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I have never posted on a site before but hoping someone has had a similar experience and can provide some guidence. I was diagnosed with CP in 2014. Have had 15 or more stones and more that 8 stents put in through ERCP. I have had 4 psuedo cysts that have burst that have had to be drained. I have also been in the hospital numerous times. I deal with the pain as best I can because my doctors will not give pain meds unless very bad and then only 10-15 pills usually after a hospital stay. They are recommending surgery....looking at the Pustow, Frey procedure or Whipple. Probably the Frey procedure because the head of my pancreas is toast and the ducts are completely shut. Has anyone ever had the Frey procedure? If so, what was the recovery like? I live in Denver but considering going to the Mayo clinic because I read what hospital and the surgeon make a big difference. Another thing that worries me is since I was diagnosed, I have lost 30-40 lbs. I am a 52 year old female that is 6 feet tall and am now down to 125-130 and am worried the surgery will make me lose more. Don't seem to have much energy these days and sick of taking numerous hot baths and hurting all while trying to work full time. Any advice or suggestions or anybody with a similar story that can help me will be much appreciated. I also had a recent CT scan that showed a mass on my pancreas that looked to have moved to my stomach so I had another stent put in from my pancreas to my stomach but my biopsy came back benigh but my doc is saying with the amount of scar and dead tissue he cannot guarantee that cancer is hiding and they can't see it even through the EUS. Does this sound familiar to anyone - need some guidance!! Thanks!!
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