Chronic recurrent Shingles SOLUTIONS

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Lots of info from people with this ongoing problem. Please post SOLUTIONS 

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  • Posted

    Ochio here ... Over 12 years, I have had numerous recurrent episodes of Shingles on the top of my head under my hair. It was not diagnosed correctly because out of 11 Dermatologists, an infectious disease Doc and Pain Management Doc ALL said it couldn't be Shingles because it is on both sides of the midline of my scalp and as they say "Shingles are usually on one side of the body" (NOT). So I was never treated or assessed properly. When the excruciatingly painful deep rash did not go away after a YEAR ... a Dr. friend suggested I get a biopsy. After full assessment ...the biopsy showed only  as active Shingles (a year later). I continue to experience a resistant attitude" every time I see a Dermatologist. The rashes remain long periods of time and don't heal quickly ... the scabs are so DEEP. 

    After that first outbreak 12 years ago, I have had maybe 4-5 outbreaks and they last months ... awful. I have had to take lots of prescription pain meds which aren't that helpful for nerve pain. My state has just passed a legal medical marijuana law and I have been taking it. It seems to be helping a bit, but am told that it can take months to take full effect.

    So YES ... it can recur AND it can appear on both sides of the body. Any Dr. who disagrees with this is NOT keeping up with medical findings.

    I am 65 years old and otherwise very healthy. I am NOT immunocompromised. Stress is an absolute trigger ... I have had to work very hard to keep stress down. Sun is another trigger ... plus heat. A few hours in a kayak WITH a hat on was enough to trigger months of misery with another outbreak. In Fla., just sitting outside under a covered roof made it start flaring up. So this Fla. gal lives in a/c and always wears a hat.

    The antiviral medications do not seem that powerful for me but I take them anyway. On the maternal side of my family there is a predisposition to Shingles ... but otherwise, they live healthy lives into their 90s. When I explain this, Doctors seem to "get it" that I have a genetic weakness and this is the cause.

    I have pursued many options and practitioners with little help. I've spent a ton of money and problem still remains. My hope is that the CDB in the legal medical marijuana will build up in my system and not only resolve the pain ... but strengthen my resistance.

    I googled what is a natural oil that is closest to skin oil. My poor head is so dry and damaged. Jojoba was the consensus. I bought organic jojoba oil (Made by Badger products ... look in Amazon) and have saturated and softened my scalp with it on for 2-3 days. It is very soothing.

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  • Posted

    I'd love a solution!

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  • Posted

    Diet works the best for me. I have been struggling with this for 3 years. I am now off all meds and am managing it much better by diet and supplements. Look up Anthony Williams, medical Medium. That's the way I eat! I still have had 2 episodes since January, but they were a 3 on the pain and intensity compared to my usual 10. My days in between are much better too! My quality of life has drastically improved. I'm hoping in time I will be symptom free and rid my body of this horrible virus. God bless

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  • Posted

    Thanks. I have had shingles, virtually nonstop for 4 months. I've done multiple courses of Acyclovir, and can t tolerate the other antiviral that was prescribed.

    At UCSF term clinic, the lead MD refused to renew my script, insisting they were ingrown hairs!!! Omg, I could Not believe it.

    Many have told me that it can't be shingles, because it doesn't keep coming back.

    Thanks again

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