Ciproxin and tendonosis

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16 months ago, at the age of 42, I took a course of Ciproxin for sinusitis. As a result, I now have chronic Achilles tendonosis in both feet. I am in chronic pain and can hardly walk. I have trawled medical sites for information and have found out that this class of antibiotics is well known for causing tendonopathy - why is there almost no mention of this side-effect in UK? It is a rare effect, but if you are unlucky, like me, it is devastating. I wish I knew not to exercise while on Ciproxin.

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16 Replies

  • Posted

    I was given ciprofloxacin and my post trial tendon tore. I have had surgery on one foot with limited success and will need the same on the other foot. Too scared to have it done. Horrible operation. So upset my GP prescribed the drug ...knowing I had pain in my feet which I suggested could be tendon related.. Limited mobility and constant pain.
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  • Posted

    Hi Linnypinny

    I dont know what to say, although I do have empathy due to multiple problems from taking cipro. I can only wish you well and ask you to keep in touch on this forum,

    John

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  • Posted

    Hi

    Can I ask the person who started this post to provide us with an iodate? Hows things now? Any better, are ou male or female?

    Have you been for further test's, mri etc has this shown anything?

    Best regards

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  • Posted

    That was meant to say provide us with an update. Apologies.
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    • Posted

      Hi Billa

      On you post approximately 4 months ago, you appeared to be recovering ok.  Would you give an update as to how things are now.  Do you know if Emma is back to normal?  For my part it is two years of misery, no improvement.

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    • Posted

      Hi John

      Up and down really. I've continued to bike as well as swimming I don't really know if that as helped to be honest. The worst thing is my heels (around area of insertion of achilles tendon to the heel bone) my knees have started aching as well now if I spent too much time on them. I got referred to a rheumatologist and I had loads of blood tests done - all negative. I even had an mri of my achilles tendons and there's no damage showing so they don't know whats cauisng the pain. They referred me for physio but it's not helped. I'm hoping time is the only healer on the one john. Keeping m chin up though and doing what I can. Its a struggle sometimes with having young kids as I dont get to rest much.

      I've since spoken to two cyclists in uk,  one who's elite level and both are 3 and 5 years out from a reaction to the drug.  They're back racing now but the one was crippled for 12months. It was his bike he used to get himself better nothing else but ignoring the pain and cracking on with things.

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  • Posted

    Haven't heard off email. I did ask on one of her posts a few months ago but didn't hear anything.  Hopefully she's getting better and the tendinitus has resolved
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  • Posted

    It is now 18 months since my post tibial tendons ruptured following ciprofloxacin. The right foot has had major surgery. It was a horrendous experience with no effective pain relief. Can't pluck of courage to have other foot done Still in pain with limited mobility. The surgeon can't understand why I am still experiencing pain. Tried to suggest I had CRPS. Saw specialist who disagreed. It appears very different from the same op following injury rather than following ciprofloxacin. Not many medics understand this fully........does anyone I wonder.
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    • Posted

      Hi linnypinny.

      What was your experience with ciprofloxacin?  How soon after did rupture occur? How old are you and was this the first time you'd had this type of antibiotics?

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  • Posted

    Rupture still worries me. Although I've had an mri and everything looks clean. They don't understand why I'm now having pain in my heels.. I'm only 30 years of age!
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  • Posted

    I am female, early sixties, very fit and active, riding horses daily. Rupture occurred a few days after starting ciprofloxacin. It has ruined my life.

     

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    • Posted

      Im very sorry to hear that. I really do feel for you and everyone else who has had a bad reaction to these tablets. It would seem from speaking to other people this has happened to in the uk that its highly likely some niggles may last with me for the rest of my life. I was a triathlete for a local club and I haven't ran for 7 months now although I refuse to stop doing everything. 

      It woild seem that rupture is more likely to happen in the early months and anything over a year tendon pain or niggles wlmay remain but rupture is less likely. The bottom line is no one knows how to counter act the drug damaging tissue, tendon, nerves etc. Websites advise you to pour all sorts down your neck with things like magnesium, vit d etc but I've been hesitant to shove more pills down my neck woth very little evidence it even does anything. I think it must throw your body out of whack.

      Did you complain to your gp? I really would like to make a complaint however all my bloods and mri have come back normal so I have very little grounds. What I do know is that before taking these tablets I was mid way though trainong for the uk ironman and now I'm doing the least amount of exercise I ever have. trust me if I could pick up from where I've left off I would but if I've been on my feet most the day its a lot of pain.

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  • Posted

    My GP apologised. I am taking legal action. It appears from the small amount of research I have been able to do that everyone is affected differently by ciprofloxacin. I am not sure if anyone really knows everything about this drug.. Hoping whatever action we take will help prevent others suffering.
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    • Posted

      I agree. I have been in two minds about making a complaint to my gp but I'm concious about being branded as a hypochondriac or be diagnosed with some kind of pain disorder when its clearly not. For me, without a clear rupture is a bit of a caych 22 situation the hospital physio said it was bio mechanical pain which I don't buy into as I've since had accupunture and sports massages and each one has said theres no problem with the mechanics of my feet.

      It would appear thedamage is done on a cellular level which just don't show up on scans and tests. All I can is hope for the best. Since this happened I've been eating a very clean diet and barely touched any alcohol but seems to have made no difference. 

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