Chronic Prostatitis/Chronic Pelvic Pain Syndrome

Posted , 15 users are following.

Hello to everyone. My name is Boris, I'm from Croatia and sorry in advance if my english is bad. I joined here because I see so many sufferers about this what to call it "disease of unknown cause". Im 22 years old, and my problems started in 2011. I contracted chlamydia trachomatis and ureaplasma at that time and was treated with anti's. They did the trick, but since then, I always had some minor issues. I always had some urination and ejaculation discomfort, and sometimes when sitting on a bicycle seat. But I learned to live with it and it didn't bothered me that much. I started with bodybuilding in 2013. I was a really fit and muscular boy. Till this day, I had some problems with erections and noticed that I never had morning woods. But I could have sex when I ended up with a girl, but sometimes I needed viagra because my penis didn't responded to stimulations. I also masturbated a lot during this years. But to get to the point now. In July this year, I noticed some big issues. It starter with a frequent urinations and a burning when p*ssing. Doctors discovered another chlamydia infection. This was treated with anti's, but after that, symtopms got so worse that I cannot live normally anymore. I went trough all kinds of test and they cannot find anything wrong with me and bacteria is not present anymore. My symptoms are so severe that I lie in my bed for days and can't do sh*t. Constant urge to urinate, burning when p*ssing, cannot sit for 10 minutes because sitting causes pressure, electircal like and knife like pain in the perineum, anus, penis, genitals, and worst of all, I feel all of that radiating to my lower back, abdomen, and generally in the pelvic region. Also, my upper tighs hurt sometimes and it is often sweaty there and in the anus. I often even feel pain at the root of my penis, testicles, glans and my penis is really dead now. I have a good libido but my penis is like a foreign object attached to my body, that's how I feel and I cannot use my penis even that I have good libido. I cannot even masturbate, and when I sometimes succeed doing it, it is more like a torture and not a comfortable feeling. Ejaculation is a nightmare, I feel so uncomfortable after that to the point that I really don't want to do it anymore and I actually have a fear of doing it in the future. My life is a misery now, my parents are trying their best to help me but but nothing seems to help for this nightmare. I consider ending my life so often and I just want to get out of this skin, and I didn't slept for a month and a half now because of this, it kills me. I don't know what to do and it seems that anti's, physical therapies, natural remedies and all that doesn't seem to help and ease this condition. I am considering to do Ganglion of Impar blocks to my lower spine as it seems to help in 70 to 100% of cases with this kind of issues but I am not sure. I am so desperate that I am ready to kill those nerves that produce sensations like this. Does anybody tried this or anything else that helped immediately? I'm only 22 and my life just startedy and this nightmare appeared. It took my life, my job, ruined my social life, ruined my relationship, ruined my passion and love for fitness and bodybuilding and ruined the meaning of being alive. To all of you who suffer from problems like this, feel free to write here, I am compasionate with all of you. I don't see a good solution for this, and I don't plan to suffer for years with this either as I see that people often end up living a fu*ked up life with this. I'm tired mentally and physichally. I don't want to live like a zombie because of this. I feel like I'm alive, but half dead. Will this condition ever go away? Oh god, help...

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  • Posted

    This is one of the worst stories I've heard on this forum. I feel very sorry that you are suffering both physically and mentally. I do not have any practical advice, but want you to know there are people here who want you to find the answers to your problem. Your English is good, so well done for using this website to get help. I hope others have some good suggestions for you.

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    • Posted

      Bane, keep calm. You have run-of-the-mill CPPS, and there are many, many success stories on the internet about how men overcome this temporary problem. Google prostatitis cpps success stories, and you will see, good luck
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  • Posted

    You need to see a top urologist. Perhaps in the UK, Australia or the USA. The whole urogenital system is complex and often hard to treat. Bacteria can stay hidden. You should likely get a full MRI and ultrasound to see what is going on. The pain in the tops of your thighs indicate that your lymph nodes are swollen and something is draining into them from somewhere. You have got to find the source. Best of luck..
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  • Posted

    Dear bane,

      I have suffered with Prostatitis for seven yrs. now. Mine was so bad that when I got it, I was in such discomfort that the Dr. thought that a Turp might solve the problem because my urinary system was in such a mess from BPH. Turns out that the problem is still with me to this day. I have been to many Drs. to find a possible cure and none have helped me, BUT I continue to search for the one possible physician who will take me into their care and have the compassion to rid me of this dreadful condition. I don't give up and I'm telling you now, friend Don't Give Up. Finding a cure for this is the one thing we should all strive for and if we have that goal in mind, I know there can be a better day for all of us who suffer from chronic Prostatitis and just want our lives back so that we can once again have the happy life that our fellow brothers have and we so richly deserve as well !!

