clopixol

Thanks but the Consultant put him on Clopixol by getting a second opinion doctor in, I have the second opinion doctors report where he says as the patient was asleep I never spoke with him yet sill rubber stamped he lacked capacity, he is on Clopixol and today is having 600mg very hard to get answers in Mental Health such a closed shop thanks for your reply, yes he did brilliant on Olanzapine for 10 years problem only started when Consultant reduced him to a level that did not manage symptoms regardless of family concerns as he lives with us

thanks katy

 

Oh Katy, I'm so, so sorry. You're in such a difficult situation. The whole of the NHS seems to be a closed shop. I worked for it long ago (as a general nurse) for 10 years, and I don't imagine it's changed much.

Makes my blood boil to hear that the second doctor just rubber-stamped what the first one said without even talking to your son. I left the UK 40 years ago so no longer have to deal with the NHS. However, I still think you could have a case. After all, it sounds as if it wasn't you that got the second opinion, and you still have that right.

Any support groups in your area who could advise you on what sounds like a monumental error? CAB maybe? (Though I've heard they're not as available these days.) Organisations like MenCap or SANE? I'd also try your local Trust's own mediation service. In my experience "it's the squeaky wheel that gets the most grease". Not easy to keep hammering at a brick wall if you're the type of person who doesn't enjoy conflict - which is true of most of us - but people power can work.

Thanks for listening he is in a Private Funded hospital against our wishes we wanted a NHS, he was in an NHS hospital before transfer for 4 month and for 3 months of that including the morning of transer he was allowed unescorted leave, on arrival at the The Fountains Cambian group his meds were increased the first day within 3 week it had been trebled, as this is a slow release depot which takes weeks to show the effects I could not understand 3 increases so rapid then again they state in the brochure stay is 18 month -2 year at £160,000 a year being paid by the NHS there lies the answer 9 month zombie a patient on wrong meds then 9 month putting them on correct med 18 month has gone and look didnt we do well. Well 12 years on Olanzapine with no problems and 2 year on Clopixol in hospital continual it cannot be rocket science which works

 Thanks Katy 

Hi lily

I just read your reply about clopixil my concern is my son was on this depo drug for 3 years 350 mg every 2 weeks. He stopped the depo instantly without consent from his doctor he wasn't on a section so it was his choice if he wanted to stop he was strongly advised not 2. My son has been incredibly well the whole 1 year up untill now he has relapsed and is in hospital taken 10 mg olanzapine which is workinh but he isnt well totally yet. Im so afraid he has made it worse coming off like that He looks better and has more energy lost weight. Now he is back eating obsessively and smoking ..

I know very little about clopixol, Josey, but it's my understanding that withdrawing any anti-psychotic drug too quickly can initially worsen psychotic symptoms. However, if he was on depo format, withdrawal would naturally have taken place slowly anyway, as it would have taken time for the drug to clear his system (as opposed to stopping oral format). I've a feeling the more modern, so-called atypical anti-psychotics - e.g. olanzapine, clozapine, risperidone - are more likely to cause rebound psychosis than the older drugs like clopixol. I've seen my friend on all three of the above-mentioned "atypicals" and I have to say it only seems to have been risperidone that caused really serious withdrawal psychosis - from which she's never recovered, incidentally.

Can you talk to your son and his doctors, and discuss getting him back on clopixol depo, given that it was working so well? Or are they being as intransigent as Katy's son's doctors? I'm wondering why he stopped it in the first place - maybe he didn't like the side-effects?

Hi Josey Olanzapine worked really well for my son maybe he needs a little higher dosage but sadly a top side effect is weight gain. sadly Consultants dont listen to the patient re side effects which is why many stop the meds in the first place. They get away with doing anything with Mental Health patients they would never get away with doing to prisoners and these people have not commit any crime other than being ill, so hope the meds level out for your son and you are in an area with good support once he is home, Lancashire have had so many cut backs.

Hi lilly

Thankyou for getting back I must say since coming on here its been amazing to read so many stories and have support. My son come off clopixil because he just slept eat excessively and slept to me it was heartbreaking to see such a active boy decline. Im not sure hiw the olanzapine will work im hoping he wont have so many side effects but time will tell. He was coping so well off medication and I felt I had my son back, but unfortunately he has relapsed. Im going to see him today and the doctors im feeling quite anxious to go in to the hospital too.

Hi Lilly yes he stopped depo clopixol injection because he didnt have a good quality of life eating, smoking excessively and sleeping all day. But unfortunately has relapsed after 9 months. He is in hospital informal administration and is on aripiprizole 10 mg daily. He is better but suffering from depression and paranoia still. I think maybe he will need higher dose . Not sure he will go back on clopixol too many side affects and he was on a high dose.im praying he will get back on track soon x

Thanks Katylynn how old is your son . ? My son is 23 diagnosed when he was 19. We dont have a good support in my area the crisis team refused to come to my son when he was crying out for help. I rang them numerous times just to get know where . he actually got involved with a car accident too and they still wouldn't come out . I took him to a general hospital to be assedd and he had to wait 15 hours untill going to the mental health hospital absolutely disgusting. Im taken it further . He was texting me help help me please I was in bits but still they dont care. He is now on aripiprozle and im just praying it helps him. he wants to come home but im worried his not fully recovered but he hates it in hospital. So very sad im finding it so hard to cope too. I wake esrly hours evety night. How did you cope? Does your son live with you? X

hi josey what area are you in my son is 31 started with problems at 16 he is 31 now he klives at home how do you cope emotionally I cannot tell you as it is awful watching your son going through this my son has no quality of life on clopixol but they sectioned him so he has no choice wish we could speak private it would be easier

Katy, I see you're asking to talk privately to Josey. You do know, don't you, that you can send each other private messages by clicking on the envelope icon?

no i didnt thank you for that katy