Ckd

A few things to consider:  first off, my understanding of GFR is that it is an estimated value, and one that fluctuates from day to day to boot.  It is based on an average "human" - eg. your average male / female of a certain average age and a certain average height and weight (etc etc).  As such, it is a guideline at best and should be considered as such.

Once you understand that, you understand that people have different symptoms, and at different levels of severity, based on their own personal characteristics.  For example, younger / healthier and taller patients may not start to experience symptoms until (for example) their creatinine gets up to 400's, while others may start feeling it in the 250's.

My own example may help to illustrate.  I was diagnosed with kidney disease 17 years ago, and I watched my kidney function gradually decrease over that many years.  At the point where my creatinine was at 230 or so, I, like you, did not feel much in terms of symptoms.  Certainly I started to notice the odd leg cramp at night and an increase in leg itchiness during the winter months, but that was about it.  I am a younger person, 6' 2" male and I was going to the gym twice a week so I was keeping fit.

By the time my creatinine was in the 400+ range, I was definitely feeling it.  It crept up until my GFR was estimated at 7 (yes, 7!) and at that point I finally threw in the towel and got started on the path to dialysis.

I hope this perspective helps, and I wish you all the best.

Unfortunately I can't provide an estimate for you.  Our kidney conditions are different (mine is IGA nephropathy), but even if they were the same it is difficult at best to say "you have X amount of time until dialysis".

For example, my nephrologist told me that people with IGA nephropathy generally go from diagnosis to dialysis within 7 to 9 years.  However, the speed at which your kidneys decline is based on a wide variety of factors, including age; how closely you follow dietary guidelines; whether you engage in certain nasty habits eg. smoking, drugs, excessive alcohol; whether you have any additional conditions eg. diabetes; etc etc.

In my case, I was conclusively diagnosed at 29 so I was young => advantage #1.  I was fully aware of my condition long before it got out of hand => advantege #2.  I closely followed the dietary guidelines (limiting salt & protein etc), avoided MacDonalds-type junk food and I don't smoke or engage in excessive drinking (barring any once-in-a-blue-moon partying!) => advantage #3.  I consistently keep fit, going to the gym twice a week, which has successfully controlled my blood pressure => advantage #4.  I participated in a clinical study in 2005 which sought to verify whether candesartan - a blood pressure medication - could also provide a benefit to kidney patients by limiting the amount of protein excreted by the kidneys, thereby adding some extra protection to the kidneys.  I reacted positively to this medication and switched over to it.  I don't doubt it contributed to slowing the decline in my kidneys => advantage 5.  And so on.

All told, I was able to parlay an extra 17 years out of my kidneys, and only just recently (within the last month) made the decision to finally start dialysis; my creatinine was up in the high 700's.  You are young, and like me you are fully aware of your condition and how to manage it - it wouldn't surprise me if you are able to achieve similar results, perhaps even slow the decline entirely.

I hope that helps.  Good luck and best wishes. Creatinine of 205 is actually not bad (at least it wasn't for me), I remember the days of 205 creatinine fondly...