        Steve

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    • Posted

      Hey Steven. How old are you? I'm afraid that this will haunt me every day for the rest of my life. And that I will live a miserable life with this. No girl wants a boy like this. Will this thing ever go away? Oh god, I can't take this...

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    • Posted

      Hi Boris,

          I'm 66. I got this when I was 59. You have to take this day by day. Calm down, take a deep breath and I promise I will get back to you tomorrow after i get a good rest. I will talk to you tomorrow, Boris, OK.

       Steve

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    • Posted

      Hi Bane,

      First off you need to know that eventually you will solve this problem. I don't have it, but I had another related problem.

      I had significant problems with being impotent, and having difficulty getting an erection long enough for successful intercourse. I got that problem when I was about your age. I struggled with it, trying every new thing as it was developed. Some worked better than others, but the technology just wasn't there. Finally, about 3 years ago I got a penile implant. It's wonderful, even better than a normal healthy penis would be. My point is that this problem will likely be solved, because like impotence, many guys have it, so there is a "market " for a cure, and it will eventually be solved.

      Your job is to do what you have started doing. Do your own research, and become an expert on the latest developments in prostititus. Continue to go to the best doctors you can find, particularly at centers of excellence, like major universities. And continue to have hope.

      You are wrong about no woman wanting to be with you. I was with many women while I had my problem. You have a tongue and fingers that will also satisfy a woman.

      A woman who wouldn't want you because of that problem isn't worth a damn. There are others......

      Neal

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    • Posted

      Hi Boris ( and unclefester ),

         First of all, I wouldn't worry about girls right now since you most likely have gotten infected by a girl, maybe not. What you have to do right now is start working on yourself in trying to find a way to bring your symptoms to bay. I wish there was an easy answer for this, but there isn't right now. Maybe someday when the medical profession realizes this is a problem will this thing be brought out into the light where it Truly BELONGS. 

        I have tried everything so far that there is to try. BUT I do not give up hope. I have been where you are with the depression and thinking no one cares BUT I have myself and realize that I AM a pretty nice person AND so are you. You have to read up on it, since the urologists will not help you I'm sorry to say. Antibiotics will not do the trick, they will only weaken your immune system. Right now I am looking for specialists who deal with or in prostatits. I am going to try a specialized Dr, who will take an MRI, possibly a TRUS and do prostate massage or injections. I would advise you to turn your attention in these directions and go with a GOOD qualified DR. who will work with you on this terrible disease and get us back to normal. This is my advise, Boris. I will stay in touch with you if you would like. 

         Stay strong, don't let depression overcome you, talk to people on this site;; You are NOT alone. Many men have this. Whether or not it comes from sex, we do not know, but there is one thing that I have found out. Frequent masterbation does not help the condition, it tires the prostate out. AND sometimes the prostate DOES need a rest.

         Good Luck, Boris, do not give up hope and I will stay with you as well as unclefester and anybody else on here who knows about Prostatitis. We (all of us) have learned to help each other and so will you my friend.

         Please stay in touch with us.

           Steve

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    • Posted

      Steven I'm curious, how do you know you have prostatitis? When my ordeal started, I had classic prostatitis symptom. Yet I've had 2 uro's tell me its not. I have a new uro now but I'm leaning towards HOLEP surgery to relieve my symptoms. I'm 59 so I'm not worried about RE like

      Boris I don't have any answers for you. You're young so you have that going for you. Research all you can on the internet. Diet can have effecys on the prostate. Stay away from alcohol, caffine products, spicey foods. Find a doctor that will listen. Stop having sex and masterbating ( I know thats difficult ) 

      Do you ejaculate or pee blood?

       

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    • Posted

      Hi unclefester,

         Thats just the problem. Doctors tell me I have Prostatitis but know one has actually proven that i have it. That's why I had the TURP, I thought it would relieve my symptoms. I did have an MRI done which supposedly showed symptoms on the transitional lobe. The report says this could be scarring related to chronic prostatitis. Do you know anything about this my friend? Wouldn't I still need some prostatic fluid taken or some kind of test that shows if it REALLY is prostatitis. I don't know if I can rely on an MRI or not.

