Chronic Sacrialic joint dysfunction

Hi Caroline, I am sorry to hear you are in so much pain. You have had an awful time and it's no wonder you are down. I am sorry I am not responding with a solution but when I was at a pain clinic some years ago the nurse said "The nerves can re-route themselves you know" This had quite an effect on me and I started to visualise the nerves taking a different, pain free route. I can't say it cured me but it did make a difference to my pain level.

I dont even have a diagnosis for what i have but a lot of pain around hip back and leg! Some days are just worse. Can you get into a swimming pool? I Just went this morning as i was feeling a lot of pain.

I only walked really around the pool just to get some muscles moving. It was actually nearly painless. May have just been passing the time for a few hours and occupying your mind.

I know your feeling! its tough

Hello, fist of all, I am a retired MD. I don't have a specific answer for you because you are very complicated and I don't want to guess about the exact cause of your pain. Thinking about the anatomy, since all of your lower back problems are located superficial or close to the skin, why not try a topical cream which is easily absorbed and can treat the pain directly? I have chronic back problems and have tried all forms of therapy. Most things work for a while but I have been supplementing all these conventional medical treatments with topical creams and ointments and am amazed at the results. The simplest and least expensive one is DMSO but you can find many alternatives on line and on Amazon. I could give you a list but the moderator will likely void this entry. I like the one that sounds like penetrate. Everyone is different , so you might have to experiment.

I have tried all the Lidocaine patches and they are all the same. They numb the skin but don't seem to be able to penetrate very deep. I still have some but don't bother with them any more. The Penetrex cream is the best for me and I combine it with DMSO. I suggest you give these a try. I have tried putting these on other areas which are painful but are not deep and they seem to work very well.

so sorry you are facing so much. I am curious about your abbreviations ie sijd, fbss? My best wishes are with you. I also have fusions L 3,4,5 S1, have nerve damage. have had every procedure available plus a nevro implant. Still have to use opiate medicines to have any kind of life. I had to adjust my thinking about these medications and realize they were my only hope of some quality of life. I do not abuse them in any way and have learned to be grateful for the quality of life they allow me to have. You are fighting for your health, think if yourself as a full time warrior who has to fight so hard for a quality life. Allow yourself all options that are available to you. I am sending hugs.

I am sending you hugs and many best wishes are incoming too. This is such a life changer and its a big fight everyday to keep positive energy around us. You are in my thoughts.