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Chronic pancreatitis since 11/2014 what to do now?

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melissa_in_nd
melissa_in_nd

battling since 11/2014 lipase of 4000 been in and out of local hospitals and finally  got transferred to University of Minnesota Hospital's, they perform surgery to fix the common bile duct which resulted from my surgery for my gallbladder back in 1994. So I  was having more pain after first surgery in November so rechecked lipase levels they were still in the 4000 range so admitted to local hospital only to be flown out to the university of Minnesota again this time  another surgery was performed which consisted of opening both common bile duct and the biliary duct and put stents in. I had gastric bypass's in April 2009 so  doing surgery is a little bit more involved still done as an ERCP that surgically. To make a long story short I've been in and out of the hospitals due to this chronic pancreatitis and battling smoldering  pancreas so have been feeling somewhat better but not completely I had stents taken out in January 2015. Students were removed started feeling little bit better but a flareup happened in February  of 2015 admitted locally for fluids and NPO only to be discharged after two days, this local hospital did nothing for me they did not know how to treat someone with pancreatitis  you don't keep patient on NPO for one day and have them eating regular food the next so I went home battle pain flareups your name at the name of the game. So now again 

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3 Replies

  • melissa_in_nd
    melissa_in_nd

    Posted

    So now in April I went to University of Minnesota through the ER admitted immediately and this time they open my bile ducts  wide-open put in stents and a feeding tube.  Sent me home had both items taken out the end of June and I asked them just how many procedures can you do for me before I have the pancreas removed  and by Dr. stated there is lots that we can do before we reach that point well you know what after this hospitalization I feel I have reach the point of please do something since you said there was lots that you can do I understand I doctor can't  perform surgery every time but come on you said there was more you can do please do so I'm not asking much, just asking to help with pain maybe they could do an x-ray to see how the openings are at this point today 
  • william65322
    william65322 melissa_in_nd

    Posted

    Melissa, I'm sorry to hear about how much pain you are having.  I've had CP a little over three years now and I had a couple of surgeries to eliviate the pain.  The doctors implanted a Spinal Cord Stimulator (SCS).  I have 32 small electrodes attached to the spine and when the device is on it tells my brain that I feel a tingling sensation instead of pain.  The device can be adjusted to differnet settings and has various programs depending on where the pain is at a particular time.  I still have to take some pain meds such as Tramadol and Haldol, but I'm off the really strong opitaes.  The procedure was done in Colorado and there are other success stories.  My prayers for you.
    • melissa_in_nd
      melissa_in_nd william65322

      Posted

      Thanks so much for your reply.  I'm still waiting to hear back from my GI specialists @U of MN.  I have left message and a page hoping someone would call me back, I'm ready to pack my bags and head to Mpls for the long weekend, but what would that benefit my situation?  I'm so frustrated with all this, Dr telling me that's there is still "lots" to do with me before having pancreas removed, we'll do it NOW..need I say more
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