clobetasol and hair loss

I am almost sure I have Lichen Sclerosus and have been suffering intermittent sympoms for a few years. I have been suffering soreness in the inner lips of the minor labial area and around the urethethral opening. No signs of nfection. I have now noticed a white area and I feel confident enough to treat as an inflammatory skin condition with a strong steroid ointment - the ointment I was given for a patch of Lichen simplex chronicus I hae  near my groin. I do not know if it is connected. As I have to wait 2 months to be seen by a gynaecologist and I cannot stand the pain and discomfort of this acute exaceribation that I weighed up the pros aqnd cons to self treat.  From all my reading it seems better if you treat it early. I know you should not self treat but 2 months of steroid ointment is a risk I am prepared to take. After 3 days there is an improvement in appearance of the tissues and the soreness so I will follow the recommended treatment until I can be seen in clinic. I am also aware that it may interfer with the diagnosis but if I can find a way to releve the symptoms and prevent the scaring and atrophy then I will risk it.

I also like Paula never seem to get coughs and colds and I heal very well and feel very healthy. I do not worry about hair loss from steroids as it is only a small area to absorb the steroid and for only a few months. I do worry about no sex life or disfigurment if it can be prevented. It seems you get less chance of complications if treated adequately and early. 

My son has been plagued with eczema all his life which I have treated with strong steroids in short burst when necessary to get on top of it. I am now using his emolients to wash with in the shower which I find soothing. There is Atopy in the family but I have not had any skin compaints until menopause. If it is not LS then as long as I do not make it worse at least I can report the effect of the steroids and we can go from there 

I am not advocating self treatment but I do encourage everyone to check with a mirror to see what  your 'normal' is and recognise when something is different. This is how I noticed the progression and the improvements.

I only  hope I respond to treatment and go in to remission - the best possible outcome - not so often discussed on forums. I will keep you informed.

It is so much better after a week of treatment but seems to have left me with some soreness especially of the urethra.. I suppose I am being impatient..

What is the science behind baking soda baths? I have not had a bath in years as I prefer a showers. I am using dermol wash for the vulval area to protect the area from the soap I use on hair and body. I may try petrolium based grease to protect the area when I go for my swim. Apart from good healthy food and exercise I cannot think what else I can do. I try to remain positive but with the constant burning of the urethra to remind me it is there, it is difficult..

Traclimonas, Protopic, seems to be second line treatment as the safety long term is not tested. It can also sting when used. They do seem to agree that Dermovate.used accordingly to BAD guidelines is the first line of action.

We constantly look for alternative natural treatments as I did for my son for years -  diets, natural products, environment etc  We think something makes a difference then it is disproved in the next flare up. I now tend to wait for the science and read all the studies but everyone is different.

.I do feel that with any long term condition you have to be armed with knowledge, be in charge and cope with it the best you can trying not to let it interfere with your life too much. It is useful to read what everyone else has found out after coping with it for years. Thanks.

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