chronic urticaria and delayed pressure urticaria

Posted , 14 users are following.

I have had chronic urticaria for nearly 12 months now - well this episode - it started in January 2006 after taking a drug called metformin - or so I thought - i have seen several consultants, been in and out of hospital and today have been told it could be delayed pressure urticaria. I am on telfast in the morning and zyzal in the evening - i have tried ciclosporin which didnt work at all. When I have a bad attack - (which means worse than usual as i have had it every day since last october with no break) I get shakey, shivery as my body is trying to cope with the heat from all the rashes. When i get excited, stressed, not enough sleep, my period, ill, exercise, hot, alcohol it gets worse so most of the time then!!!! i have now been suggested to use sulphasalazine - has anyone else tried this? I am taking steroids but 8 x 5 mg for 3 days only to try and get it under control - i have just been in the car for 7 hours to get to my specialist appointment and that has made it go like mad!!!! - has anyone heard of any connections with stomach problems and urticaria - I seem to get bad diarrahoa when i have a bad attack and it all started when i had a sickness and diarrahoa bug in December 2006. Does anyone have a link with periods? I have a lot of periods and have endometriosis and polycystic ovaries and wondered if anyone had the same and had urticaria - people with this terrible disease need to keep finding out more information as I do believe there is something that causes it - whoever finds it could become a millionaire! there must be more to life than taking drugs which in the long run will cause something else!!!! Any suggestions or comments welcome - all the best to all you itchy and scratchies out thereXXX

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  • Posted

    Hi, have you tried going gluten free? I did and my symptoms disappeared within two days. If I eat any food which contains gluten the symptoms return. I'd rather be gluten free though.

    • Posted

      Hi John,

      Can you please further explain your symptoms before they subsided?

      Thank you.

    • Posted

      After standing for a short period of time or walking, the pads on my feet became swollen and painful about 6 hours later. The same with my finger end pads and the pad at the base of my thumb once again about 6 hours afterwords. Usually from using garden tools, screwdriver, power tools etc.They remained swollen and sore for about 48 hours after which time they became normal. Whilst the were swollen I would suffer occasional sharp stabbing pains similar to peripheral neuropathy (my father was diabetic so I knew about that). After an episode I would feel drained and tired.

      At the initial onset the left side of my tongue swelled up one morning and after about 30 minutes started to go down but the right side then started to swell.

      on another occasion my lips swelled but this was in the early days. I also had marks where a nurse held my arm whilst taking a blood test when I had the initial bout.

  • Posted

    Hei,

    I understand you I had the same 5 years ago, do you ever hear about the transfer factor???? 

    If you try it, you will never let it go !

    • Posted

      Hi Roxana

      I must admit I have never heard about the transfer factor and will see if I can find out anything about it.  How has it helped you?  Thank you for writing as I am still looking for a cure.

    • Posted

      I have had a quick look and was a bit concerned about it saying it’s possibly safe. Something about diseases that come from animals. Don’t think I will be trying it any time soon. Unless I’m getting it completely wrong.

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