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Hi, I believe my history of this condition started in 1977 at the age of 24, I began to get discomfort in my abdomen which my GP could not explain and would do anything about, it was not a major problem to me at that time I just new something was not right.
About 10 years later things got a lot worse the pain increased and was more frequent.
In 1989 I had been in a great deal of pain for over a year I didn’t want to eat because I couldn’t keep it down and it increased the pain, my GP had become obsessed with the idea that my problem was irritable bowel or it was all in my head, even to the point of sending letters to that effect to the hospital, which I believe obstructed their investigations on me.
I had had many tests over the years at the hospital but none had indicated what the problem might be.
I even paid to see a consultant privately (£100 per hr) but that turned out to be a lot of empty promises and I finished up none the wiser.
My breakthrough came when things got so bad I was having to take over 20 paracetamol a day (because my GP refused to give me anything stronger) trying to reduce the excruciating pain, I got to see a different GP in my surgery as mine was away, he was so concerned at my weight loss (now only 90lbs a loss of over 40lbs) and how I looked, he got me into hospital the next day.
My stay in hospital lasted 2 weeks they carried out extensive tests and discoved that I had chonic pancreatitis, cause unknown.
It took about 3 years on Nutrazim pancreatic enzyme (I am now on Creon 40000) before I could honestly say I was back to some sort of normality, my weight increased and I was able to live again. Since then I have had quite a few what I call “flare-ups” of pancreas pain but fortunately I now have Oramorph morphine solution to be able to cope with it, other than that I have been doing well, “oh!” apart from my Thyroid packing up!, it’s a good job we humans don’t have to have an MOT, I`d fail!
During 2006 I became Diabetic, this has caused me a few more problems but I am slowly learning to deal with this as well.
It is my experience that when you have this conditon that you feel very much alone, it seems that a GP`s knowledge of the condition is very limited and you feel as though you`r having to deal with everthing on your own. In twenty years I have not met anyone else or been able to speek to anyone that has it, so support is very thin on the ground.
Having told my story, I must add that although there were times when I was in severe pain and not being given any help or answers I did not want to live, the opposite applies now, so don’t ever give up.
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