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Clobetasol impact/dosage question

Posted , 11 users are following.

Sabrina55
Sabrina55

Hi all, thanks again for the invaluable information on this forum.

1. FIrst, used Clobetasol daily for two weeks, and then switched to every other day.  If my symptoms are settling down, can I go to once aweek?  I don't see my doc again for three more weeks.

2. The white 'scarring' has -- as many mentioned on this board -- 'melted.'  With continued clob use, will it leave, or just stay in the 'melted' state?

I'm using the baking soda spray after each (home) bathroom use, and added a daily dab of frankincense oil to see if that helps stop/reverse the mild fusing I have.

Again -- grateful for all the insights into this confusing condition!

 

0 likes, 13 replies

13 Replies

  • lee12629
    lee12629 Sabrina55

    Posted

    Does the clob sting at first?
    • TexinSF
      TexinSF lee12629

      Posted

      Yes when I first used Clob it burned and was very painful. You have to heal a bit and then it works. I used Eucerin until I was a bit better.

    • lee12629
      lee12629

      Posted

      Has anyone used it and it didnt burn or sting??
    • Chrisy
      Chrisy lee12629

      Posted

      Hi Lee,  It has never stung me.  Only ever soothing.
  • deb09833
    deb09833 Sabrina55

    Posted

    Hi - I don't think I would jump from every second day to once a week. I know everyone is different but I found everytime I got past three days everything fell over and I was back to square one. I would continue until your next appointment, I've been using clobetesol since 2009 regularly and found it is the only thing that works for me. So don't worry about a couple of weeks of using it every second day.

    As to fusing/changes I don't believe anything will stop it. There are good patches and bad. Just when I think it's all going good I'll have a flare up. The best thing is to be diligent with your hygiene regime, try cut out sugars and anything foods that may cause a flare up and the most important one for me - don't stress (sometimes easier said than done).

    good luck 

    • Morrell1951
      Morrell1951 deb09833

      Posted

      Twice a week is standard. I tried to go from every third day to every fourth and I could tell it was o good, so I went back to every third. These dosages are a way of maintaining a constant bit of the drug down deep.
  • hanny32508
    hanny32508 Sabrina55

    Posted

    Hi Sabrina,

    I would not reduce the glob usage just yet.  It takes longer than a month or so to get things under control.  I'm in for a couple of years now and still need to use, however small amount, twice a week.  

  • TexinSF
    TexinSF Sabrina55

    Posted

    I have it pretty bad but aquaphor that my doctor told me to use in between keeps it in check until it doesn't, then I use the clob.
  • Morrell1951
    Morrell1951 Sabrina55

    Posted

    Sabrina, I hope you're not using the frankincense oil 'neat' – straight up. Essential oils should never be applied or consumed neat. This is why I put a few drops in a small bottle of jojoba oil. I suspect this is what you're doing, but I wanted that here for anyone else wjho might happen on this discussion.
  • caroline16811
    caroline16811 Sabrina55

    Posted

    Hi, DEFINITELY DON'T REDUCE application for another 3 weeks, keep using every other day and most importantly rub in for 90 seconds. LS is a persistent problem that never really goes away, you can just suppress it.

    My white patches have not returned since I continued the maintenance application of twice a week. personally I do not use any essential oils I won't risk it. I just use the Dermovate, to the spritzing with bicarb and water and I use HYDROMOL OINTMENT as a barrier . That's doing the job for me. I apply barrier ointment at least half an hour after the steroid cream. Skin is normal looking and feeling and does not split and tear as it used to.

    So glad you've seen improvement already, you must keep it up, then hopefully fusing etc will be minimum. good luck x

  • XellossMChan
    XellossMChan Sabrina55

    Posted

    My doctor advised me to use Clobetasol ointment for 3 weeks straight, then stop for two weeks. It's been pretty effective thus far, but I'm wondering--what if I get to a point where I can't go 2 weeks without it? 
    • hanny32508
      hanny32508 XellossMChan

      Posted

      My experience is, and I'm sure I'm not alone in this, to use Glob less after three weeks, but certainly do not stop for two weeks.  Better to go twice a week and also when LS 'announces' itself.  

      Keep well.

    • Morrell1951
      Morrell1951 XellossMChan

      Posted

      Yeah, I was told twice a week as maintenance. If I try to stretch it an extra day, things start happening.

      But I keep reading more and more variations. Doctors do not all agree on how to use clobetasol.

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