Posted , 8 users are following.
Dr wants to change me from enbrel. Not any success w that medicine. Mentioning cimzia or simponi anyone have experience w either of those? Wants to continue methotrexate with on every of the two
1 like, 14 replies
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cindy52759 Ozziehall
Posted
Try Remacade, it's an infusion and yes you still have to take methotrexate. Remacade was a miracle drug for me. Good luck!
djinvicta Ozziehall
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esther77657 Ozziehall
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Gloria814 esther77657
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what side effects are you experiencing if you don't mind sharing that info
I am still debating the biologic meds, I guess I should consider myself fortunate that we can afford them since my spouse still works and his company has a good ins policy but i worry about side effects and starting it too soon. Pain is not a huge issue for me/ more so fatigue/ not great sleeping at night but could be age related. I can get by with low dose MTX now and Tylenol but you never know when it's just going to be too late. I also have autoimmune bowel disease --crohns and vitiligo so 3 autoimmune conditions to be concerned about
djinvicta Gloria814
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esther77657 Gloria814
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I also have colitis (they are not certain whether it is ulcerative colitis or Crohn's). The side effects I am experiencing from Cimzia are very blocked sinuses (treated with steroid spray), patches of psoriasis (treated with steroid cream), problems with eyes (steroid drops) and skin on face has gone very blotchy in the sun. I say these are side effects of Cimzia...I suppose we can only assume they are...it is difficult to be certain! My doctor is considering a change to Humira because it is supposed to be better for the colitis situation.
djinvicta esther77657
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Gloria814 esther77657
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Humira was the first biologic choice for me b/c of the crohn's / arthritis together. I did ask about cimzia as I see more people discuss that drug on here but GI doc said this would be a better fit. Many of the antibiotics are not well tolerated by me so I do worry about infections. Sinus infection was a problem for me many yrs ago and it did come every winter
but not in recent yrs
mary76396 Gloria814
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If you read up on Cimzia they use it to treat Crohn's disease too. Could hit both at once!
mary76396 esther77657
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Esther, as I said I am on Cimzia and have not noticed any side effects that I would have put at Cimzia's door, however, I have been having bad sinus problems and patches of rough skin, both started about the same time as the Cimzia! I didn't make the connection. However, they are small problems, and as you say easily fixed, and the benefits of Cimzia are worth it.
esther77657 mary76396
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mary76396 Ozziehall
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Hi, I'm on MTX tablets and Cimzia injections. They reduced the MTX to 1 tablet once a week due to liver problems but so far I'm feeling so much better since taking Cimzia, no side effects and hardly any pain but I do have swelling in hands and feet still. I still feel tired a lot but it's reduced to tiredness not exhaustion. I feel brighter in myself and wanting to do more which I haven't for a long time. Hope this helps.
debbie_39876 Ozziehall
Posted
Hi, I've been on Simponi for 2 years, was taken off it couple months ago.... I found it worked pretty quick... Did have a lot of infections tho, but nothing antibiotics didn't clear up.... Injection was big which made it easier to use.... I loved it until about 7 months ago when it stopped working and all my blood results was coming back high and low.... Only thing that drove me insane was how u store it... Has to be in the centre of the fridge and not touching the sides of back... Other than my problems I found it good
Ilovemypitt Ozziehall
Posted
I started simponi I have had 2 incisions. After the fort one they told me it would be 2 weeks before I felt any relief. Within 2days I felt better. And I was in in a lot of pain. Since then I've had the other infusion still symptoms are staying away and I have great relief! Until I fell down the stairs in the basement. But another story lol.