Classic Migraine changed to Silent Migraine in 30's

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Hi all

I had classic migraines through my teenage years which stopped for a couple of years before continuing at on average one every couple of months with the odd instance of a back to back cluster of 3-10 at once. They were always the same 20 minute aura then axe in the head pain and repeated vomiting for 6 hours followed by a 24hr hangover.  Over the years I have tried all preventers with only Eplilim and Topirimate working for 18 months. I built up tolerance to Eplilim and Topirimate gave me side effects that ended in a blood disorder so cannot take either any more. Beta blockers and anti depressants never worked and Lisinopril was also a short lived waste of time. The only triptan that ever worked was Maxalt rizatriptan but again it lost its effect after 6 months. Something weird has now happened and I wonder if others have had this? I am now 36 and in the last 6 months my migraines have totally changed. I still get the aura but if I take Express Nurofen and an anti sickness tablet straight away or use a heat pack on the back of the neck no pain or sickness comes just 6 hours of extreme tiredness. I always used to throw up any tablets so this is a miracle however the frequency has stepped up to between 5 and 20 a month so it is really impacting on my life. I have had an MRI and all is normal. I have also tried supplements and alternative therapies with no success. Botox and nerve blockers are the next suggestion but will they treat this scenario if there is no pain? Will it stop the aura too and prevent the whole episode? Help!

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13 Replies

  • Posted

    Hi there. I've struggled with hm since 2009. Tiredness is what I suffer. I get shattered 24 hrs before a bad attack . Botox and other blockers aparantly arnt suitable for everyone. For me it wasn't. I have to have paracetamol or nurofen .. and stay away from nurofen + and codine as the morphine in them can magnify the symptoms. The national mygraine centre in London id recommend comcidering. The nhs nurologist arnt specialists in the field and tend to do mygraines as a side line. I visited and was told 400 mg of b2 as a preventer. While it helps it doesn't take it all away.
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    • Posted

      Hi that was quick! Interesting re the codeine that makes sense as I realise when I have taken stuff with that in the tiredness is worse! Thank you for the eureka moment! With your B2 when do you take it and is it not as part of B complex as did try B Cmplex and A lot of Magnesium for a couple of years with limited success. Randomly an osteopath cured them for a year as I have one shoulder frozen higher than the other but that's stopped working too 😟. Can I ask your age an gender and if you had classic migraines before this kind? 

       

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    • Posted

      Hi there . I take it as b2 not as a complex. I tried acupuncture which also helped but it didn't stop the severity of my attacks. I've been on all the triptans with no results etc. I had reactions to them all. My attacks are severe and I get lhs weakness to the point in the worst case I loose all power in fact mine mimics a stroke. I'm just getting over a biggie. Was admitted to stroke unit for a week and had walking sticks and physio. Wasn't the worst I've had either. In 2009 i had two biggies after another .. one got me admitted and had another while on the ward. Feed tubes while in there , salt teams etc.Hm is a nightmare. There is no mygraines in either side of my family and I never suffered any previous so it's sporadic.
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    • Posted

      Well I should really stop complaining listening to how bad yours are! I will look into the B2 as it's definitely worth a shot - mine have flared up after being made redundant so need to vanish when I get another job. I know it's not a stress thing as I love being off for the first time in years - perhaps the extra sleep and lack of coffee and stress is a negative migraine wise although that seems nuts! I should count my blessings though as yours sound horrendous and the way I get them would probably be a relief to you.
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    • Posted

      Makes you even rarer being male! Glad I didn't start querying hormonal links etc! At least you can rule that out as a cause for you lol!
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    • Posted

      Lolol I have tried all sorts. I do find too much coffee and tea isn't good . Caffeine I think plays a part and stress also I feel. I'm off work from a job I love so I do what I can . If I do too much I pay for it .. ie exercise which is frustrating as I'm a fit lad and have always been active. I do nordic walking which is ok .. unless I do too much in a session. I will try my cycle out shortly .. I love to ride .. but again it's a trip into the unknown
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    • Posted

      Well good luck with it all. I have been trying to get out and walk a bit everyday along the sea front which helps - hopefully things will improve for us both fingers crossed 😀
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    • Posted

      Yes best of luck too you as well. Keep me posted on how you get on and if you find anything new !!😊
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  • Posted

    Hi Yola,

    Thats very strange this is also happening to me, i rarely get the side effects of the migraine now just the aura!! My doctor has not given me any referals as yet just tablets on tablets, however I will be going to see my doctor next week to ask for a referal as my eyes are never clear... there is always some kind of flashing or floaters or blurred vision or some kind of visual disturbance that i associate with the aura, do you or has anyone else suffered with this? I have constantly had these vision problems now since November and regularly get the auras 2-3 times a week. I have had an eye test and new glassed but the optician could not find any problems. I am wondering if it is stress related (sub concious stress and worry that you don't know your worries about)

    Hope we all get sorted xx

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    • Posted

      Hiya! I do have floaters in my eyes which are paeticularly visible when I look at a plain wall etc. the aura is always in both eyes and starts as a flashing blob or distorted zigzag which lasts between 5-30 mins. I have had three retinals migraines too in my left eye only which is where your central vision vanishes under a grey blob that gradually shrinks back to normal. Interestingly my husband had visual problems that sound like your in between aura ones a year ago which was eventually put down to anxiety so you could be right about the stress factor. Good luck with your appointment xx
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  • Posted

    Hi there

    I know this discussion began a long time ago, but just thought I would mention my migraines.  I rarely have the headache, except for a couple of occasions that I can remember when it was less of a headache and more of a very stiff neck and back of the head experience.  The aura starts off with a lightbulb moment, that turns into a C shape of zig zags and flashing lights, which gradually moves back causing tunnel vision, until eventually it disappears.

    I had my first migraine the day my dad died (there's a clue) I was 32, and from then were always associated with stress, except they came when I was relaxing after a stressful period, i.e. on holiday.  They were fairly frequent in the beginning but then seemed to fade a little.  Roll the clock forward 16 yrs and I became menopausal, migraines coming at me left right and centre.  By the time I was 52 (post menopausal) I noticed my migraines had changed.  For a period of 2 yrs I was getting them infrequently but they were what I called 'doubles', one straight after the other.  For the past 10 yrs they are not associated with stress but with sleep, lack of or too much, looking at bright lights (sunny day).  

    I'm having one today which is why I'm doing a little research and happened upon this discussion.  I don't get any warning as to when mine are going to happen, the light bulb appears and then I know, 3 mins later it will start.  I hoped I would be growing out of them by now, I don't get that many but they are debilitating when they happen, especially if you happen to be working or driving!

    I'm wondering if any of you have any answers or have moved on the past 6 months.

    Lynne

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