Cirrhosis of the liver

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I just went to the ER for gastritis and I had an ultrasound and CT scan showing I have live cirrhosis but my blood work for liver function is normal. I also don’t have hepatitis and have never been a drinker. Any suggestions? 

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  • Posted

    So are they saying that you have  cirrhosis? That’s odd to me that all of your liver function tests would come back ok we’re they high at all? My mom had to get a liver transplant was only a social drinker even then really dident drink much but she was on a lot of meds. Are you on a lot of meds? Also her numbers were no where near normal when they did her blood work. That’s kind of scary that all of your tests came back good but yet they still seen that. What did they say the next step was from there?
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    • Posted

      I had all normal blood tests. No other tests that were bad but I have wbc’s and rbs’s In my urine so I have some sort of infection.  Last year I had parvovirus so I’m not sure if I’m over that or not. I also have a history of autoimmune issues but unable to diagnose. I had cancer in 2013 and shingles in 2015. I seem to have very rare inflammation issues that come and go. I also found a lump in my left breast so I gotta figure that out too. Plus the gastritis. It’s too many issues but no doctor treats you as a whole, just the symptoms. 
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    • Posted

      So I follow up with my primary on Friday to see what to do next. I haven’t been on many medications, don’t have hepatitis, and have never been a heavy drinker. I’m freaking out and considering Mayo Clinic. What are the qualifications for a liver transplant?
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    • Posted

      Liza I’m so sorry to hear all of your issues. R they sure I told is cirrhosis it’s very odd to me that all of your liver bloodwork would come back all normal I mean I’m no doc or anything but I did go through a lot with my mom. There r many reasons you could have some white n red blood cells in your urine I’ve had that before I mean just a trace but it’s just because I get a lot of kidney stones. The transplant depends on a lot of things age,health, if someone is worse off then you are. If you have any other questions feel free to private message me.  What was your alt and ast numbers?
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    • Posted

      I think you should mention that you are in the States, this is a British forum and the qualification for liver transplants could be very different. Having cirrhosis does not mean you are going to die (other than everybody does at some stage). You need to ask what stage it is.

      It is perfectly possible to have good blood tests results and cirrhosis, I know from experience.

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    • Posted

      Hello rhgb I have a question sorry this is all new to me even though my mom had it I dident kno your bloodwork could b normal and u still can have it. How did they found out you had it did they do an MRI or cat scan?
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    • Posted

      I ended up in hospital with a brain haemorrhage and suspected liver failure and turned up a nice shade of yellow (jaundice).

      But to answer your question more correctly, by abdominal ultrasound, same thing they do for pregnant women. By your use of the word mom, I suspect that you are in the States, where an MRI seems to be the go to method for detecting cirrhosis. I find from experience and time talking to people (both here and in the States) that an ultrasound is the most reliable method.

      Blood tests cannot show cirrhosis. they can indicate that something is not right, but that is all. If something comes up not right, then the doctors do further tests to find out what that is. If you have cirrhosis because of alcohol, and you give up the alcohol then your tests will all probably come back normal.

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    • Posted

      Ty for your response rhgb. Yes I am from the states I’m always worried because I seen what my mom had to go through. I’ve had a cat scan and mri to make sure things were ok with me the only thing they seen was a mild fatty liver. I do not drink at all my blood tests all came ok like I said I am always worried about mine also because I seen what my mom went through. So I’m assuming I should b good right I see some of these post n then they get me worried again lol. Ty so much for your quick responses
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  • Posted

    Hey Liza, I had cirrhosis with fairly normal bloods a few years back. Mine had come from heavy drinking, but I quit the drink in 2009. I had everything checkout out a year after quitting, and the Doc told me I had irreversible scarring and my bloods were coming back as OK and everything would be fine as long as I didn't ever have another drink. I never touched another drink, but had an accident 3 years later where I broke my leg. From that broken leg I got an infection in hospital and it went downhill very rapidly. The infection spread and started attacking my organs and eventually my liver died, so I was rushed to Cedar Sinai as it was the nearest transplant centre. I was put into a medical coma, and 6 weeks later I was fortunate to get a liver transplant.

    I was a bit confused as I knew I had cirrhosis, but my bloods were relatively normal. Post transplant, the doctors said that it was "some form of dormant hepatitis" that had been roused by the infection in my broken leg.

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  • Posted

    So I have cirrhosis, diagnosed by gastroenterologist but bloods were sent to genetic testing and found I have Haemochromatosis, which is iron overload, it’s hereditory but even GPS unaware as 1-200 people have it and it’s not generally tested in ‘full blood’ tests, only for anaemia. I suffered fatigue, joint pain arthritis , degenerated factor joints etc etc . I was fit so looked good but they said years ago it was JUST a virus. If only it were tested for iron overload in the ferritin test!!!! It could have easily been managed and saved me from cirrhosis. I’m 61 & was only just tested last year!!! It’s genetic so have had all my life. My dad died young & Mum has no symptoms but they gave me the genes unknowingly as it was never tested or even heard of. Get all tests that you can. Blood will tell almost everything

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  • Posted

    Liza, you might ask your doctor to test for an Alpha-1 antitrypsin deficiency. It is a genetic condition that can damage the liver and lungs, and rarely it can cause a skin condition called panniculitis. Genetic testing can confirm Alpha-1, but a blood test to detect how much of the A1AT is circulating can be done as a part of regular bloodwork. Some people have the condition and never have symptoms, but others can need liver or lung transplants. A1AT is a protein made in the liver to protect the lungs. A genetic mutation causes the protein to get trapped in the liver, causing damage to one or both organs. Check out the Alpha-1 foundation for more information. If you have a family history of liver or lung disease, especially if not caused by alcohol or smoking, Alpha-1 might explain it.
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