         Steve  

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    • Posted

      My understanding, (I'm no expert ) is prostatitis doesn't alway show up in prostate fluid ( the it would be called non bacterial prostatitis ) I guess then you're just looking at an inflamed prostate. None of my uros ever took prostate fluid the check for bacterial prostatitis. I think that urologists just go the route of surgery when they hit this wall. I started taking curcumin for my inflamation but didn't follow through with it. I just started taking it again. Here is an article about it:'

      https://bphnews.com/2015/10/23/possible-bph-therapy-seen-using-curcumin-dietary-supplement/

      When my 1st uro did a cystoscopy on me he said my prostate was swollen and inflamed. He suggested TURP and I figured thats what uro said would fix things so lets do it. Then, ( I think by the grace of God ) a scheduling conflict at my job made me postpone the surgery. Then I started researching more deeply about other ways to rid myself of this. I feel IF I have to have surgery I'm going with HOLEP. Problem is I'm not conviced that I don't have prostatitis. When my prostate ordeal started I had minimal symptoms. I went to work one day and peed tremendous amounts of blood. I mean lots of blood. this lasted for ~ 10 days. Prior to this I had minor prostatitis symptoms I ignored: Pian around anus, pain in perinium area, painful orgams, burning urination etc. but nothing that sent me to the doctor. If I had gone before the big bleed I probably wouldn't be going down this road. Anyway, I had another severe bleeding episode 3 months after the first one. I've been on fernasteride and flowmax since the second bleeding episode. I've had 2 minor bleeding events ( pink urine a couple of small clots ) since being on the drugs.  I mentioned prostatitis to my uros ( I've had 3 ) they all say its not prostatitis it just BPH because thats what happens to men in their 50's. 

      Truth be told, right now I'm barely a candidtae for surgery. The drugs have worked well. My only symptoms right now are a weak stream only when waking at night to pee. During the day I pee with a good stream. I also have occasional discomfort in the perinium area when sitting. Thatnk God I haven't had a severe bleeding episode since March 2016.  I'm going for another cystoscope this  Dec. This is a pre surgery test. Depending on what doc sees I decide on surgery. I think He is subtly trying to steer me away from surgery. 

      Sorry if this post is a bit disjointed. I've typed it over the course of a few hours

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    • Posted

      Steven I answered yoru question but this stupid website deleted it because I had a link to a curcumin/bph/prostatitis study. I don't have time right now to rewrite everything. 

      My understanding is prostatitis does not always show up in prostate fluid. I still think I have prostatitis, but I've never had a uro ( I've seen 3 different ones ) take prostate fluid. I had classic prostatitis symptoms yet they treat me like I have BPH. My present uro is better but I don't have time to write about it.  Google curcumin BPH you'll find some info on the anti inflamaory qualities of curcumin. For the record, I'm not a holistic nut job. I'd rather take real drugs that work than take some mumbo jumbo crap some witch doctor put in a pill. But I do trust independant studies. 

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    • Posted

      Hi unclefester,

        I so much appreciate your responce to my question. I have to make a short trip outside my area today but will respond to you as soon as I am able. I always let people know if I can't respond to them right away that I am not trying to ignor them.

        Thank you so much my friend. Will get back to you soon. Prostatitis is something we all need to talk about.

        Steve

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    • Posted

      Hi unclefester,

          I went to my new uro yesterday and he is going to try a couple of things. First of all he is going to put me on Doxycycline and Uroxatral and I am going for some blood tests for a number of things and a CT scan of the abdoman and pelvis. We'll see what happens. I HOPE good things will come my way. I'm Sick of this. 

          Steve

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    • Posted

      I'm curious, did your uro say what he thought might be seen in a CT scan? I've had 2 of my prostate, bladder, kidneys. The only comment was that my prostate was enlarged. No mention of how enlarged or other things they may have seen.

      Apologies to the board moderator. The post I said previously was deleted has now been posted.

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    • Posted

      Hi unclefester,

        No, he didn't say anything about that. I'm just hopefull that somebody will have an open mind and do something to help me. It's been a long time. I would like to reclaim my life back once again. We wil try doing it the Drs. way and see what happens.  I would hope, Bane you are looking at these posts and seeing that we are all trying to help each other.

       Steve

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