CKD Stage 4

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HI, My name is Deborah,

I have been diagnosed with the above. I have been researching but would like to talk to someone who is going through the same or has been through the same

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  • Posted

    Hi Deborah

    There are really good support groups for patients with chronic kidney disease. These include the National Kidney Federation and the British Kidney Patient Association. Hope these are useful.

    Tarun (hospital pharmacist)

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  • Posted

    Hi Deborah,

    I have been told in the past or seen it in reports that I have CKD and am on 16 mg amias daily to deal with high BP. Recently had an abdominal investigation and the anaesthetist said I could not have a general anaesthetic via mouth because of the state of my neck and my kidney function! I asked what was the matter with it and she replied "bad" I asked " how bad" and she answered " it is not good". She also told me not to drink tea because it is a diuretic.

    I still have quite a bit of pain and am wondering what to do next., if anything.

    I have to return for post op assessment tomorrow, but it is a colo-rectal clinic so don't expect to get any feedback other than on my op.

    So far nobody has said anything apart from the fact that my kidneys are not functioning too well, but since I am a sole carer for my elderly husband I want to do everything possible to help myself.Any suggestions?

    Jenny

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  • Posted

    Hi, I am diagnosed with CKD stage 4 and would be happy to talk to you
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  • Posted

    Hi, I am not sure how bad I am, but am having the result of latest blood test on Monday. My old doctor was worried because of hospital comments, but the new is keeping quiet until she sees what is going on.

    I really know nothing about CKD just that you cannot reverse it, but everything wears out in time! Is there anywhere where I can find a comprehensive explanation of what it all means?

    I am now on candersartan and monoxonidine for my high BP which is refusing to drop.

    Jenny

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  • Posted

    Hi

    I have CKD3 (Chronic Kidney Disease Stage 3) and just one kidney.

    Am under a renal consultant for treatment for my high BP which went off the screen after the stresses of serious family health events in the last 18 months.

    Took Amlodipine for 2 months but came off it due to swollen ankles and uncomfortable legs. Then started Adizem XL (Diltiazem) but although it has also caused swollen ankles, it has failed to reduce my BP to normal so Ramipril has just been added.

    Jenny - have you had an MRI to check whether the arteries to the kidneys have narrowed, as I understand this can be a cause of high blood pressure not responding to medication?

    The consultant has said that my kidney function will deteriorate further initially but will be protected by the Ramipril in the long term - having difficulty getting my head around this, fearing the worsening of my CKD.

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  • Posted

    Hi,

    I am 27 years old, I have CKD stage 4, I have a 4 month old baby which has affected my kidneys even more so, I was stage 3 prior to having him, before I had my son my kidneys were 20cm enlarged and now they are 30cm. My bp is controlled through losaratan, nifedipine and bisoprolol.

    I am happy to talk to anyone who has any questions, or would like to share info

    Thanks

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    • Posted

      My sister is said to have stage 4, but has no symptoms, besides tiredness.  They went by her bloodwork.  She does not want dialysis.  She is older, 81, but still.....  How r u now?
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    • Posted

      Hi,

      I'm 28 years old and have CKD stage 4 disease. I have a 1 year old and prior to having him was at stage 1. I would really appreciate someone to talk to in a similar situation.

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    • Posted

      Hi im deanish..i dont know too much about this condition but i had problems with my blood pressure an when i did some tests in october 2015 it showed kidney damage.my creatinine level was 1.8 my urea was 97.9..i was devastated then they took me off some meds an it went down to 1.4 then 1.3 in 2 mths time..then in april an may it went up too 1.7 an 1.8..i know that im not in a situation like you but chatting could help me in slowing my progression..
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    • Posted

      Hi

      I am also 27 yrs old with a 6 and an 11 month old baby and just found out that i have stagr 3 ckd and 3 on protein in urine.

      I am so scared and dont know what to do. All the doctor said no salt and low on starchy foods. I've read a lot and as i do i get even more scared. I want to do everything that i can to stay as healthy as i can. I live in California and all my fam does too, and was planning to move to Texas with my kids father where i have no other family. But now i dont even know if i should move or not. Im just afraid. I lost 20lb in 1 month.

      I need advise am i able to eat white meat? I dont even know what can and cant eat. Any advise on me moving to another state? Any advise i will appreciate a lot . than you so much

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  • Posted

    Hello 5545

    That's so kind of you to offer support to others with CKD, especially when you have so much to contend with yourself and at such a young age.

    I would just like to say belated congratulations on the birth of your young son and wish you all the luck in the future.

    MrsO

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  • Posted

    I am diagnosed stage 4 also. I am 58 years young and absolutely flabbergasted by the news... Am having a very difficult time accepting it all...I don't look sick...only exhibit some symptoms... I feel lost... It is as though I have been handed a lot of overwhelming information and don't know what to do with it. I am seeing a nephrologists...my gfr is 27
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    • Posted

      Sorry to hear this Pat-58. My Mum is stage 5 but only found out 5 weeks ago and they say she is too risky for dialysis. It does feel like a lot of overwhelming info, we feel the same. Make sure you catch up with your GP, you kidney specialists and nurse specialists and keep asking them questions about what you can do. Be fully informed so you can make a good decision for yourself. Take care
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  • Posted

    Hi folks

    I was diagnosed with stage 3 CKD. For the past 18 months I have been taking one teaspoon of bicarbonate soda in a glass of water twice a day - there has been no progression since. You won't get better but you won't get any worse - the CKD is on hold. I got this information from a study done by a hospital in London. It works for me and I hope you too.

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