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hi, posting for any support and info! I have been suffering with CU for last 7 months - it originally began with what I thought was an allergy to my daughters guinea pigs - had hives on 4 occasions when holding them and one occasion had sever lip swelling, however blood tests to guinea pig hair came back negative! Now wondering if the cause could be hay or chemicals used to fertilise the hay. Anyway, since then I come out in hives all over upper arms (never anywhere else) around 2-4 times per day. Originally x2 daily certirizine helped, after a few weeks stopped helping, then tried cimeditine with cetirizine, again worked for 2 weeks then stopped, dermatologist prescribed high dose of fexofenadine 180mg x2 per day and hydroxozine 25mg at night... and guess what? worked for 2 weeks then hives came back. Have had 5 blissful days on steroids inbetween as I was at a point where I could no longer cope - I am back at that point! Finding it utterly debliltating, Im knackered and grumpy and also suffer from pretty bad atopic eczema which flares horrendously with the CU. I am back at dermatologist next week and when i asked last time about the plan if fexofenadine failed they said would most likely be cyclosporin - I am at a point where I am more than happy to try this and am fully aware of potential dangers of taking it, but I fear I may become depressed if this carries on!
Has anyone else taken cyclosporin for CU? Also has anyone had an ASST test? I understand this is usually to confirm auto immune CU.
Thanks in advance
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