Chronic Urticaria
Posted , 75 users are following.
Hi I hoping I might get some information on this condition as my GP knows very little on the subject.
I'm a 30 year old mother of 2, I live in Derry, N.Ireland. This is not my first time having chronic urticaria, 7 years ago i had it for 5 months and then it just went away. At the time i was told by dermatologists that it was more than likely the pollen, which i found very odd!!! I've never had hay fever or been allergic to any thing before in my life. I have now had chronic urticaria and angioedema for the last 11 months and it's showing no signs of improvement. I'm having very little luck with antihistamines and am put on steroids every 4/6 weeks, starting at 40mg and working down over a 3 week period. No allergy can be found, my bloods have all come back normal. My skin is covered there is not one piece of my body not affected and it is sever at all times day and night. I have had to go to A+E with sever swelling of the lips, eyes and mouth. I actually have hives on my eye balls!!!! My joints are now starting to swell and in the last week I have been unable to drive due to swelling of the back and neck. Stairs are becoming a real problem because my skin around my knee joints swell so bad i look like an elephant, the skin is very red, warm and painful. I desperately need help I'm finding this very difficult to cope with and family and friends are tired listening. Every time i go to my GP he shrugs and says \"it's awful but there's nothing i can do\". When i can appreciate that this is difficult for him to know what to do i feel like I've been put on the back burner. Dermatology in Derry refused to see me this time saying \" we don't deal with chronic urticaria\", with that my referral was sent back to my GP.
Any help or advise please.
6 likes, 133 replies
dawndd Little_Flower
Posted
I know this is an old post but here's my story and what works for my CIU. A little over two years ago I went on vacation and woke up with terrible arm pain and swelling on my lips and face...I thought bug bite or even considered going to ER think stroke because half my face was droopy and swollen but I took Benadryl, which didn't help and got thru vacation. Then the Hives and Angioedema I suffered for a month before I went to doctor because my skin was so scarred from scratching. She says it must be stress put me on anti depressants..... then I show up a few weeks later see a different doctor and he gives me steroids..I hated them but MIRACLE I finally had relief. After my 2 weeks were gone the hives came back with a vengeance...got more steroids..relief...then I called same doctor office at the end of that dose and was told they can't help me anymore because I cant keep taking steroids...I make an appt. with a new practice and she refers me to a specialist who gave me a million kinds of antihistamines and took blood...antihistamines didn't work I called crying because I could sleep or stop itching and I was feeling as though I would rather be dead than live like this because It's debilitating. Finally, found out I have CIU and since no other treatments worked let's see if my insurance will pay for xolair...VERY EXPENSIVE..insurance took awhile but it's kept my symptoms at bay for over a year.. I need monthly shots and my body lets me know every month because those darn hives come up if I don't get my shots.. anyways Xolair worked for me I have a HUGE co-pay except I found a site that pays all my $1500.00 up front and then I pay $5.00 copay monthly and I get $10K towards the cost..not sure what to do when it runs out but it's working for me now...
cindy09985 Little_Flower
Posted
One day, I sat down to think about my life and was scared it could be life threatening for me. And then I remembered the creator of the universe. The one who create the blood and water, the one who formed us in his own image, the king of all kings, the alpha and omega, the one that knows the beginning from the end. And so the spoke with my creator to take away this hives and asked for forgiveness of sin. I prayed into water that he should turn the water to the blood of Jesus and I drank it with faith. I did that for two to three days and so my healing began. Like joke the itching reduced, redness and swollen reduced gradually and here I got healed permanently.
I got healed I thank God. For you to enjoy the benefits of healing. You have got to re- trace your step to the maker. Jesus Christ. He alone can heal completely because he is the creator. I beg you that is reading my story. Kindly accept Jesus as your lord and Savour. This are end times. All sought of things are happening everywhere. Making heaven is imperative so as not to go to hell. Everything the Bible talked about the end time are happening.
Jesus loves you and came to die just that you and I may be saved and inherent eternal life. A simple prayer as lord Jesus I know I am a sinner, by your mercy kindly forgive me, I accept you as my lord and Savour with my heart and my mouth I confess you are lord over my life.
It that simple. God bless you as you make the right decision today.
mary98479 Little_Flower
Posted
anne0647 Little_Flower
Posted
I developed what was diagnosed as chronic (lasts more than 6 weeks) idiopathic (cause unknown) urticaria (hot red rash and hives) just over five years ago. The only thing that fixed it almost immediately was a cortisone injection. When it flared again recently after about a year's remission, cortisone fixed it for just twenty-four hours! Prednisone never worked. The only over-the-counter antihistamine that would stop it in its tracks was Xyzal (levocitrine dihydrochloride 10mg). Even they aren't working at the moment. I stopped taking them but after having read posts here about doctor's suggesting upping the dosage of antihistamine medication, I have just taken three. It is after 1am and I just can't get to sleep with the itching and scratching. I'll let you know if it gives me any relief. I am also going to try the Urticaria Diet. Wish me luck and thank you for sharing. Like others have shared, GPS, family and friends are just so over it. I get the feeling that they think I am just not trying hard enough to figure out what is causing it.