CKD Stage 4

Posted , 26 users are following.

HI, My name is Deborah,

I have been diagnosed with the above. I have been researching but would like to talk to someone who is going through the same or has been through the same

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  • Posted

    Ian, that's really interesting and I have heard that recommendation from someone else with CKD. The only problem for me is that, although I have never added salt to my diet in the past and a kidney consultant has told me not not to add it in the future either because of my high blood pressure. Therefore, I wonder if sodium could be just as bad for my high BP. Do you know what your kidney function (eGFR) reads, as apparently it's quite common for many older people to be diagnosed with CKD3 (a reading of somewhere below 60)? Do hope things continue smoothly for you.
  • Posted

    Hi everyone,

    I see there are quite a few of you now, I have been without the Internet for a while.

    I wouldn't take bicarb if I were you, not with raised BP.

    I also have high BP.

    My kidney function is now at 13, and am getting ready for dialysis, my function was at 15 in Dec, it's getting quite close now.

    I still feel quite well, I do suffer with tiredness, nausea and I also have other health issues due to my kidneys failing.

    Do any of you know what type of disease you have?

  • Posted

    I also have high BP which is controlled by medication. And interestingly enough one of the key meds for kidney disease contains bicarb. I did not want to go on dialysis so bicarb has done that for me. After looking at the study done in London, I thought nothing ventured - nothing gained. God has given us free will to make our own choices and we live or die by them. It's having the knowledge available to make those choices which varies from person to person. To interfere with a person's choice is to interfere with God's will for us. I gathered the information and made my choice - it is up to others to do the same.
  • Posted

    I think it also depends on what type of kidney disease you have.

    If someone asks for your opinion or advice then surely that's not interfering. As for God, we all have our own beliefs ' or not'.

  • Posted

    My belief is to provide information only and stay out of the decision making process. Everyone has an opinion as dogs have tails. Let the professionals and the individual come to their own conclusions based upon unbiased information. I find little objectivity in the term "...if I were you".
  • Posted

    Hello, stabilizing your kidneys get a subscription for bi carbonate of soda and nite the following:

    Sodium bicarbonate is not only an excellent chemotherapy, bringing as it does higher O2 levels through increased alkalinity to the cells, it is also one of the most basic medicines we have for kidney disease. New research by British scientists at the Royal London Hospital shows that sodium bicarbonate can dramatically slow....

    Your kidneys make 200 grams a day, in Oder to neutralize acids. Suggest a more vegetarian diet, and to substitute cheese suggest trying vegan products from a Swiss Company (fast delivery from the Uk office) called Vegusto.

    My husband is at stage 4/5 and this has helped a lot. We are now trying to repair and detox his

    kidneys with Ayurvedec medicine (4th day), will post results after further

    blood tests. He is not on dialysis, and want to stay clear of it. He cannot have a transplant, and he is 71. With high blood pressure.

    Wish you the best, I research this matter nearly every day, the best hope is for the kidneys to repair

    themselves with our help. Right kidney foods are vital, you need to do something right now about what you

    eat and little wine.....none is better.

    Diana

    • Posted

      Hi Diana

      How is your husband doing.. I have diabetic kidney disease stage 4 with a GFR OF 19.. I don't want Dyalysis since I would lose my job.. I live alone with no one to support me. I want to try the bicarbonate.. I do pray you and your husband are well

  • Posted

    Hello Diana

    Your post is helpful especially as it adds weight to ionto's recommendation for Bicarb in his above post. Plus I found it very interesting as you mention your husband, like me, also has high BP.

    Have you been able to confirm with any heart/kidney experts that the bicarb of soda won't further increase the blood pressure please?

    All the best to your husband.

  • Posted

    Hello Mrs O

    “A daily dose of baking soda could help patients with chronic kidney disease avoid having to undergo dialysis,” reported The Times. It said that research has found that sodium bicarbonate can dramatically slow the progress of the condition. The newspaper said that patients given a small daily dose of sodium bicarbonate over a year, had only two-thirds of the decline in kidney function

    The study related to kidney disease research indicates that baking soda prevents a worsening of kidney disease and renal failure in patients already with kidney disease. Baking soda has been shown to slow the decline of kidney function in CKD, according to a study published in the current issue of the Journal of the American Society of Nephrology (JASN).

    My husband has high blood pressure, baking soda was prescribed by our renal specialist and takes 2000 mg per day, at lunch and supper 100 mg. ask your GP....

    Diana

    Good luck,

    Diana

    • Posted

      I am from USA, never heard of the baking soda here.  My sister is in stage 3, is stable, but has many other problems.  She is 81, but has always been active. Now she has weakness in her legs.  Doctors here passing the buck, see this specialist, that specialist.  She cannot afford it.  I am taking her to her Primary doc, and I am demanding she do some basic tests, then if something odd ifound, we will take the next step.  You sure have to be your own advocate with these doctors.  Hope all of you are doing well.
  • Posted

    Mrs O

    That should have read 1000 mg at lunch and super...

    Diana

  • Posted

    Diana

    Thank you so much for your prompt reply. I am seeing my kidney consultant tomorrow so will mention this.

    MrsO

  • Posted

    Hi All

    I recently found a lump in my groin which my doctor says is my lymph, he requested urgent blood test which showed a eGFR of 57 my BP is 149/93, I have to repeat the blood tests in a month, Im worried as Im only 26 and the things I read are not very positive, if anyone can help I would much appreciate it as Im really worried. Thank you in advance.

  • Posted

    I don't think a gfr of 57 is stage 4
  • Posted

    Hi regarding CKD stages, this is from patient view, where they will let you see your blood test results on the

    NHS

    30-60

    Moderately severe kidney damage. This is known as Stage 3 CKD

    15-30

    Severe kidney damage, Stage 4 CKD. Anaemia and bone disease become common problems as kidney function drops below eGFR 25.

    below 15

    This is known as Stage 5 CKD. An average figure for commencing dialysis in the UK is 8 to 10, but

    this varies a lot - lower in some people, higher in others.

    Diana

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