CIC after 5 BPH operations

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Last month (Nov 2021) after a serious run with AUR, I had my 5th BPH surgery. The first four (going back 20 years) were laser surgery, the last was a TUIP. The surgeon gave me only a 50/50 chance of the TUIP being successful. After the foley was removed I was able to start urinating on my own for all of 60 hours before the shutdown began again. I have been using CIC since September (except for the week after surgery and the 60 hours I mentioned.)

My doctor seems out of ideas and suggested the only option (other then CIC) is a "bladder pacemaker."

I have poured through the internet and can not find a case of bladder nerve failure from BPH. It is usually the result of a spinal injury or M/S.

I would very much like to hear from anyone who has faced anything similar. I should add that I am 73 years old and using CIC has basically become second nature. 2 minutes, 4 times a day.

LDEE

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6 Replies

  • Edited

    @lawrence36690 Man, I cannot even imagine the pain and frustration over all these years. I am71 and complain about having to get up 6-7 times nightly. I have it made, compared to you. I was naïve in the spring, and almost pulled the trigger for Rezume. Please, have safe and pain free xmas.

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    • Edited

      I am mostly frustrated but there is no pain in using CIC (clean intermittent catheters) and it takes about 2 minutes. It' s just annoying. It does not interfere with my life but I do have to my "sticks" with me. My urologists seem to have lost interest and even though the surgery was Nov 22, I have to hear from them to find out how I am doing. Can you believe that? At least you can "go," which is something I guess. Thanks for responding.

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  • Edited

    Why did the previous surgeries failed? Were they done by inexperienced surgeons or you had underactive bladder?

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    • Edited

      The previous surgeries worked- for a while. The last one prior to Nov 2021 was June 2020 and the results were excellent- until August of 2021 when things just stopped working.

      I will see the surgeon next month and see if he has any ideas. Thanks for your input.

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  • Edited

    I have been CIC since 2018 after two unsuccessful surgeries for BPH & lazy bladder. The first surgery was a Urolift (where I subsequently found out one implant is in the bladder neck), and the second surgery was a bladder neck incision.

    Neither worked, but left me having to CIC (I can void but only with 500ml residual volume), and I suffer repeat uti's because of the implant.

    I went for testing to see if I was suitable for sacral neuromodulation (bladder pacemaker), but was told I would need a TURP to stand any chance of it working.

    I'm now used to CIC and there are a few options available that are more discrete than the sticks you refer to, but it's still a pain, and can be difficult and worrying trying to find a suitable bathroom when out and about.

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    • Posted

      I now use CIC in the morning and before bed time. I can pass urine naturally but can not tell if my bladder is empty. So the CIC is akin to gas gauge in a car- it tells me what was left. My urologist says all is good! The 500ml you mention is quite a lot, no? I wish had an answer for you. It seems these surgeries have much less then 100% success for sure. Keep us posted.

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