Clean bloodwork with CP

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Can someone pls help me understand why bloodwork wont show CP...

I've had clean bloodwork for 2 years, docs don't believe I have CP - but I have every other symptom pointing at CP! Beacuse blood work is ok they don't want to know - yhey are now starting to suggest I see a psychiatrist - wtf!

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12 Replies

  • Posted

    Hi Jon. I am dealing with the same thing right now...going on 4 months of pain. Have you had any other tests besides blood work?
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  • Posted

    You don't list your symptoms so I don't know if you have the saw symptoms as me, but it took over 2 years for my doctors to diagnose CP for me. I had many blood tests, CT scans and an EUS and nothing (I guess) told them I had CP. It wasn't until I had diarrhea for a month that they figured out I had CP! I would even point to my pancreas and say it hurts right here! After they figured out it was CP, they gave me the digestive enzymes and that helped with the diarrhea. But then they did another EUS to look at the pancreas specifically and right after that I was in a lot of pain and then I started getting the muscle spasms and felt the tight band feeling around my middle! I am currently taking Elavil for anxiety and for pain control, and it helps. I also have not drank any alcohol (alcohol was never a problem for me anyway, I drank about 4-5 drinks a week) I keep my fat grams around 20 grams and I eat lots of fruit and vegetables and whole grains only. I feel relatively good these days, but I am so angry it took so long to diagnose and I feel that last EUS caused more problems for me. I hope you have a better outcome than me.
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    • Posted

      Nina, so sorry to hear that. 2 years is a long time. My doctors don't seem to think it is my pancreas either. I have had every test except an EUS done. What were your initial symptoms?
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    • Posted

      My initial symptoms were pain in my upper abdomen, more towards the right side, though it seems most people experience pain on the left side. I had gas and bloating and it was always worse at night. I also had an itchy area on my back, right behind the pancreas. Food seemed to take a long time to digest too. I had been on Prilisec for about 20 years and that's what I blame the pancreatitis on. It's a known side effect of Prilosec and I can't believe my doctors didn't think of that much earlier! (I didn't know it either until I was diagnosed and started doing research on CP.). You're wise to find out all you can and not rely solely on the doctors. They should be teaching more prevention!
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  • Posted

    Jon, what scans have you had. I had years of ultrasound scans and nothing showed. I then had a MRI with contrast and chronic pancreatitis was there for the specialist to see. Make sure you have the correct scans. Your specialist must know this

    Good luck

    Kevin

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  • Posted

    Sounds familiar. I've had EUs, MRI, Liver Biopsy, you name it - goes on for alonst 2 years. Recently I've got a lot worse. The initial Eus showed early CP but other professors have since said the problem is not my pancreas. They seem to rely on bloodwork....which is always clear. I'm in a queue for another MRI now....

    So much pain and bloating, I can't stand it...

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    • Posted

      Where is the pain? Mine in my left side, seems to radiate out towards the belly button area and sometimes feel a constant burning sensation up the left side of my back. Sometimes I feel like there is a hardness on my left side too right on the left side at the bottom of my ribs. Ever experience pain like this?
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    • Posted

      Sounds heavy! Do you ever get any relief?

      Mine is mainly left side, as well as central and goes through to my back. I have difficulty sitting at a desk! So much disscomfort and pain.

      My left ribcage is also completely sticking out and sore at its furthest point. I go to bed in pain, wake up from the pain....no life.

       

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    • Posted

      I feel the same way. There are windows of relief but I am generally in pain all the time. I feel like I have no quality of life. I can't wait to get home from work some days and lay on the heating pad. (Not sure if that causes actual relief or if it's more mental.) I am generally grumpy too because of always being in pain. Have you found anything that provides any relief?
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    • Posted

      Sorry to hear it!

      No, I've not found anything! Sometimes I want to have a few drinks to feel good but obviously I can't, or at least I don't think I should. I'm not taking any meds, or enzymes, only because nothing helps...

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    • Posted

      I'm not taking anything either. When it was at its worst about 4 months ago they gave me dilaudid in the hospital for pain but that didn't even seem to help much. I am sorry you are dealing with this too. 2 years is a long time. At least it's nice to have this site to be able to talk to other people going through similar things
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