pancreatitis but they don’t use it for diagnostic purposes because it can cause a pancreatitis attack. Normally ERCPs are used for treatment purposes. In my case they were used to widen my ducts and place stents, etc. If you were diagnosed with chronic pancreatitis then I suggest you look for a pancreas specialist. A pancreas specialist is the only doctor that can help you. Other doctors do not have the knowledge and don’t understand the pancreas. 
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    • Posted

      This is all good advice. But, you're not going to find a doctor who is sympathetic to a chronic drinker, I know. About 5 years ago I was diagnosed with chronic pancreatitis because I didn't know where the pain in my abdomen was exactly originating from. I have pretty intense pain on my left side and I even have pain on my right. But, from what I've heard, pain varies from Patient to Patient. But, if you start experiencing true uncomfortable pain, the lady before me was exactly right, seek out if not a specialist in the field of pancreatitis then a doctor who is sympathetic and is quick on referrals to keep up on the test that are required. I wish you the best and I hope that pain doesn't develop and I definitely hope that you're not diagnosed with this pretty rotten disease. Be well...

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    • Posted

      Hi Shortie,

      I think you're wrong about not being in unbearable pain with chronic Pancreatitis I have it every day which I take cocodamol for and digestive enzymes everytime I eat. It is a daily battle for me

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    • Posted

      I’m not saying there’s no pain. I am trying to say as the disease progresses the pain can subside. I live in pain every day. I actually have to have my pancreas removed. 
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    • Posted

      I would see a pancreas specialist. Only they can advise you the condition of your pancreas. Everyone feels pain differently and/or the lack there of … other symptoms only. Maybe your pancreas was/is already in a condition that you wouldn’t feel pain. I don’t know the circumstances that led you to an ERCP. All I can do is relay what my pancreas specialist has advised me about chronic pancreatitis. I didn’t develop pancreatitis from drinking and unfortunately nothing has worked out regarding treatment. I have to have my pancreas removed. I will be a diabetic and dependent upon digestive enzymes which I already have to take. I went through a battle just to get a diagnosis. You’re actually fortunate to have a diagnosis … I wouldn’t take it for granted. I wish you the best of luck and you’re very fortunate to not have pain. 
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    • Posted

      To be honest I’m not certain. Tomorrow I’m going for the celiac nerve block in an attempt to help with the pain. Due to having two narrow ducts, they get clogged up easily and I suffer pancreatitis symptoms almost everyday without getting a full blown attack. I had the genetic mutation markers blood test done and my pancreas doctor explained if it came back positive that’s when they would remove the pancreas and do the islet transfer to the liver  (because that meant cancer for me). My test was negative. Unfortunately the ERCPs were not helping me and with my Pancreas Divisum condition it’s causing the chronic pancreatitis to get worse. I’m young for pancreatitis therefore I don’t want to remove my pancreas until absolutely necessary. My doctor doesn’t want to remove it either … mostly due to my age. I do know someone who has been through that particular procedure but I don’t know if it’ll be the same one since the circumstances are different. I don’t have a gallbladder or appendix and I’m not certain if that makes a difference either. I’m not diabetic but I do have to take digestive enzymes. I’m not looking forward to that surgery but when it happens, I will let everyone know how it goes. 
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