Chronic Pancreatitis symptoms but tests all normal!

Hi All,

I have started this thread as a means of help and for us to chat on when we need some help etc.

There are a lot of us in the same boat with symptoms that point to chronic pancreatitis but the tests keep coming back notmal.

I suffer with pain daily, aggravated by eating anything! My pain is on my left side, under my ribs at the front and back that radiates into my upper back. I have epigastric pain, sometimes more to the left, sometimes more to the right. I have right sided pain under my ribs at the front and back that radiates into my shoulder. I have loose stool of varying colour (yellow, burnt orange, light brown), weight loss then weight gain and now weightloss again. I have dizziness, lightheaded, fast heart rate, shakes, tinnitus, bone pains, achey shoulders, knees and wrists, pains in my ears and my throat. Bloating, passing wind, indigestion and heart burn. A feeling of pressure in my chest inbeteeen my boobs.

I am taking amitriptiline, grape seed extract, turmeric and alphodic acid capsules.

I've had the "usual blood tests" and stool tests.

I have a low gallbladder motility of 30% - consultant doesn't want to take it out. I want it out. I've been referred to surgeon.

I've had the follow: ultrasound x3 normal, 4th ultrasound showed debris in gallbladder, MRI (upper abdomen) and MRCP- normal, MRI Lower abdomen - showed free fluid in pelvis but normal, endoscopy and sigmoidoscopy with biopsies for inflammation, IBD, h.pylori and celiac - normal. Polyp removed in lower colon- non cancerous. Endoscopic Ultrasound - normal, HIDA scan - low motility.

So that's where I'm at now. Recently in the last few days my pains have changed to contant and are very stabby and deep in nature. They don't seem to be letting up at all. They have moved to my epigastric area which i find difficult to put to the back of my mind.

Please feel free to suggest anything, share your story or just generally comment

Thank you for reading!

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