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ckd3

Posted , 3 users are following.

christine30769
christine30769

finally going to the hospital in oct ...first time to be tested..... i asked my dr to refer me after speaking with my local renal department..who urged me to ask to be referred x

0 likes, 14 replies

14 Replies

  • louise5027
    louise5027 christine30769

    Posted

    Why didn't your GP, refer you himself? It's poor when you have to go over them to get the help you may need. You started this discussion with ckd3, is that what the renal dept have told you,as you also said you haven't had any tests
    • christine30769
      christine30769 louise5027

      Posted

      i had gone up many times to dr with concerns ...specially with this tiredness.... so out of coursity i phoned my local hospital... then i went up to another dr who sat and listened ..then said ok i will refer you
    • christine30769
      christine30769

      Posted

      i had been diagnosed with it from dr......
  • helen54849
    helen54849 christine30769

    Posted

    Hi,

    I am interested how your doctor has managed not only to diagnose you with a chronic kidney condition but also what stage you are at without even carrying out any tests.  They stage this condition by carrying out blood tests to check you GFR (your kidney function) to be at CKD3 you would have about 49% function, you don't usually have any symptoms at this stage.  Has your doctor checked your iron levels as you may be anaemic which would explain the tiredness.  Do you have any more information from your doctors visit such as what prompted the diagnosis, you say you haven't had any tests  so on what basis has he made his diagnosis.  I may be able to offer more support with a bit more info.

    I hope your appointment goes well and you get some propper answers your doctor sounds quite poor.

    • christine30769
      christine30769 helen54849

      Posted

      i was having tests for bad headaches which came back clear.. i mentioned that i didn,t feel well so he did some bloods.. one was kidney function..... it came back day after wich i got called into his surgery..which he explained..i have ckd stage 3...it was 59 at start then went down to 49..then 44... had bloods done few weeks later it was at 55..... he told me to go bk at 6 months.. where he wud decide if i needed meds...he told me it wa smy age..... i have family members and friends who have higher function than me and was concerned i was not getting help i needed.... i had spoke with my dr..who kept dismissing when i asked why i am so tired...one dr said  *you tell me*... i also have a friend who is a nurse ..she said you should be under hosptial having tests,,,to see properly why this has happened...so i rung my general renal hospital by me..i told her my function she replied it is not normal...and why have you not been referred and was asked to go bk to my dr to ask to be referred...which he has done!
    • helen54849
      helen54849 christine30769

      Posted

      I see so you have had blood work done, that is a good thing, however to say come back later is quite bad.  Do you know what your BP is?, they will check all this when you go to the hospital, they will also check if you have any blood or protien in your urine.  If your bp is high the meds they give will be to lower it, even if its not really high the better managed your BP is the more this will help with your kidney function.  I can't believe he said its your age, don't quote me but I don't think kidney funtion declines that badly with age.  As an example if someone is tested to be a live doner they do a prediction of what a persons kidney function will be when they reach old age and it has to be 85% you didn't mention how old you are but the general feeling is even old people have normal kidney function if they are well (dont worry I wasn't suggesting you will need this, it was the only example regarding kidney function I could think of from a personal point of view) when you go to the hospital i'm sure you will receive better treatment and advise, don't worry if they say they will see you every 6 months and they will only do this if they are happy with everything.  Good luck and let us know how you go.
    • christine30769
      christine30769 helen54849

      Posted

      i am 50.... when i told the nurse this she said it is not age...some reason has affected your kidneys....and your dr should have sent you for a detailed scan to determine properly what cause is,,,, i have done what wa sasked off me loosing weight ..and exercie... some days i am so tired i try and push myself through it x
    • helen54849
      helen54849 christine30769

      Posted

      Bless you its horible, thats no age to be feeling as bad as you do.  You need to ask about your iron levels as if its low tablets may help with the tiredness.  They will do everything they can for you at the renal clinic.  Let us know when you have been.

      x

  • louise5027
    louise5027 christine30769

    Posted

    I have ckd3 and this has been the same since diagnosis. The only way I found out is that I had dangerously high blood pressure so my GP sent me for an ultrasound, as he said I was too young to have GP that high. I was in my 30s and not overweight.
    • helen54849
      helen54849 louise5027

      Posted

      Hi Louise,

      How is your blood pressure now?do you have a cause for your CKD and does your BP med make you tired

      x

    • louise5027
      louise5027 helen54849

      Posted

      Hi Helen, my Bp had been normal for a long time but has been on the high side recently but GP doesn't seem concerned. They don't know the exact cause but think it may have been from lots of untreated infections as a child so my right kidney is badly scared and only functions at 30%.

      I am monitored every year.

      Although I have just seen a doctor while I have been overseas and he thinks they should be doing more. He asked why I wasn't taking preventative anti biotics as I get alot of infections. 

      My urologist said I should at least be given a six week course if I get an infection but my GP disagrees and only gives one week. 

      I have always been tired even before the bp meds but I put that down to working long hours,I'm not working now and still tired but not so much,this could be sure to lodging weight and I exercise alot. 

    • louise5027
      louise5027

      Posted

      *down to losing weight
    • helen54849
      helen54849 louise5027

      Posted

      Well done for your weight loss, you should be very proud of you, especially if you have fitted it in around long hours.  I weeks worth is rubbish as it wouldn't clear the infection that is more than likely the reason you have scarring.  This is what I think has happened to me when I was younger as both my kidneys are badly scared.  You would think you would be monitored a bit better.  I went to the hospital on Monday and am down to 14% now will go to the transplant hospital for a visit then onto the transplant list, apparently I have to do this even though I have a live doner. Its happening quickly now, I just hope I don't get a cold as I have been told that will finish of what little function I have left. I hope to time everything to avoid dyalasis but what will be will be. Keep us informed of your progress its nice to talk to people who know what we are going through. x
    • louise5027
      louise5027 helen54849

      Posted

      Thank you Helen,I hope all goes well with you.  Do you have the flu jab. I have it every year and barely get a cold now. Let us know how you're getting on. 
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