Chronic urticaria everyday for nearly two years

Dear Sabrina

Sorry to hear of your woes. Looks like a number of ppl on this forum share the sale problems. For me really a dietary change has improved things slightly. Xolair has worked extremely well and wiped out the problem for the duration of the injection. So I advise you get that treatment. My practionner has stopped the injections after six months and the hives have come back so I am waiting for the next cycle of injections which should start very soon hopefully. Pending that I am taking 10 to 30 mg of corticosteroids and it works ok though I dread the secondary effects more than those of xolair. I hope this helps and that you can get better soon. But do look at low histamine diet on the web, see a nutritionist if need be. Also change clothes style and practice sport that did help me. Eg running 10km wipes out all hives for 48h in my case. Kind regards 

G

I'm sorry for you Sab.rin.a but you've come to a good place for lots of support from people who know exactly how you feel!  For me, nothing stopped the break outs until I began monthly Xolair injections.  I continue to take an antihistamine for maintenance every day or two, but basically, I have not had a break out since about my third month on the injections.  Ask your health care provider to consider giving that a try...... I hope the Xolair works for you...God bless!  

Hives are such a terrible thing to endure! I kept a daily picture diary of my hives(had them 24/7 with no relief) to take to the specialist (took 5 months to get into see him), tried acupuncture, every OTC antihistamine, prescription antihistamine including montelukasat, alkaline pills,  zantac, steroids, gluten free exclusion diet,  --- nothing helped. Specialist looked at pictures and said it was not an allergy to anything, blood tests showed nothing but a slightly high IgH(?). I continued with my social life as I figured it was going to be my life from then on. However a friend told me about Xolair and was lucky to get referred and shots paid for by er insurance--have had Xolair shots monthly for two years (just extended to every six weeks) and it has been a miracle for me.- no side effects Hopefully you will given an option to try Xolair - it has worked for many people. Wishing you itch free skin.

Xolair seems like the common census, which is interesting as it hasn't ever been an option given to me. I'll definitely push for this! Though I've seen things about bad side effects?

Call your MD ask to try Doxepin in a low dose 10 mg 2 hours before bed is what I have been doing since I was 17 and stricken with Hives severe acute cold induced Urticaria head to toe. With out it my life is non existent! Please try it out it is how I live with controlled hives I can't miss one day or they come back. I will be on the Medication for life but at least I can cope.Good luck

Hi sab.rin.a

So sorry you are having such an awful time of it. I think it's safe to say we can all relate to your experience one way or another. I have had my own story to tell, which is listed on this site somewhere! The long and short of it was that my chronic urticaria was connected to my contraceptive coil - the Mirena. It was insitu 18 months before the hives started and it took a further year of daily hives for me to make the connection. It has taken another 2 years for recovery. I now only ever get a few tiny ones very occassionally but I can cope with that as they respond to piriton baby or citirizene.

The key is identifying the trigger and eliminating it. I do hope you manage to resolve it and please do not give up hope.

Best wishes x

Hi,

Try also taking a natural supplement

Brand is oriental botanicals

Product - curcumin

Really helps a lot and stops me b.v from using strong medication all the time

So sorry to hear you are going through this.  I had chronic hives for about 12 months in high school (many years ago), and then they just went away.  They started again this January, and I was a MESS.  I was desperate to find the allergen that was causing them, taking 6 zyrtec, 2 zantac, probiotics, etc everyday. I was doing extreme elimination diets, convinced my house was full of black mold.    I went to an allergist/immunologist and he said "chances are these are autoimmune and not caused by an external trigger."  He did a blood tests - high affinity IgE receptor antibody level. It came back extremely elevated. Basically, my understanding is, if you make this antibody, your body is attacking your mast cells, which release histamine and cause the hives.  He started the paperwork for Xolair, but also gave me Singulair to try.  I was desperate to try the Xolair, but miraculously, the Singluair has worked 100%.  If i take it everyday, I do not have a single hive.