Chronic vulva problem, any help welcomed

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Hi,

I'm fairly desperate. I've seen 2 specialists (twice) and countless GPs and nobody has managed to diagnose my vulva problem. It started 18 months ago with little lesions on the inner labia, and now it's just one sore patch that will not heal and itches constantly. It's like the skin is missing from a patch half the size of my little fingernail. I am using very thick barrier cream at the Dr's suggestion but it's not going away. I can't have sex, it hurts too much. I've tried Dermovate cream, Canesten, Oestrogen cream (I'm 47 so they thought perimenopause may be the issue), I've had a biopsy, tested for every STI, tested for lichen sclerosis and lichen planus and it's not cancer nor any of the others. It just will not heal, no matter what I do. Have worn cotton pants, have scent-free baths, use prescribed shower gel, etc. I am at the end of my tether and seemingly, the Drs have run out of ideas. Please, does anyone have any idea what could be causing it? I have a mostly vegan diet and stopped drinking (I drank moderately) 4 months ago. Any suggestions very welcome indeed.

 

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10 Replies

  • Posted

    Have you tried prescription strength Hydrocortisone cream squirt a little Benadryl  cream in with it mix  and apply twice a day for like 3 to 5 days?
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    • Posted

      Hi- thanks so much for the suggestion, no I haven't as didn't know if could use on broken skin. I'll ask the GP about this possibility, many thanks 

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  • Posted

    What do the lesions look like? I wonder if they may be in a place that if nothing else works maybe surgery to remove the tissue would help? I understand constant chronic vulva pain too and it drives me insane too. I can try and do research and see if I come up with something for you. 
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    • Posted

      Thanks so much, I really appreciate it. At first they were like small cuts, but now those have healed (or been cauterised) and the remaining sore is larger and to one side of inner labia, on a fold of skin. It looks just as though the skin is missing- about 3mm by 2mm. It causes a lot of pain and itching for something so small! This has been there for about a year.
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    • Posted

      Does it hurt to touch it? Is the sore seem like it's sunken in or is it protruding? I know you said you have been tested for stds but was herpes one of them? I'm sure it was but I just had to ask. 

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    • Posted

      Hi

      No problem at all- yes it hurts to touch, and neither, though the fold around it is slightly swollen. It's quite flat to the skin. Definitely not herpes, that was one of the tests. It's not ulcerated or raised, literally just as though the skin has vanished on this particular bit and won't grow back. 

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  • Posted

    Hi, it sounds like what had, my was VIN, , its not cancer, I had two lesions which were pre cancerous cells, had them removed last year, I go every 6months for check ups, VIN is quite common, when I first went to gynecologist they didn't know what it was at first, read up on net about vin, hope you get it sorted soon x

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    • Posted

      Also I couldn't wear knickers as they irritated it, I found wearing palanza trousers helped, I had to stop wearing my skinny jeans, even now I don't wear knickers, weird but after operation I can wear my skinny jeans, was also told not have a bath just a quick shower and to get the shower head and do few seconds from side to side on my labia make sure the water is not to hot, are you post menopausal?

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    • Posted

      Hi- thanks, that's so helpful. I will research VIN. Glad you got yours sorted out. I am perimenopausal- 47. I really appreciate you comment, and will mention VIN to the next Dr I see!

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  • Posted

    I had a similar problem for almost 10 years before I found a cure. I tried everything from Doctor's to natural paths and every cream, lotion and potion, I was so desperate I would have tired anything and did!  I found the cure by accident really. Since then I have had complete relief from the itching, burning, redness I told my sister who had menstrual problems and it has helped her. Somehow this balances hormones and boosts the immune system. Let me give you the cure then the story. Black Cumin Seed and Coriander seed  made into a Tea. I bought a book for my ex-husband called " The Prime Diet" He didn't want to read it so I read it. They talked about a tea that helps your body and "primes" it for weight loss. So I made the tea and started drinking it. While it did nothing for weight loss for me, it stopped the itching!!!! When I stopped drinking the tea a month later the itching came back. When I started the tea again within 24 hours or less it was gone!!! Honestly it was like a miracle. I suffered for 10 years countless tests, creams, pills ect. I live in Canada and this is the brand I use " Amazing Herbs" Black Seed which is a 100 percent pure black cumin seed or Nigella Sativa Seeds. I put one full heaping TABLESPOON of this with a TEASPOON of coriander seeds, must be seeds not ground coriander. I put them in a infuser tea pot for 2 hours and then drink. You can also buy the liquid of black seed which gives you an extra boost but it was the combination of both daily that helped and has continued to help for the last 2 years. I couldn't have sex and it was so bad sometimes I would have to put a ice cube on my vagina just to numb it so I could sleep. I don't know if this will help you but if your at your wits end it couldn't hurt to try. Both my sister and I have been helped by this tea for different reasons. If you try it and it works please let me know. So many women are suffering needlessly without any answers. Diane 

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