Chronic Prostatitis

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I have had CP for almost 3 years. I can't remember life without it or being able to sit down in real comfort. I have had all the hospital tests and regularly have a well-man check every autumn. I still try to keep fit and go walking and having recently retired so I am determined not to let it spoil my life. You always continue to worry that it will not turn into something else. I probably don't take as many pain-killers anti anti-inflammatory drugs as I should because you feel that can't be good for you as well. I dream of the day it will go but I fear it will be around for a long time yet, if not for ever.[/quote]

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  • Posted

    You have my utmost sympathy. I know that is little comfort. I have only just found out about the name of this condition after seeing three or four doctors and a neuro-specialist . I am almost certain that this is what it is. Almost as bad as the condition is the sense of isolation caused.

    3  years is a long time.  I wont tell you how long I have lived with CPPS., only  to say that several years of healthy living and relaxation techniques has really helped . Its not the  end of the road at all, but I'm starting to reap the benefits of my own relaxation program.

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  • Posted

    In the hope it may help you I can report almost total pain relief since my GP prescribed a low dose of amitryptiline. I had been suffering continuous pain for a number of years and was eventually diagnosed with chronic pelvic pain syndrome (CPPS). Of course I am not sure whether what has virtually solved pain releif for me will work for you as well - I hope so.

    Amitryptiline was first introduced as an anti-depressant at high doses like 150mg. At some stage it was discovered that it eased pelvic pain but in very low doses.

    My GP had attended a conference and spoken to urologists who advised him to prescribe this drug.

    You start at the low dose of 10mg once a day and give yourself time to adjust to any sleepiness effects it has on you. I found that by taking it at about 8pm and after getting used to it, there were no unwanted effects the following morning. For me the level of dose which has worked best is 20mg each evening.

    Now I can sit on any chair and carry out activities which pain prevented before.

    I no longer need tramadol or indeed any other pain killers. In any event, I discovered that most hardly work for pelvic pain.  Amitryptiline, I am told, affects seratonin production in the brain and suppresses pain triggers from the pelvic area.

    Here's hoping it will help you.  All the best

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  • Posted

    Have your pudendal nerve looked at if you haven't already and try Pelvic floor physical therapy
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  • Posted

    Prostatitus is a real bummer of a condition to have.I have had this since May 2014 and have had all the tests known.6 years ago after a health scare they did a test on my prostate and told me l had Chronic Prostatitis.Then l had no problems or pain until this year when it flared up.The pains between the leg intp the penis and the urge to urinate very suddenly.However after reading on another blog where someone had tried Amitripyline with great improvement,I told this to my doctor  who said ok let give this a try.I have been taking 1x10mg for nearly 14 days with remarkable results and feeling 80% better.Amitripyline is proscibed for depression and can be given to children who have bed wetting problems.I can only guess it effect the nerves in or around the prostate.

    I really feel a lot better with most of the horrible aches gone and for that l am most grateful.10mg l beleive is a very low dose and l aware there maybe could be some side effect which l will take responsibility for.

    I have suffered with problem for only a very short time compared to others but want to offer some hope to others and really hope this will help them.Good luck and remember you are not alone.

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