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Clear Ultrasound. What now?

Posted , 8 users are following.

tamsyn59552
tamsyn59552

I went to the doctor for my ultrasound and bloods appointment and all of the results are clear. I was so shocked that I cried. What do I do now? I still feel poorly. My right shoulder hurts so badly that I can't breathe and my stomach keeps hurting no matter what I eat. My weight loss is also a real concern for me. The stage hospitals doctors keep telling me that it's just reflux and gave me medicine for it... but I am still feeling sick. The omerprazole gives me headaches and so does the ranitidine. I can barely breathe these days. Can anyone advise me? What do I do now?

0 likes, 16 replies

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  • tamsyn59552
    tamsyn59552

    Posted

    I meant to say state hospitals. Sorry.
    • peter1928
      peter1928 tamsyn59552

      Posted

      Hello,  you have my sympathy.  But it looks like something other than gallbladder and you need to get to the bottom of it.

      You mention 'state hospital', so you're not in the UK - but you also think you may 'go private'. Are you in Australia?

      I wouldn't advise you to go privately unless you have health insurance.  In any event, press for a second opinion and beware of quacks trying to sell you somehting.

       

    • tamsyn59552
      tamsyn59552 peter1928

      Posted

      I am actually from South Africa and that's exactly why I'm saving up. So that I can afford insurance and be able to make monthly payments. That'll be one thing off of my mind when I go to the private medical hospitals around here. I suspect that it may be something else as well. The only two diagnoses I have received so far is possible gallbladder or acid reflux problems. Some days I'm good butoat days I feel fluey and breathless and headachey. And I can't brrathe for a while. I have gone on a low fate diet and have cut out most bad things like red meat, fried foods, coffee and sodas as well and although my health has slightly improved because of it I still feel sick.
  • dorcas44815
    dorcas44815 tamsyn59552

    Posted

    I wish I had some advice that would solve this problem for you. The only thing I can think of is to keep visiting your GP until they listen to you - and maybe ask for an MRI to be done. Although just having a positive result from these scans is not the answer to all problems. I had the ultrasound and the MRI - both showing a large stone plus I had very high liver results from the blood tests. My GP was fine, but when sent to the consultant, he kept insisting that the debilitating pain was not actually pain - just heartburn & reflux. I ended up going private. You may need to get other tests done and then if no results ask for a 2nd or even 3rd opinion. It may not be your GB, but there must be some reason you are in pain and they need to investigate fully to find out. Try not to be down-hearted.
    • tamsyn59552
      tamsyn59552 dorcas44815

      Posted

      Thanks. I think I may go private as well. Working and saving up money so that I can afford it. Really desperate for any help.
  • 731Madabb
    731Madabb tamsyn59552

    Posted

    Get a hida scan. and have them check you for celiac disease through bloodwork and endoscopy.
  • 731Madabb
    731Madabb tamsyn59552

    Posted

    I just learned I had celiac disease and gastritis...a lot of the symptoms of these two illnesses cross over with gallbladder symptoms....so don't rule out that it could be something besides gallbladder.  And celiac disease can cause your gallbladder function to be less than normal but you want to know that before you decide to have your gallbladder out.....good luck

     

  • 731Madabb
    731Madabb tamsyn59552

    Posted

    That's what the hida scan is for....to determine the functioning of the gallbladder.  Antyhing less than 35% is considered low, but you would still want to know is there is anything else going on too before you take the gallbladder out.  Since I have been on a gluten free diet (because of the celiac) my reflux has greatly diminished.  And I have trouble with the omerprazole and other PPIs giving me headaches and making me nauseous too.  I wouldn't wish celiac disease on anyone, but it is somehting to consider.....
  • debbie89808
    debbie89808 tamsyn59552

    Posted

    Hi

    As others have mentioned, the Hida scan is the way to go to check how well the gallbladder is working. Also you may need additional checks for your pancreas as symptoms can be very similar. My consultant was going to order further tests of the pancreas had I not had an abnormal Hida.

    Best wishes

    Debbie

  • Gem1384
    Gem1384 tamsyn59552

    Posted

    Hi Tamsyn,

    Sorry your scans didn't show anything. It is really fraustrating.

    I have similar symptoms to you. With weightloss and pains etc (see my other posts)

    I have been diagnosed with IBS. The consultant is quite adament that this is the cause sad he's written a very in depth letter to my new gp. When I saw her I filled her in with everything. I mentioned I am still worried about my pancreas. She said she would test my amylase, faecal elastase and then scan. All of which I have had done and are normal. She said after my endoscopy and sigmoidscopy (this Thursday coming) if that's normal she will look into food alergies. I have looked into a private Hida scan but they are £700+. They don't really do them much anymore on the nhs since 2012.

    It's really upsetting as I'm still in pain everyday and still unable to put weight on. I still have loose stools.

    I'm hoping the cameras show something so I can just move on with a diagnosis!

    Have you had any stool samples done?

    Gem

    • tamsyn59552
      tamsyn59552 Gem1384

      Posted

      No none yet. I was constipated for a while before getting normal bowel movement again. My stools look normal although at first they were rather light. My urine is oddly yellowed though even though I do drink a lot of water. Doctors put it down to the multivitamins I am taking but i can't shakeep this burning feeling I get in my gut and chest and the dull pain I get on my right side. It's so worrying. I hope things work out for you on ur side
    • jodie77731
      jodie77731 tamsyn59552

      Posted

      Hello Tamsyn i just came across your initial thread tonight and posted this message to it before seeing this thread oopsie! So posting it here too! In hopes you see it!. Don't lose heart. Don't give up seeking the cause of your illness. It took me over 3 months with numerous specialists, tests, and misdiagnosis' to get here. I too had all my tests (including hida, ct, ultrasound, n bloods for gallbladder) all come back fine! I don't understand how or why really... But i wasn't fine. I wound up in emergency surgery 10 days ago to remove my gallbladder which had no stones but was full of sludge and very sick. Surgeon said probably had a stone once which messed it up is why. I too had symptoms of not being able to breathe, nausea, weight loss, lightheadedness, odd stool and urine, and stomach pains with a feeling like a tennis ball stuffed under my right ribcage and around to my back. Then 3 days before going to ER the last time i started vomiting with diarrhea. I couldn't stop. They finally took my gallbladder hoping it was the problem. Turns out i did have a sick gallbladder and stress gastritis (from being so sick n now confirmed by an endoscopy). I am now healing but still weak. Don't give up. Tests are not always conclusive... Certainly not in my case. The surgeon told me 5% of those with gallbladder disease present in this strange way n do not test like the rest. You know your body best and you know if something is wrong. Never give up fighting for your health... even if you have to throw up on their shoes! I did wink
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